Profound Concerns about “Profound Autism”: Dangers of Severity Scales and Functioning Labels for Support Needs

Recently the <i>Lancet</i> published a Commission on the future of care and clinical research of autism, which included a side panel arguing for the adoption of “profound autism”, a term in- tended to describe autistic people who require constant supervision or care, thought to usually h...

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Main Author: Steven K. Kapp
Format: Article
Language:English
Published: MDPI AG 2023-01-01
Series:Education Sciences
Subjects:
Online Access:https://www.mdpi.com/2227-7102/13/2/106
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author Steven K. Kapp
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author_sort Steven K. Kapp
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description Recently the <i>Lancet</i> published a Commission on the future of care and clinical research of autism, which included a side panel arguing for the adoption of “profound autism”, a term in- tended to describe autistic people who require constant supervision or care, thought to usually have significant intellectual disability, limited or no language, and an inability to advocate for themselves. This state-of-the-art review deconstructs problems with autism sublabels such as “profound autism” and low- and high-functioning labels. It then examines the communicative and cognitive capacities of minimally speaking autistic people, finding that such individuals can communicate (especially with responsive partners) and need nonverbal testing that allows them to demonstrate their potential strengths. It concludes with the ability of minimally speaking autistic people to self-advocate, and the influences of other people to both support and frustrate their communication.
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spelling doaj.art-5021a8fd9bdd488d9c2def6b5eafe4e92023-11-16T20:07:59ZengMDPI AGEducation Sciences2227-71022023-01-0113210610.3390/educsci13020106Profound Concerns about “Profound Autism”: Dangers of Severity Scales and Functioning Labels for Support NeedsSteven K. Kapp0Department of Psychology, University of Portsmouth, King Henry Building, King Henry I Street, Portsmouth PO1 2DY, UKRecently the <i>Lancet</i> published a Commission on the future of care and clinical research of autism, which included a side panel arguing for the adoption of “profound autism”, a term in- tended to describe autistic people who require constant supervision or care, thought to usually have significant intellectual disability, limited or no language, and an inability to advocate for themselves. This state-of-the-art review deconstructs problems with autism sublabels such as “profound autism” and low- and high-functioning labels. It then examines the communicative and cognitive capacities of minimally speaking autistic people, finding that such individuals can communicate (especially with responsive partners) and need nonverbal testing that allows them to demonstrate their potential strengths. It concludes with the ability of minimally speaking autistic people to self-advocate, and the influences of other people to both support and frustrate their communication.https://www.mdpi.com/2227-7102/13/2/106support needsneurodiversityprofound autisminclusioneducation
spellingShingle Steven K. Kapp
Profound Concerns about “Profound Autism”: Dangers of Severity Scales and Functioning Labels for Support Needs
Education Sciences
support needs
neurodiversity
profound autism
inclusion
education
title Profound Concerns about “Profound Autism”: Dangers of Severity Scales and Functioning Labels for Support Needs
title_full Profound Concerns about “Profound Autism”: Dangers of Severity Scales and Functioning Labels for Support Needs
title_fullStr Profound Concerns about “Profound Autism”: Dangers of Severity Scales and Functioning Labels for Support Needs
title_full_unstemmed Profound Concerns about “Profound Autism”: Dangers of Severity Scales and Functioning Labels for Support Needs
title_short Profound Concerns about “Profound Autism”: Dangers of Severity Scales and Functioning Labels for Support Needs
title_sort profound concerns about profound autism dangers of severity scales and functioning labels for support needs
topic support needs
neurodiversity
profound autism
inclusion
education
url https://www.mdpi.com/2227-7102/13/2/106
work_keys_str_mv AT stevenkkapp profoundconcernsaboutprofoundautismdangersofseverityscalesandfunctioninglabelsforsupportneeds