Mobile App for Parental Empowerment for Caregivers of Children With Autism Spectrum Disorders: Prospective Open Trial

BackgroundConflicting data emerge from literature regarding the actual use of smartphone apps in medicine; some considered the introduction of smartphone apps in medicine to be a breakthrough, while others suggested that, in real-life, the use of smartphone apps in medicine i...

Full description

Bibliographic Details
Main Authors: Olivier Bonnot, Vladimir Adrien, Veronique Venelle, Dominique Bonneau, Fanny Gollier-Briant, Stephane Mouchabac
Format: Article
Language:English
Published: JMIR Publications 2021-09-01
Series:JMIR Mental Health
Online Access:https://mental.jmir.org/2021/9/e27803
_version_ 1797735731490193408
author Olivier Bonnot
Vladimir Adrien
Veronique Venelle
Dominique Bonneau
Fanny Gollier-Briant
Stephane Mouchabac
author_facet Olivier Bonnot
Vladimir Adrien
Veronique Venelle
Dominique Bonneau
Fanny Gollier-Briant
Stephane Mouchabac
author_sort Olivier Bonnot
collection DOAJ
description BackgroundConflicting data emerge from literature regarding the actual use of smartphone apps in medicine; some considered the introduction of smartphone apps in medicine to be a breakthrough, while others suggested that, in real-life, the use of smartphone apps in medicine is disappointingly low. Yet, digital tools become more present in medicine daily. To empower parents of a child with autism spectrum disorder, we developed the Smartautism smartphone app, which asks questions and provides feedback, using a screen with simple curves. ObjectiveThe purpose of this study was to evaluate usage of the app by caregivers of individuals with autism spectrum disorders. MethodsWe conducted a prospective longitudinal exploratory open study with families that have a child with autism spectrum disorder. Data were recorded over a period of 6 months, and the outcome criteria were (1) overall response rates for a feedback screen and qualitative questionnaires, and (2) response rates by degree of completion and by user interest, based on attrition. ResultsParticipants (n=65) had a very high intent to use the app during the 6-month period (3698/3900 instances, 94.8%); however, secondary analysis showed that only 46% of participants (30/65) had constant response rates over 50%. Interestingly, these users were characterized by higher use and satisfaction with the feedback screen when compared to low (P<.001) and moderate (P=.007) users. ConclusionsWe found that real or perceived utility is an important incentive for parents who use empowerment smartphone apps. International Registered Report Identifier (IRRID)RR2-10.1136/bmjopen-2016-012135
first_indexed 2024-03-12T13:03:21Z
format Article
id doaj.art-5037793a85f8482d9fe223dc1429cd6b
institution Directory Open Access Journal
issn 2368-7959
language English
last_indexed 2024-03-12T13:03:21Z
publishDate 2021-09-01
publisher JMIR Publications
record_format Article
series JMIR Mental Health
spelling doaj.art-5037793a85f8482d9fe223dc1429cd6b2023-08-28T19:04:31ZengJMIR PublicationsJMIR Mental Health2368-79592021-09-0189e2780310.2196/27803Mobile App for Parental Empowerment for Caregivers of Children With Autism Spectrum Disorders: Prospective Open TrialOlivier Bonnothttps://orcid.org/0000-0003-3776-3645Vladimir Adrienhttps://orcid.org/0000-0001-8035-8843Veronique Venellehttps://orcid.org/0000-0003-0693-873XDominique Bonneauhttps://orcid.org/0000-0002-6886-0969Fanny Gollier-Brianthttps://orcid.org/0000-0003-0350-9825Stephane Mouchabachttps://orcid.org/0000-0002-4226-7956 BackgroundConflicting data emerge from literature regarding the actual use of smartphone apps in medicine; some considered the introduction of smartphone apps in medicine to be a breakthrough, while others suggested that, in real-life, the use of smartphone apps in medicine is disappointingly low. Yet, digital tools become more present in medicine daily. To empower parents of a child with autism spectrum disorder, we developed the Smartautism smartphone app, which asks questions and provides feedback, using a screen with simple curves. ObjectiveThe purpose of this study was to evaluate usage of the app by caregivers of individuals with autism spectrum disorders. MethodsWe conducted a prospective longitudinal exploratory open study with families that have a child with autism spectrum disorder. Data were recorded over a period of 6 months, and the outcome criteria were (1) overall response rates for a feedback screen and qualitative questionnaires, and (2) response rates by degree of completion and by user interest, based on attrition. ResultsParticipants (n=65) had a very high intent to use the app during the 6-month period (3698/3900 instances, 94.8%); however, secondary analysis showed that only 46% of participants (30/65) had constant response rates over 50%. Interestingly, these users were characterized by higher use and satisfaction with the feedback screen when compared to low (P<.001) and moderate (P=.007) users. ConclusionsWe found that real or perceived utility is an important incentive for parents who use empowerment smartphone apps. International Registered Report Identifier (IRRID)RR2-10.1136/bmjopen-2016-012135https://mental.jmir.org/2021/9/e27803
spellingShingle Olivier Bonnot
Vladimir Adrien
Veronique Venelle
Dominique Bonneau
Fanny Gollier-Briant
Stephane Mouchabac
Mobile App for Parental Empowerment for Caregivers of Children With Autism Spectrum Disorders: Prospective Open Trial
JMIR Mental Health
title Mobile App for Parental Empowerment for Caregivers of Children With Autism Spectrum Disorders: Prospective Open Trial
title_full Mobile App for Parental Empowerment for Caregivers of Children With Autism Spectrum Disorders: Prospective Open Trial
title_fullStr Mobile App for Parental Empowerment for Caregivers of Children With Autism Spectrum Disorders: Prospective Open Trial
title_full_unstemmed Mobile App for Parental Empowerment for Caregivers of Children With Autism Spectrum Disorders: Prospective Open Trial
title_short Mobile App for Parental Empowerment for Caregivers of Children With Autism Spectrum Disorders: Prospective Open Trial
title_sort mobile app for parental empowerment for caregivers of children with autism spectrum disorders prospective open trial
url https://mental.jmir.org/2021/9/e27803
work_keys_str_mv AT olivierbonnot mobileappforparentalempowermentforcaregiversofchildrenwithautismspectrumdisordersprospectiveopentrial
AT vladimiradrien mobileappforparentalempowermentforcaregiversofchildrenwithautismspectrumdisordersprospectiveopentrial
AT veroniquevenelle mobileappforparentalempowermentforcaregiversofchildrenwithautismspectrumdisordersprospectiveopentrial
AT dominiquebonneau mobileappforparentalempowermentforcaregiversofchildrenwithautismspectrumdisordersprospectiveopentrial
AT fannygollierbriant mobileappforparentalempowermentforcaregiversofchildrenwithautismspectrumdisordersprospectiveopentrial
AT stephanemouchabac mobileappforparentalempowermentforcaregiversofchildrenwithautismspectrumdisordersprospectiveopentrial