Collaborating with a Youth Council to Improve Chronic Pain Resources
ABSTRACTBackground There is a recognized need to involve people with lived experience of chronic pain when developing chronic pain resources.Aims The aim of this study was to develop, implement, and evaluate a short-term youth council focused on eliciting youths’ recommendations for key features of...
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2023-12-01
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| Series: | Canadian Journal of Pain |
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| Online Access: | https://www.tandfonline.com/doi/10.1080/24740527.2023.2254358 |
| _version_ | 1797448936087093248 |
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| author | Kristy Wittmeier Cara Brown Francis Diaz Heidi Pylypjuk Gayle Restall Polina Anang Kerstin Gerhold |
| author_facet | Kristy Wittmeier Cara Brown Francis Diaz Heidi Pylypjuk Gayle Restall Polina Anang Kerstin Gerhold |
| author_sort | Kristy Wittmeier |
| collection | DOAJ |
| description | ABSTRACTBackground There is a recognized need to involve people with lived experience of chronic pain when developing chronic pain resources.Aims The aim of this study was to develop, implement, and evaluate a short-term youth council focused on eliciting youths’ recommendations for key features of chronic pain informational resources.Methods In this mixed methods instrumental case study, demographic data were collected via Survey Monkey®. Select Patient-Reported Outcomes Measurement Information System® brief measures were used to provide context regarding pain impact within this group. Participants completed an initial interview, which informed youth council workshop delivery. Over two youth council workshops, participants reviewed select informational resources and identified key features of chronic pain resources. Participants evaluated their involvement experience during a second interview. Qualitative data were transcribed and analyzed using directed content analysis. Member-checking occurred during a third workshop, held virtually.Results Seven youth self-identifying as girl/woman or demi-girl participated. The youth were satisfied with the youth council experience, highlighting the importance of meeting others, a relaxed environment, and participating in valuable work. A list of youth-identified key features for informational resources was created through the workshops, which includes considerations for audience groups, content, and presentation.Conclusion Participants’ input into youth council development and meeting others with lived experience contributed to a safe and supportive involvement experience. Youth council involvement supported the development of preliminary recommendations for chronic pain informational resources. |
| first_indexed | 2024-03-09T14:17:35Z |
| format | Article |
| id | doaj.art-505dc395c139428ba94f6e87eed51368 |
| institution | Directory Open Access Journal |
| issn | 2474-0527 |
| language | English |
| last_indexed | 2024-03-09T14:17:35Z |
| publishDate | 2023-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Canadian Journal of Pain |
| spelling | doaj.art-505dc395c139428ba94f6e87eed513682023-11-28T20:20:16ZengTaylor & Francis GroupCanadian Journal of Pain2474-05272023-12-017110.1080/24740527.2023.2254358Collaborating with a Youth Council to Improve Chronic Pain ResourcesKristy Wittmeier0Cara Brown1Francis Diaz2Heidi Pylypjuk3Gayle Restall4Polina Anang5Kerstin Gerhold6Children’s Hospital Research Institute of Manitoba, Winnipeg, Manitoba, CanadaDepartment of Occupational Therapy, College of Rehabilitation Sciences, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Manitoba, CanadaChildren’s Hospital Research Institute of Manitoba, Winnipeg, Manitoba, CanadaChildren’s Hospital Research Institute of Manitoba, Winnipeg, Manitoba, CanadaDepartment of Occupational Therapy, College of Rehabilitation Sciences, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Manitoba, CanadaDepartment of Psychiatry, University of Manitoba, Winnipeg, Manitoba, CanadaChildren’s Hospital Research Institute of Manitoba, Winnipeg, Manitoba, CanadaABSTRACTBackground There is a recognized need to involve people with lived experience of chronic pain when developing chronic pain resources.Aims The aim of this study was to develop, implement, and evaluate a short-term youth council focused on eliciting youths’ recommendations for key features of chronic pain informational resources.Methods In this mixed methods instrumental case study, demographic data were collected via Survey Monkey®. Select Patient-Reported Outcomes Measurement Information System® brief measures were used to provide context regarding pain impact within this group. Participants completed an initial interview, which informed youth council workshop delivery. Over two youth council workshops, participants reviewed select informational resources and identified key features of chronic pain resources. Participants evaluated their involvement experience during a second interview. Qualitative data were transcribed and analyzed using directed content analysis. Member-checking occurred during a third workshop, held virtually.Results Seven youth self-identifying as girl/woman or demi-girl participated. The youth were satisfied with the youth council experience, highlighting the importance of meeting others, a relaxed environment, and participating in valuable work. A list of youth-identified key features for informational resources was created through the workshops, which includes considerations for audience groups, content, and presentation.Conclusion Participants’ input into youth council development and meeting others with lived experience contributed to a safe and supportive involvement experience. Youth council involvement supported the development of preliminary recommendations for chronic pain informational resources.https://www.tandfonline.com/doi/10.1080/24740527.2023.2254358Chronic painyouthresourcesengagementmixed methods |
| spellingShingle | Kristy Wittmeier Cara Brown Francis Diaz Heidi Pylypjuk Gayle Restall Polina Anang Kerstin Gerhold Collaborating with a Youth Council to Improve Chronic Pain Resources Canadian Journal of Pain Chronic pain youth resources engagement mixed methods |
| title | Collaborating with a Youth Council to Improve Chronic Pain Resources |
| title_full | Collaborating with a Youth Council to Improve Chronic Pain Resources |
| title_fullStr | Collaborating with a Youth Council to Improve Chronic Pain Resources |
| title_full_unstemmed | Collaborating with a Youth Council to Improve Chronic Pain Resources |
| title_short | Collaborating with a Youth Council to Improve Chronic Pain Resources |
| title_sort | collaborating with a youth council to improve chronic pain resources |
| topic | Chronic pain youth resources engagement mixed methods |
| url | https://www.tandfonline.com/doi/10.1080/24740527.2023.2254358 |
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