A qualitative exploration of living with dementia in supported living environments using a peer researcher approach

Background: The aim of the paper is to examine the experiences and perspectives of people living with dementia who live in supported living environments. Methods: Peer researchers conducted semi-structured interviews with twenty-two people living with dementia in nine different supported living envi...

Full description

Bibliographic Details
Main Authors: Jean Daly-Lynn, Assumpta Ryan, Brendan McCormack, Suzanne Martin
Format: Article
Language:English
Published: Elsevier 2022-03-01
Series:Aging and Health Research
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2667032122000038
_version_ 1818358405525405696
author Jean Daly-Lynn
Assumpta Ryan
Brendan McCormack
Suzanne Martin
author_facet Jean Daly-Lynn
Assumpta Ryan
Brendan McCormack
Suzanne Martin
author_sort Jean Daly-Lynn
collection DOAJ
description Background: The aim of the paper is to examine the experiences and perspectives of people living with dementia who live in supported living environments. Methods: Peer researchers conducted semi-structured interviews with twenty-two people living with dementia in nine different supported living environments. Results: Three themes developed from the thematic analysis: “You can come and go when you like” (Independence and Autonomy); “Everybody the staff and all, all works together” (Collaborative Relationships); and “When I came first, I saw this –I said is this all mine?” (Correct Fit of the Environment). Participants reported living environments that fostered their independence, choice, and control. Collaborative relationships with staff members and family caregivers were important to live the life of their choice. Finally, the correct environment created a sense of ownership and belonging within this space. Conclusions: These findings illustrate that supported living can be an environment that empowers individuals on their dementia journey.
first_indexed 2024-12-13T20:28:29Z
format Article
id doaj.art-50a84e969fb445ed8359707e189be1ae
institution Directory Open Access Journal
issn 2667-0321
language English
last_indexed 2024-12-13T20:28:29Z
publishDate 2022-03-01
publisher Elsevier
record_format Article
series Aging and Health Research
spelling doaj.art-50a84e969fb445ed8359707e189be1ae2022-12-21T23:32:29ZengElsevierAging and Health Research2667-03212022-03-0121100055A qualitative exploration of living with dementia in supported living environments using a peer researcher approachJean Daly-Lynn0Assumpta Ryan1Brendan McCormack2Suzanne Martin3School of Health Sciences, Ulster University, Shore Rd, Newtownabbey, Northern Ireland BT37 0QB, United Kingdom; Engage with Age, East Belfast, Northern Ireland, United Kingdom; Corresponding author at: School of Health Sciences, Ulster University, Shore Rd, Newtownabbey, Northern Ireland BT37 0QB, United Kingdom.School of Nursing, Ulster University, Magee, Northern Ireland, United KingdomHead of Division of Nursing, Queen Margaret University, Scotland, United KingdomSchool of Health Sciences, Ulster University, Shore Rd, Newtownabbey, Northern Ireland BT37 0QB, United KingdomBackground: The aim of the paper is to examine the experiences and perspectives of people living with dementia who live in supported living environments. Methods: Peer researchers conducted semi-structured interviews with twenty-two people living with dementia in nine different supported living environments. Results: Three themes developed from the thematic analysis: “You can come and go when you like” (Independence and Autonomy); “Everybody the staff and all, all works together” (Collaborative Relationships); and “When I came first, I saw this –I said is this all mine?” (Correct Fit of the Environment). Participants reported living environments that fostered their independence, choice, and control. Collaborative relationships with staff members and family caregivers were important to live the life of their choice. Finally, the correct environment created a sense of ownership and belonging within this space. Conclusions: These findings illustrate that supported living can be an environment that empowers individuals on their dementia journey.http://www.sciencedirect.com/science/article/pii/S2667032122000038Dementia careLiving with dementiaPeer researchersSupported livingQualitative researchEmpowerment
spellingShingle Jean Daly-Lynn
Assumpta Ryan
Brendan McCormack
Suzanne Martin
A qualitative exploration of living with dementia in supported living environments using a peer researcher approach
Aging and Health Research
Dementia care
Living with dementia
Peer researchers
Supported living
Qualitative research
Empowerment
title A qualitative exploration of living with dementia in supported living environments using a peer researcher approach
title_full A qualitative exploration of living with dementia in supported living environments using a peer researcher approach
title_fullStr A qualitative exploration of living with dementia in supported living environments using a peer researcher approach
title_full_unstemmed A qualitative exploration of living with dementia in supported living environments using a peer researcher approach
title_short A qualitative exploration of living with dementia in supported living environments using a peer researcher approach
title_sort qualitative exploration of living with dementia in supported living environments using a peer researcher approach
topic Dementia care
Living with dementia
Peer researchers
Supported living
Qualitative research
Empowerment
url http://www.sciencedirect.com/science/article/pii/S2667032122000038
work_keys_str_mv AT jeandalylynn aqualitativeexplorationoflivingwithdementiainsupportedlivingenvironmentsusingapeerresearcherapproach
AT assumptaryan aqualitativeexplorationoflivingwithdementiainsupportedlivingenvironmentsusingapeerresearcherapproach
AT brendanmccormack aqualitativeexplorationoflivingwithdementiainsupportedlivingenvironmentsusingapeerresearcherapproach
AT suzannemartin aqualitativeexplorationoflivingwithdementiainsupportedlivingenvironmentsusingapeerresearcherapproach
AT jeandalylynn qualitativeexplorationoflivingwithdementiainsupportedlivingenvironmentsusingapeerresearcherapproach
AT assumptaryan qualitativeexplorationoflivingwithdementiainsupportedlivingenvironmentsusingapeerresearcherapproach
AT brendanmccormack qualitativeexplorationoflivingwithdementiainsupportedlivingenvironmentsusingapeerresearcherapproach
AT suzannemartin qualitativeexplorationoflivingwithdementiainsupportedlivingenvironmentsusingapeerresearcherapproach