BRCA Previvors: Medical and Social Factors That Differentiate Them From Previvors With Other Hereditary Cancers

In this paper, I outline some of the reasons why BRCA “previvors” (i.e., “survivors of a predisposition to cancer”) are different from previvors with other hereditary cancers. I examine how the absence of a standard of care for breast cancer risk for women with a BRCA mutation, coupled with a broad...

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Main Author: Campo-Engelstein, Lisa
Format: Article
Language:English
Published: BioéthiqueOnline 2017-04-01
Series:BioéthiqueOnline
Subjects:
Online Access:http://bioethiqueonline.ca/6/4
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author Campo-Engelstein, Lisa
author_facet Campo-Engelstein, Lisa
author_sort Campo-Engelstein, Lisa
collection DOAJ
description In this paper, I outline some of the reasons why BRCA “previvors” (i.e., “survivors of a predisposition to cancer”) are different from previvors with other hereditary cancers. I examine how the absence of a standard of care for breast cancer risk for women with a BRCA mutation, coupled with a broad range of genetic penetrance and lower mortality, makes BRCA different than other hereditary cancers that have clear and established guidelines. In addition to these medical differences, social factors like the cultural prominence of breast cancer and the social significance of breasts have engendered a more complicated individual previvor identity for and cultural response to women with a BRCA mutation.
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spelling doaj.art-519b2e8245b8450a8e67c8e5ff5587ec2022-12-21T20:08:46ZengBioéthiqueOnlineBioéthiqueOnline1923-27992017-04-0164BRCA Previvors: Medical and Social Factors That Differentiate Them From Previvors With Other Hereditary CancersCampo-Engelstein, Lisa0Alden March Bioethics Institute, OBGYN Department, Albany Medical College, Albany, NY, USAIn this paper, I outline some of the reasons why BRCA “previvors” (i.e., “survivors of a predisposition to cancer”) are different from previvors with other hereditary cancers. I examine how the absence of a standard of care for breast cancer risk for women with a BRCA mutation, coupled with a broad range of genetic penetrance and lower mortality, makes BRCA different than other hereditary cancers that have clear and established guidelines. In addition to these medical differences, social factors like the cultural prominence of breast cancer and the social significance of breasts have engendered a more complicated individual previvor identity for and cultural response to women with a BRCA mutation.http://bioethiqueonline.ca/6/4previvorBRCAhereditary cancerbreast cancer
spellingShingle Campo-Engelstein, Lisa
BRCA Previvors: Medical and Social Factors That Differentiate Them From Previvors With Other Hereditary Cancers
BioéthiqueOnline
previvor
BRCA
hereditary cancer
breast cancer
title BRCA Previvors: Medical and Social Factors That Differentiate Them From Previvors With Other Hereditary Cancers
title_full BRCA Previvors: Medical and Social Factors That Differentiate Them From Previvors With Other Hereditary Cancers
title_fullStr BRCA Previvors: Medical and Social Factors That Differentiate Them From Previvors With Other Hereditary Cancers
title_full_unstemmed BRCA Previvors: Medical and Social Factors That Differentiate Them From Previvors With Other Hereditary Cancers
title_short BRCA Previvors: Medical and Social Factors That Differentiate Them From Previvors With Other Hereditary Cancers
title_sort brca previvors medical and social factors that differentiate them from previvors with other hereditary cancers
topic previvor
BRCA
hereditary cancer
breast cancer
url http://bioethiqueonline.ca/6/4
work_keys_str_mv AT campoengelsteinlisa brcaprevivorsmedicalandsocialfactorsthatdifferentiatethemfromprevivorswithotherhereditarycancers