The Development of Schematics to Illustrate Women’s Experiences with Adjuvant Hormone Therapy in the Treatment of Breast Cancer

Othman AlOmeir, Nilesh Patel, Parastou Donyai Department of Pharmacy, University of Reading, Reading, Berkshire, UKCorrespondence: Othman AlOmeir; Parastou Donyai, Email aalomear@su.edu.sa; p.donyai@reading.ac.ukObjective: Non-adherence to adjuvant hormone therapy prescribed orally in the treatment...

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Main Authors: AlOmeir O, Patel N, Donyai P
Format: Article
Language:English
Published: Dove Medical Press 2022-09-01
Series:Patient Preference and Adherence
Subjects:
Online Access:https://www.dovepress.com/the-development-of-schematics-to-illustrate-womens-experiences-with-ad-peer-reviewed-fulltext-article-PPA
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author AlOmeir O
Patel N
Donyai P
author_facet AlOmeir O
Patel N
Donyai P
author_sort AlOmeir O
collection DOAJ
description Othman AlOmeir, Nilesh Patel, Parastou Donyai Department of Pharmacy, University of Reading, Reading, Berkshire, UKCorrespondence: Othman AlOmeir; Parastou Donyai, Email aalomear@su.edu.sa; p.donyai@reading.ac.ukObjective: Non-adherence to adjuvant hormone therapy prescribed orally in the treatment of breast cancer is complex as the literature has shown. Many women find it hard to adhere to the hormonal medicines they are prescribed and expected to take for at least 5 years following the initial management of their breast cancer. Arguably, communicating other women’s ‘trials, tribulations, and triumphs’ with medication-taking could help newly-diagnosed patients to better prepare for the journey ahead. Our objective was to visually represent women’s experiences with these medicines using data synthesized in the literature.Methods: Three schematics were drawn for each phase of medication-taking, namely, starting out, adherence, and cessation. The schematics were validated by interviewing a panel of healthcare professionals (n=10) and calculating a Content Validity Index (CVI). The edited drawings were discussed with a separate panel of breast cancer survivors (n=14) whose responses were elicited qualitatively in one-to-one interviews.Results: A total of 76 individual pictograms were drawn across the three schematics. The 13 pictograms that had an item-level CVI< 0.8 were modified according to feedback resulting in three final schematics with an overall CVI of 87%, 87% and 80%, respectively.Conclusion: Synthesised summaries of women’s experiences with oral hormone therapy for breast cancer were visualised via three validated schematics. The schematics could aid patient-professional communication to help anticipate and tackle negative experiences and support decisions to take hormone medication in breast cancer.Keywords: adherence, medication, breast cancer, hormone therapy, qualitative research, pictogram
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spelling doaj.art-51b428169a47434fb4829d57c5ab2ad92022-12-22T03:49:10ZengDove Medical PressPatient Preference and Adherence1177-889X2022-09-01Volume 162639264778483The Development of Schematics to Illustrate Women&rsquo;s Experiences with Adjuvant Hormone Therapy in the Treatment of Breast CancerAlOmeir OPatel NDonyai POthman AlOmeir, Nilesh Patel, Parastou Donyai Department of Pharmacy, University of Reading, Reading, Berkshire, UKCorrespondence: Othman AlOmeir; Parastou Donyai, Email aalomear@su.edu.sa; p.donyai@reading.ac.ukObjective: Non-adherence to adjuvant hormone therapy prescribed orally in the treatment of breast cancer is complex as the literature has shown. Many women find it hard to adhere to the hormonal medicines they are prescribed and expected to take for at least 5 years following the initial management of their breast cancer. Arguably, communicating other women’s ‘trials, tribulations, and triumphs’ with medication-taking could help newly-diagnosed patients to better prepare for the journey ahead. Our objective was to visually represent women’s experiences with these medicines using data synthesized in the literature.Methods: Three schematics were drawn for each phase of medication-taking, namely, starting out, adherence, and cessation. The schematics were validated by interviewing a panel of healthcare professionals (n=10) and calculating a Content Validity Index (CVI). The edited drawings were discussed with a separate panel of breast cancer survivors (n=14) whose responses were elicited qualitatively in one-to-one interviews.Results: A total of 76 individual pictograms were drawn across the three schematics. The 13 pictograms that had an item-level CVI< 0.8 were modified according to feedback resulting in three final schematics with an overall CVI of 87%, 87% and 80%, respectively.Conclusion: Synthesised summaries of women’s experiences with oral hormone therapy for breast cancer were visualised via three validated schematics. The schematics could aid patient-professional communication to help anticipate and tackle negative experiences and support decisions to take hormone medication in breast cancer.Keywords: adherence, medication, breast cancer, hormone therapy, qualitative research, pictogramhttps://www.dovepress.com/the-development-of-schematics-to-illustrate-womens-experiences-with-ad-peer-reviewed-fulltext-article-PPAadherencemedicationbreast cancerhormone therapyqualitative researchpictogram
spellingShingle AlOmeir O
Patel N
Donyai P
The Development of Schematics to Illustrate Women&rsquo;s Experiences with Adjuvant Hormone Therapy in the Treatment of Breast Cancer
Patient Preference and Adherence
adherence
medication
breast cancer
hormone therapy
qualitative research
pictogram
title The Development of Schematics to Illustrate Women&rsquo;s Experiences with Adjuvant Hormone Therapy in the Treatment of Breast Cancer
title_full The Development of Schematics to Illustrate Women&rsquo;s Experiences with Adjuvant Hormone Therapy in the Treatment of Breast Cancer
title_fullStr The Development of Schematics to Illustrate Women&rsquo;s Experiences with Adjuvant Hormone Therapy in the Treatment of Breast Cancer
title_full_unstemmed The Development of Schematics to Illustrate Women&rsquo;s Experiences with Adjuvant Hormone Therapy in the Treatment of Breast Cancer
title_short The Development of Schematics to Illustrate Women&rsquo;s Experiences with Adjuvant Hormone Therapy in the Treatment of Breast Cancer
title_sort development of schematics to illustrate women rsquo s experiences with adjuvant hormone therapy in the treatment of breast cancer
topic adherence
medication
breast cancer
hormone therapy
qualitative research
pictogram
url https://www.dovepress.com/the-development-of-schematics-to-illustrate-womens-experiences-with-ad-peer-reviewed-fulltext-article-PPA
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