Social Listening in Gout: Impact of Proactive vs. Reactive Management on Self-Reported Emotional States

Abstract Introduction This study aimed to characterize patient-reported outcomes from social media conversations in the gout community. The impact of management strategy differences on the community’s emotional states was explored. Methods We analyzed two social media sources using a variety of natu...

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Main Authors: Maurice Flurie, Monica Converse, E. Robert Wassman, Brian LaMoreaux, N. Lawrence Edwards, Colton Flowers, Daniel Hernandez, Helen W. Hernandez, Gary Ho, Christopher Parker, Christopher DeFelice, Maria Picone
Format: Article
Language:English
Published: Adis, Springer Healthcare 2024-01-01
Series:Rheumatology and Therapy
Subjects:
Online Access:https://doi.org/10.1007/s40744-023-00637-y
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author Maurice Flurie
Monica Converse
E. Robert Wassman
Brian LaMoreaux
N. Lawrence Edwards
Colton Flowers
Daniel Hernandez
Helen W. Hernandez
Gary Ho
Christopher Parker
Christopher DeFelice
Maria Picone
author_facet Maurice Flurie
Monica Converse
E. Robert Wassman
Brian LaMoreaux
N. Lawrence Edwards
Colton Flowers
Daniel Hernandez
Helen W. Hernandez
Gary Ho
Christopher Parker
Christopher DeFelice
Maria Picone
author_sort Maurice Flurie
collection DOAJ
description Abstract Introduction This study aimed to characterize patient-reported outcomes from social media conversations in the gout community. The impact of management strategy differences on the community’s emotional states was explored. Methods We analyzed two social media sources using a variety of natural language processing techniques. We isolated conversations with a high probability of discussing disease management (score > 0.99). These conversations were stratified by management type: proactive or reactive. The polarity (positivity/negativity) of language and emotions conveyed in statements shared by community members was assessed by management type. Results Among the statements related to management, reactive management (e.g., urgent care) was mentioned in 0.5% of statements, and proactive management (e.g., primary care) was mentioned in 0.6% of statements. Reactive management statements had a significantly larger proportion of negative words (59%) than did proactive management statements (44%); “fear” occurred more frequently with reactive statements, whereas “trust” predominated in proactive statements. Allopurinol was the most common medication in proactive management statements, whereas reactive management had significantly higher counts of prednisone/steroid mentions. Conclusions A unique aspect of examining gout-related social media conversations is the ability to better understand the intersection of clinical management and emotional impacts in the gout community. The effect of social media statements was significantly stratified by management type for gout community members, where proactive management statements were characterized by more positive language than reactive management statements. These results suggest that proactive disease management may result in more positive mental and emotional experiences in patients with gout.
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spelling doaj.art-5283bc1146b34bc2be1393adb004faa12024-03-10T12:21:51ZengAdis, Springer HealthcareRheumatology and Therapy2198-65762198-65842024-01-0111230131110.1007/s40744-023-00637-ySocial Listening in Gout: Impact of Proactive vs. Reactive Management on Self-Reported Emotional StatesMaurice Flurie0Monica Converse1E. Robert Wassman2Brian LaMoreaux3N. Lawrence Edwards4Colton Flowers5Daniel Hernandez6Helen W. Hernandez7Gary Ho8Christopher Parker9Christopher DeFelice10Maria Picone11TREND CommunityTREND CommunityTREND CommunityHorizon Therapeutics PlcDepartment of Medicine, University of FloridaTREND CommunityGlobal Healthy Living FoundationKAL Research Initiatives LLCTREND CommunityGout Support Group of AmericaTREND CommunityTREND CommunityAbstract Introduction This study aimed to characterize patient-reported outcomes from social media conversations in the gout community. The impact of management strategy differences on the community’s emotional states was explored. Methods We analyzed two social media sources using a variety of natural language processing techniques. We isolated conversations with a high probability of discussing disease management (score > 0.99). These conversations were stratified by management type: proactive or reactive. The polarity (positivity/negativity) of language and emotions conveyed in statements shared by community members was assessed by management type. Results Among the statements related to management, reactive management (e.g., urgent care) was mentioned in 0.5% of statements, and proactive management (e.g., primary care) was mentioned in 0.6% of statements. Reactive management statements had a significantly larger proportion of negative words (59%) than did proactive management statements (44%); “fear” occurred more frequently with reactive statements, whereas “trust” predominated in proactive statements. Allopurinol was the most common medication in proactive management statements, whereas reactive management had significantly higher counts of prednisone/steroid mentions. Conclusions A unique aspect of examining gout-related social media conversations is the ability to better understand the intersection of clinical management and emotional impacts in the gout community. The effect of social media statements was significantly stratified by management type for gout community members, where proactive management statements were characterized by more positive language than reactive management statements. These results suggest that proactive disease management may result in more positive mental and emotional experiences in patients with gout.https://doi.org/10.1007/s40744-023-00637-yDisease managementEmotionsGoutMental healthSocial listening
spellingShingle Maurice Flurie
Monica Converse
E. Robert Wassman
Brian LaMoreaux
N. Lawrence Edwards
Colton Flowers
Daniel Hernandez
Helen W. Hernandez
Gary Ho
Christopher Parker
Christopher DeFelice
Maria Picone
Social Listening in Gout: Impact of Proactive vs. Reactive Management on Self-Reported Emotional States
Rheumatology and Therapy
Disease management
Emotions
Gout
Mental health
Social listening
title Social Listening in Gout: Impact of Proactive vs. Reactive Management on Self-Reported Emotional States
title_full Social Listening in Gout: Impact of Proactive vs. Reactive Management on Self-Reported Emotional States
title_fullStr Social Listening in Gout: Impact of Proactive vs. Reactive Management on Self-Reported Emotional States
title_full_unstemmed Social Listening in Gout: Impact of Proactive vs. Reactive Management on Self-Reported Emotional States
title_short Social Listening in Gout: Impact of Proactive vs. Reactive Management on Self-Reported Emotional States
title_sort social listening in gout impact of proactive vs reactive management on self reported emotional states
topic Disease management
Emotions
Gout
Mental health
Social listening
url https://doi.org/10.1007/s40744-023-00637-y
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