The Exploration and Analysis of Constructing a Multiple Health Security System for Rare Diseases in China
Health security for rare diseases has aroused much attention in the society nowadays, In this article, we analyzed in-depth the construction of rare diseases health security in China by studying the literature reviews, expert interviews, and reports of pilot policy investigations. We conclude in the...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | zho |
| Published: |
Editorial Office of Journal of Rare Diseases
2023-01-01
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| Series: | 罕见病研究 |
| Subjects: | |
| Online Access: | https://jrd.chard.org.cn/article/doi/10.12376/j.issn.2097-0501.2023.01.019 |
| _version_ | 1797369864527020032 |
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| author | TAO Libo WANG Fangxu JIA Fanghong YANG Yulin ZHENG Jiayin ZHANG Shuyang |
| author_facet | TAO Libo WANG Fangxu JIA Fanghong YANG Yulin ZHENG Jiayin ZHANG Shuyang |
| author_sort | TAO Libo |
| collection | DOAJ |
| description | Health security for rare diseases has aroused much attention in the society nowadays, In this article, we analyzed in-depth the construction of rare diseases health security in China by studying the literature reviews, expert interviews, and reports of pilot policy investigations. We conclude in the study that it is an important step to constructing a multiple health security system for the rare disease making the basic health security as the cornerstone. For rare medications and treatments that cannot be covered by the current national health insurance, it is necessary to build an specific funding for rare disease funding as a means of safeguard. Finally, for those who are financially disadvantages, the system should involve relief and philanthropy to help them. By constructing a multiple health security system, rare diseases patients in our country will get a well-covered health care. |
| first_indexed | 2024-03-08T17:53:10Z |
| format | Article |
| id | doaj.art-52d9a8cabf83437587d8c1a329bdb553 |
| institution | Directory Open Access Journal |
| issn | 2097-0501 |
| language | zho |
| last_indexed | 2024-03-08T17:53:10Z |
| publishDate | 2023-01-01 |
| publisher | Editorial Office of Journal of Rare Diseases |
| record_format | Article |
| series | 罕见病研究 |
| spelling | doaj.art-52d9a8cabf83437587d8c1a329bdb5532024-01-02T06:13:18ZzhoEditorial Office of Journal of Rare Diseases罕见病研究2097-05012023-01-012113514210.12376/j.issn.2097-0501.2023.01.019The Exploration and Analysis of Constructing a Multiple Health Security System for Rare Diseases in ChinaTAO Libo0WANG Fangxu1JIA Fanghong2YANG Yulin3ZHENG Jiayin4ZHANG Shuyang5Department of Health Policy and Management, School of Public Health, Peking University, Beijing 100191, ChinaDepartment of Health Policy and Management, School of Public Health, Peking University, Beijing 100191, ChinaBeijing Institute of Health Economics, Beijing 100053, ChinaQinghai Provincial Medical Insurance Management Bureau, Xi′ning 810000, ChinaChina Alliance for Rare Diseases, Beijing 100022, ChinaPeking Union Medical College, Chinese Academy of Medical Sciences & Peking Union Medical College, Beijing 100730, ChinaHealth security for rare diseases has aroused much attention in the society nowadays, In this article, we analyzed in-depth the construction of rare diseases health security in China by studying the literature reviews, expert interviews, and reports of pilot policy investigations. We conclude in the study that it is an important step to constructing a multiple health security system for the rare disease making the basic health security as the cornerstone. For rare medications and treatments that cannot be covered by the current national health insurance, it is necessary to build an specific funding for rare disease funding as a means of safeguard. Finally, for those who are financially disadvantages, the system should involve relief and philanthropy to help them. By constructing a multiple health security system, rare diseases patients in our country will get a well-covered health care.https://jrd.chard.org.cn/article/doi/10.12376/j.issn.2097-0501.2023.01.019rare diseasesmultiple security systemhealthcare security |
| spellingShingle | TAO Libo WANG Fangxu JIA Fanghong YANG Yulin ZHENG Jiayin ZHANG Shuyang The Exploration and Analysis of Constructing a Multiple Health Security System for Rare Diseases in China 罕见病研究 rare diseases multiple security system healthcare security |
| title | The Exploration and Analysis of Constructing a Multiple Health Security System for Rare Diseases in China |
| title_full | The Exploration and Analysis of Constructing a Multiple Health Security System for Rare Diseases in China |
| title_fullStr | The Exploration and Analysis of Constructing a Multiple Health Security System for Rare Diseases in China |
| title_full_unstemmed | The Exploration and Analysis of Constructing a Multiple Health Security System for Rare Diseases in China |
| title_short | The Exploration and Analysis of Constructing a Multiple Health Security System for Rare Diseases in China |
| title_sort | exploration and analysis of constructing a multiple health security system for rare diseases in china |
| topic | rare diseases multiple security system healthcare security |
| url | https://jrd.chard.org.cn/article/doi/10.12376/j.issn.2097-0501.2023.01.019 |
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