The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)
We have developed a Europe-wide approach to investigating the economic impact of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), facilitating acquisition of information on the economic burden of ME/CFS, and international comparisons of economic costs between countries. The economic burd...
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| Format: | Article |
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MDPI AG
2020-04-01
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| Series: | Healthcare |
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| Online Access: | https://www.mdpi.com/2227-9032/8/2/88 |
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| author | Derek F.H. Pheby Diana Araja Uldis Berkis Elenka Brenna John Cullinan Jean-Dominique de Korwin Lara Gitto Dyfrig A Hughes Rachael M Hunter Dominic Trepel Xia Wang-Steverding |
| author_facet | Derek F.H. Pheby Diana Araja Uldis Berkis Elenka Brenna John Cullinan Jean-Dominique de Korwin Lara Gitto Dyfrig A Hughes Rachael M Hunter Dominic Trepel Xia Wang-Steverding |
| author_sort | Derek F.H. Pheby |
| collection | DOAJ |
| description | We have developed a Europe-wide approach to investigating the economic impact of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), facilitating acquisition of information on the economic burden of ME/CFS, and international comparisons of economic costs between countries. The economic burden of ME/CFS in Europe appears large, with productivity losses most significant, giving scope for substantial savings through effective prevention and treatment. However, economic studies of ME/CFS, including cost-of-illness analyses and economic evaluations of interventions, are problematic due to different, arbitrary case definitions, and unwillingness of doctors to diagnose it. We therefore lack accurate incidence and prevalence data, with no obvious way to estimate costs incurred by undiagnosed patients. Other problems include, as for other conditions, difficulties estimating direct and indirect costs incurred by healthcare systems, patients and families, and heterogeneous healthcare systems and patterns of economic development across countries. We have made recommendations, including use of the Fukuda (CDC-1994) case definition and Canadian Consensus Criteria (CCC), a pan-European common symptom checklist, and implementation of prevalence-based cost-of-illness studies in different countries using an agreed data list. We recommend using purchasing power parities (PPP) to facilitate international comparisons, and EuroQol-5D as a generic measure of health status and multi-attribute utility instrument to inform future economic evaluations in ME/CFS. |
| first_indexed | 2024-03-10T20:37:42Z |
| format | Article |
| id | doaj.art-53392e7a0ea74d03a107c447b209634c |
| institution | Directory Open Access Journal |
| issn | 2227-9032 |
| language | English |
| last_indexed | 2024-03-10T20:37:42Z |
| publishDate | 2020-04-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Healthcare |
| spelling | doaj.art-53392e7a0ea74d03a107c447b209634c2023-11-19T20:53:00ZengMDPI AGHealthcare2227-90322020-04-01828810.3390/healthcare8020088The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)Derek F.H. Pheby0Diana Araja1Uldis Berkis2Elenka Brenna3John Cullinan4Jean-Dominique de Korwin5Lara Gitto6Dyfrig A Hughes7Rachael M Hunter8Dominic Trepel9Xia Wang-Steverding10Society and Health, Buckinghamshire New University, High Wycombe HP11 2JZ, UKDepartment of Dosage Form Technology, Faculty of Pharmacy, Riga Stradins University, Dzirciema Street 16, LV-1007 Riga, LatviaInstitute of Microbiology and Virology, Riga Stradins University, Dzirciema Street 16, LV-1007 Riga, LatviaDepartment of Economics and Finance, Università Cattolica del Sacro Cuore, Largo Agostino Gemelli 1, 20123 Milan, ItalySchool of Business & Economics, National University of Ireland Galway, University Road, H91 TK33 Galway, IrelandInternal Medicine Department, University of Lorraine, 34, cours Léopold, CS 25233, F-54052 Nancy CEDEX, FranceDepartment of Economics, University of Messina, Piazza Pugliatti 1, 98122 Messina, ItalyCentre for Health Economics & Medicines Evaluation, Bangor University, Bangor LL57 2PZ, UKInstitute of Epidemiology & Health, Royal Free Medical School, University College London, London NW3 2PF, UKSchool of Medicine, Trinity College Dublin, College Green, D02 PN40 Dublin 2, IrelandWarwick Medical School, University of Warwick, Coventry CV4 7AL, UKWe have developed a Europe-wide approach to investigating the economic impact of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), facilitating acquisition of information on the economic burden of ME/CFS, and international comparisons of economic costs between countries. The economic burden of ME/CFS in Europe appears large, with productivity losses most significant, giving scope for substantial savings through effective prevention and treatment. However, economic studies of ME/CFS, including cost-of-illness analyses and economic evaluations of interventions, are problematic due to different, arbitrary case definitions, and unwillingness of doctors to diagnose it. We therefore lack accurate incidence and prevalence data, with no obvious way to estimate costs incurred by undiagnosed patients. Other problems include, as for other conditions, difficulties estimating direct and indirect costs incurred by healthcare systems, patients and families, and heterogeneous healthcare systems and patterns of economic development across countries. We have made recommendations, including use of the Fukuda (CDC-1994) case definition and Canadian Consensus Criteria (CCC), a pan-European common symptom checklist, and implementation of prevalence-based cost-of-illness studies in different countries using an agreed data list. We recommend using purchasing power parities (PPP) to facilitate international comparisons, and EuroQol-5D as a generic measure of health status and multi-attribute utility instrument to inform future economic evaluations in ME/CFS.https://www.mdpi.com/2227-9032/8/2/88ME/CFSeconomic impactcost-of-illness studieseconomic evaluationhealthcare systems |
| spellingShingle | Derek F.H. Pheby Diana Araja Uldis Berkis Elenka Brenna John Cullinan Jean-Dominique de Korwin Lara Gitto Dyfrig A Hughes Rachael M Hunter Dominic Trepel Xia Wang-Steverding The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE) Healthcare ME/CFS economic impact cost-of-illness studies economic evaluation healthcare systems |
| title | The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE) |
| title_full | The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE) |
| title_fullStr | The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE) |
| title_full_unstemmed | The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE) |
| title_short | The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE) |
| title_sort | development of a consistent europe wide approach to investigating the economic impact of myalgic encephalomyelitis me cfs a report from the european network on me cfs euromene |
| topic | ME/CFS economic impact cost-of-illness studies economic evaluation healthcare systems |
| url | https://www.mdpi.com/2227-9032/8/2/88 |
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