Consensus on how to optimise patient/family engagement in hospital planning and improvement: a Delphi survey

Objective Patient and family engagement (PE) in health service planning and improvement is widely advocated, yet little prior research offered guidance on how to optimise PE, particularly in hospitals. This study aimed to engage stakeholders in generating evidence-informed consensus on recommendatio...

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Main Authors: Anna R Gagliardi, Walter P Wodchis, Robin Urquhart, Lesley Moody, G Ross Baker, Natalie N Anderson, Kerseri Scane
Format: Article
Language:English
Published: BMJ Publishing Group 2022-09-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/12/9/e061271.full
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author Anna R Gagliardi
Walter P Wodchis
Robin Urquhart
Lesley Moody
G Ross Baker
Natalie N Anderson
Kerseri Scane
author_facet Anna R Gagliardi
Walter P Wodchis
Robin Urquhart
Lesley Moody
G Ross Baker
Natalie N Anderson
Kerseri Scane
author_sort Anna R Gagliardi
collection DOAJ
description Objective Patient and family engagement (PE) in health service planning and improvement is widely advocated, yet little prior research offered guidance on how to optimise PE, particularly in hospitals. This study aimed to engage stakeholders in generating evidence-informed consensus on recommendations to optimise PE.Design We transformed PE processes and resources from prior research into recommendations that populated an online Delphi survey.Setting and participants Panellists included 58 persons with PE experience including: 22 patient/family advisors and 36 others (PE managers, clinicians, executives and researchers) in round 1 (100%) and 55 in round 2 (95%).Outcome measures Ratings of importance on a seven-point Likert scale of 48 strategies organised in domains: engagement approaches, strategies to integrate diverse perspectives, facilitators, strategies to champion engagement and hospital capacity for engagement.Results Of 50 recommendations, 80% or more of panellists prioritised 32 recommendations (27 in round 1, 5 in round 2) across 5 domains: 5 engagement approaches, 4 strategies to identify and integrate diverse patient/family advisor perspectives, 9 strategies to enable meaningful engagement, 9 strategies by which hospitals can champion PE and 5 elements of hospital capacity considered essential for supporting PE. There was high congruence in rating between patient/family advisors and healthcare professionals for all but six recommendations that were highly rated by patient/family advisors but not by others: capturing diverse perspectives, including a critical volume of advisors on committees/teams, prospectively monitoring PE, advocating for government funding of PE, including PE in healthcare worker job descriptions and sharing PE strategies across hospitals.Conclusions Decision-makers (eg, health system policy-makers, hospitals executives and managers) can use these recommendations as a framework by which to plan and operationalise PE, or evaluate and improve PE in their own settings. Ongoing research is needed to monitor the uptake and impact of these recommendations on PE policy and practice.
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spelling doaj.art-5385f17b23fa4f2da56665b73edc84082022-12-22T04:28:58ZengBMJ Publishing GroupBMJ Open2044-60552022-09-0112910.1136/bmjopen-2022-061271Consensus on how to optimise patient/family engagement in hospital planning and improvement: a Delphi surveyAnna R Gagliardi0Walter P Wodchis1Robin Urquhart2Lesley Moody3G Ross Baker4Natalie N Anderson5Kerseri Scane6Toronto General Research Institute, University Health Network, Toronto, Ontario, Canada2 Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, CanadaDepartment of Community Health and Epidemiology, Dalhousie University, Halifax, Nova Scotia, CanadaMedical Oncology and Hematology, Princess Margaret Hospital Cancer Centre, Toronto, Ontario, Canada1Institute of Health Policy, Management & Evaluation, University of Toronto, Toronto, Ontario, CanadaToronto General Hospital Research Institute, University Health Network, Toronto, Ontario, CanadaPatient Partnerships, University Health Network, Toronto, Ontario, CanadaObjective Patient and family engagement (PE) in health service planning and improvement is widely advocated, yet little prior research offered guidance on how to optimise PE, particularly in hospitals. This study aimed to engage stakeholders in generating evidence-informed consensus on recommendations to optimise PE.Design We transformed PE processes and resources from prior research into recommendations that populated an online Delphi survey.Setting and participants Panellists included 58 persons with PE experience including: 22 patient/family advisors and 36 others (PE managers, clinicians, executives and researchers) in round 1 (100%) and 55 in round 2 (95%).Outcome measures Ratings of importance on a seven-point Likert scale of 48 strategies organised in domains: engagement approaches, strategies to integrate diverse perspectives, facilitators, strategies to champion engagement and hospital capacity for engagement.Results Of 50 recommendations, 80% or more of panellists prioritised 32 recommendations (27 in round 1, 5 in round 2) across 5 domains: 5 engagement approaches, 4 strategies to identify and integrate diverse patient/family advisor perspectives, 9 strategies to enable meaningful engagement, 9 strategies by which hospitals can champion PE and 5 elements of hospital capacity considered essential for supporting PE. There was high congruence in rating between patient/family advisors and healthcare professionals for all but six recommendations that were highly rated by patient/family advisors but not by others: capturing diverse perspectives, including a critical volume of advisors on committees/teams, prospectively monitoring PE, advocating for government funding of PE, including PE in healthcare worker job descriptions and sharing PE strategies across hospitals.Conclusions Decision-makers (eg, health system policy-makers, hospitals executives and managers) can use these recommendations as a framework by which to plan and operationalise PE, or evaluate and improve PE in their own settings. Ongoing research is needed to monitor the uptake and impact of these recommendations on PE policy and practice.https://bmjopen.bmj.com/content/12/9/e061271.full
spellingShingle Anna R Gagliardi
Walter P Wodchis
Robin Urquhart
Lesley Moody
G Ross Baker
Natalie N Anderson
Kerseri Scane
Consensus on how to optimise patient/family engagement in hospital planning and improvement: a Delphi survey
BMJ Open
title Consensus on how to optimise patient/family engagement in hospital planning and improvement: a Delphi survey
title_full Consensus on how to optimise patient/family engagement in hospital planning and improvement: a Delphi survey
title_fullStr Consensus on how to optimise patient/family engagement in hospital planning and improvement: a Delphi survey
title_full_unstemmed Consensus on how to optimise patient/family engagement in hospital planning and improvement: a Delphi survey
title_short Consensus on how to optimise patient/family engagement in hospital planning and improvement: a Delphi survey
title_sort consensus on how to optimise patient family engagement in hospital planning and improvement a delphi survey
url https://bmjopen.bmj.com/content/12/9/e061271.full
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