The life scenarios of family who have autistic child at home
Living with autism is not easy for the autistic children themselves and their family members. Especially the family members who are also the main caregivers. This ethnographic study aimed to describe the ways of life of families who have children with autism at home. Data were collected through part...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
Universitas Aisyiyah Yogyakarta
2019-05-01
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| Series: | Journal of Health Technology Assessment in Midwifery |
| Subjects: | |
| Online Access: | https://ejournal.unisayogya.ac.id/ejournal/index.php/JHTAM/article/view/765 |
| _version_ | 1818718448217227264 |
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| author | Cau Kim Jiu Somporn Rungreangkulkij |
| author_facet | Cau Kim Jiu Somporn Rungreangkulkij |
| author_sort | Cau Kim Jiu |
| collection | DOAJ |
| description | Living with autism is not easy for the autistic children themselves and their family members. Especially the family members who are also the main caregivers. This ethnographic study aimed to describe the ways of life of families who have children with autism at home. Data were collected through participant observations, focus group discussions and in-depth interviews. There were 20 families as key informants taken by purposive sampling who consist of mothers, grandmothers, and siblings. The data were analyzed by thematic analysis. There were four family life scenarios of family living with autistism including: 1) basic self care activity, 2) locking doors to protect the autistic children, 3) woman act as a main caregiver, 4) risk of child abuse, and 5) supporting from spouse and other family members. Main caregivers risk psychological, physical and social problems. Nurses should provide counseling to the main caregiver by deep listening to their concerns and teaching them how to manage stress. In addition, caregivers need supports from the family member particularly the husband. |
| first_indexed | 2024-12-17T19:51:12Z |
| format | Article |
| id | doaj.art-53c25352c79d44a6a80df2a83edb6160 |
| institution | Directory Open Access Journal |
| issn | 2620-8423 2620-5653 |
| language | English |
| last_indexed | 2024-12-17T19:51:12Z |
| publishDate | 2019-05-01 |
| publisher | Universitas Aisyiyah Yogyakarta |
| record_format | Article |
| series | Journal of Health Technology Assessment in Midwifery |
| spelling | doaj.art-53c25352c79d44a6a80df2a83edb61602022-12-21T21:34:43ZengUniversitas Aisyiyah YogyakartaJournal of Health Technology Assessment in Midwifery2620-84232620-56532019-05-01211910.31101/jhtam.765355The life scenarios of family who have autistic child at homeCau Kim Jiu0Somporn Rungreangkulkij1Faculty Of Nursing Khon Kaen University ThailandFaculty Of Nursing Khon Kaen University ThailandLiving with autism is not easy for the autistic children themselves and their family members. Especially the family members who are also the main caregivers. This ethnographic study aimed to describe the ways of life of families who have children with autism at home. Data were collected through participant observations, focus group discussions and in-depth interviews. There were 20 families as key informants taken by purposive sampling who consist of mothers, grandmothers, and siblings. The data were analyzed by thematic analysis. There were four family life scenarios of family living with autistism including: 1) basic self care activity, 2) locking doors to protect the autistic children, 3) woman act as a main caregiver, 4) risk of child abuse, and 5) supporting from spouse and other family members. Main caregivers risk psychological, physical and social problems. Nurses should provide counseling to the main caregiver by deep listening to their concerns and teaching them how to manage stress. In addition, caregivers need supports from the family member particularly the husband.https://ejournal.unisayogya.ac.id/ejournal/index.php/JHTAM/article/view/765autistic children, life scenarios, family |
| spellingShingle | Cau Kim Jiu Somporn Rungreangkulkij The life scenarios of family who have autistic child at home Journal of Health Technology Assessment in Midwifery autistic children, life scenarios, family |
| title | The life scenarios of family who have autistic child at home |
| title_full | The life scenarios of family who have autistic child at home |
| title_fullStr | The life scenarios of family who have autistic child at home |
| title_full_unstemmed | The life scenarios of family who have autistic child at home |
| title_short | The life scenarios of family who have autistic child at home |
| title_sort | life scenarios of family who have autistic child at home |
| topic | autistic children, life scenarios, family |
| url | https://ejournal.unisayogya.ac.id/ejournal/index.php/JHTAM/article/view/765 |
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