Giving Voice to People with Dementia and Perspectives Regarding a Dementia-Friendly Society: A Synthesis of Qualitative Studies
Johanne Alteren,1 Aud Johannessen,2,3 Anne Marit Lyberg,2 Inger-Lise Magnussen4 1Faculty of Health Sciences and Social Care, Molde University College, Molde, Norway; 2Faculty of Health and Social Sciences, University of South-Eastern Norway, Horten, Norway; 3Norwegian National Centre for Ageing and...
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| Format: | Article |
| Language: | English |
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Dove Medical Press
2023-04-01
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| Series: | Journal of Multidisciplinary Healthcare |
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| Online Access: | https://www.dovepress.com/giving-voice-to-people-with-dementia-and-perspectives-regarding-a-deme-peer-reviewed-fulltext-article-JMDH |
| _version_ | 1797854197678342144 |
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| author | Alteren J Johannessen A Lyberg AM Magnussen IL |
| author_facet | Alteren J Johannessen A Lyberg AM Magnussen IL |
| author_sort | Alteren J |
| collection | DOAJ |
| description | Johanne Alteren,1 Aud Johannessen,2,3 Anne Marit Lyberg,2 Inger-Lise Magnussen4 1Faculty of Health Sciences and Social Care, Molde University College, Molde, Norway; 2Faculty of Health and Social Sciences, University of South-Eastern Norway, Horten, Norway; 3Norwegian National Centre for Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway; 4Faculty of Nursing and Health Sciences, Nord University, Stokmarknes, NorwayCorrespondence: Johanne Alteren, Tel +47 71 19 58 93, Fax +47 71 21 40 00, Email Johanne.Alteren@himolde.noIntroduction: The World Health Organization [WHO] and governments worldwide envision the development of dementia-friendly societies that are based on a person-centered culture. A limited number of studies have described the features of dementia-friendly societies based on the viewpoints of people with dementia.Purpose: To synthesize qualitative empirical research that expands the knowledge of what people with dementia consider to be essential for daily living in a dementia-friendly society.Methods: The authors searched phrases in the databases AgeLine, CINAHL, EMBASE, MedLine, PsycINFO, PubMed, ORIA, SveMed+, and Cochrane Library. Research articles that involved people with dementia and were conducted in Western countries, written in English, published in peer-reviewed academic journals using qualitative methods, and published within the past decade were included. The research included was critically and systematically appraised using the critical appraisal skills program checklist for qualitative research, and the findings were analyzed according to Graneheim and Lundman’s method of qualitative content analysis.Results: Overall, 1122 records— 561 from 2019 and 561 from 2021—were identified through the search, and nine studies were included in the final synthesis. The studies included were from the United Kingdom (five studies), Australia (three studies), and New Zealand (one study). Through the analysis process, the following main theme emerged: giving voice to people with dementia, which summarizes the essence of what people with dementia believe is essential for daily living in a dementia-friendly society. The main theme covered two themes: a sense of being valued and a sense of being safeguarded, each of which contained subthemes.Conclusion: To meet the WHO’s and the governments worldwide intention to develop dementia-friendly societies, further research should focus on the voices of people with dementia. By including those concerned, the political goals of a dementia-friendly society can be achieved.Keywords: approachable society, user involvement, decision-making, systematic review, qualitative research, person-centered culture |
| first_indexed | 2024-04-09T20:03:18Z |
| format | Article |
| id | doaj.art-543c97df69844b95a4416fbd0afce572 |
| institution | Directory Open Access Journal |
| issn | 1178-2390 |
| language | English |
| last_indexed | 2024-04-09T20:03:18Z |
| publishDate | 2023-04-01 |
| publisher | Dove Medical Press |
| record_format | Article |
| series | Journal of Multidisciplinary Healthcare |
| spelling | doaj.art-543c97df69844b95a4416fbd0afce5722023-04-02T19:44:15ZengDove Medical PressJournal of Multidisciplinary Healthcare1178-23902023-04-01Volume 1685186182713Giving Voice to People with Dementia and Perspectives Regarding a Dementia-Friendly Society: A Synthesis of Qualitative StudiesAlteren JJohannessen ALyberg AMMagnussen ILJohanne Alteren,1 Aud Johannessen,2,3 Anne Marit Lyberg,2 Inger-Lise Magnussen4 1Faculty of Health Sciences and Social Care, Molde University College, Molde, Norway; 2Faculty of Health and Social Sciences, University of South-Eastern Norway, Horten, Norway; 3Norwegian National Centre for Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway; 4Faculty of Nursing and Health Sciences, Nord University, Stokmarknes, NorwayCorrespondence: Johanne Alteren, Tel +47 71 19 58 93, Fax +47 71 21 40 00, Email Johanne.Alteren@himolde.noIntroduction: The World Health Organization [WHO] and governments worldwide envision the development of dementia-friendly societies that are based on a person-centered culture. A limited number of studies have described the features of dementia-friendly societies based on the viewpoints of people with dementia.Purpose: To synthesize qualitative empirical research that expands the knowledge of what people with dementia consider to be essential for daily living in a dementia-friendly society.Methods: The authors searched phrases in the databases AgeLine, CINAHL, EMBASE, MedLine, PsycINFO, PubMed, ORIA, SveMed+, and Cochrane Library. Research articles that involved people with dementia and were conducted in Western countries, written in English, published in peer-reviewed academic journals using qualitative methods, and published within the past decade were included. The research included was critically and systematically appraised using the critical appraisal skills program checklist for qualitative research, and the findings were analyzed according to Graneheim and Lundman’s method of qualitative content analysis.Results: Overall, 1122 records— 561 from 2019 and 561 from 2021—were identified through the search, and nine studies were included in the final synthesis. The studies included were from the United Kingdom (five studies), Australia (three studies), and New Zealand (one study). Through the analysis process, the following main theme emerged: giving voice to people with dementia, which summarizes the essence of what people with dementia believe is essential for daily living in a dementia-friendly society. The main theme covered two themes: a sense of being valued and a sense of being safeguarded, each of which contained subthemes.Conclusion: To meet the WHO’s and the governments worldwide intention to develop dementia-friendly societies, further research should focus on the voices of people with dementia. By including those concerned, the political goals of a dementia-friendly society can be achieved.Keywords: approachable society, user involvement, decision-making, systematic review, qualitative research, person-centered culturehttps://www.dovepress.com/giving-voice-to-people-with-dementia-and-perspectives-regarding-a-deme-peer-reviewed-fulltext-article-JMDHapproachable societyuser involvementdecision-makingsystematic reviewqualitative re-searchperson-centered culture |
| spellingShingle | Alteren J Johannessen A Lyberg AM Magnussen IL Giving Voice to People with Dementia and Perspectives Regarding a Dementia-Friendly Society: A Synthesis of Qualitative Studies Journal of Multidisciplinary Healthcare approachable society user involvement decision-making systematic review qualitative re-search person-centered culture |
| title | Giving Voice to People with Dementia and Perspectives Regarding a Dementia-Friendly Society: A Synthesis of Qualitative Studies |
| title_full | Giving Voice to People with Dementia and Perspectives Regarding a Dementia-Friendly Society: A Synthesis of Qualitative Studies |
| title_fullStr | Giving Voice to People with Dementia and Perspectives Regarding a Dementia-Friendly Society: A Synthesis of Qualitative Studies |
| title_full_unstemmed | Giving Voice to People with Dementia and Perspectives Regarding a Dementia-Friendly Society: A Synthesis of Qualitative Studies |
| title_short | Giving Voice to People with Dementia and Perspectives Regarding a Dementia-Friendly Society: A Synthesis of Qualitative Studies |
| title_sort | giving voice to people with dementia and perspectives regarding a dementia friendly society a synthesis of qualitative studies |
| topic | approachable society user involvement decision-making systematic review qualitative re-search person-centered culture |
| url | https://www.dovepress.com/giving-voice-to-people-with-dementia-and-perspectives-regarding-a-deme-peer-reviewed-fulltext-article-JMDH |
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