Communicating with patients with idiopathic pulmonary fibrosis: can we do it better?
Communications between clinicians and patients with idiopathic pulmonary fibrosis (IPF) have the potential to be challenging. The variable course and poor prognosis of IPF complicate discussions around life expectancy but should not prevent clinicians from having meaningful conversations about patie...
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
European Respiratory Society
2022-01-01
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| Series: | ERJ Open Research |
| Online Access: | http://openres.ersjournals.com/content/8/1/00422-2021.full |
| _version_ | 1818348633617072128 |
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| author | Marlies S. Wijsenbeek Francesco Bonella Leticia Orsatti Anne-Marie Russell Claudia Valenzuela Wim A. Wuyts Walter F. Baile |
| author_facet | Marlies S. Wijsenbeek Francesco Bonella Leticia Orsatti Anne-Marie Russell Claudia Valenzuela Wim A. Wuyts Walter F. Baile |
| author_sort | Marlies S. Wijsenbeek |
| collection | DOAJ |
| description | Communications between clinicians and patients with idiopathic pulmonary fibrosis (IPF) have the potential to be challenging. The variable course and poor prognosis of IPF complicate discussions around life expectancy but should not prevent clinicians from having meaningful conversations about patients’ fears and needs, while acknowledging uncertainties. Patients want information about the course of their disease and management options, but the provision of information needs to be individualised to the needs and preferences of the patient. Communication from clinicians should be empathetic and take account of the patient's perceptions and concerns. Models, tools and protocols are available that can help clinicians to improve their interactions with patients. In this article, we consider the difficulties inherent in discussions with patients with IPF and their loved ones, and how clinicians might communicate with patients more effectively, from breaking the news about the diagnosis to providing support throughout the course of the disease. |
| first_indexed | 2024-12-13T17:53:10Z |
| format | Article |
| id | doaj.art-54b02269693f48cbb15c9d23c91278f5 |
| institution | Directory Open Access Journal |
| issn | 2312-0541 |
| language | English |
| last_indexed | 2024-12-13T17:53:10Z |
| publishDate | 2022-01-01 |
| publisher | European Respiratory Society |
| record_format | Article |
| series | ERJ Open Research |
| spelling | doaj.art-54b02269693f48cbb15c9d23c91278f52022-12-21T23:36:26ZengEuropean Respiratory SocietyERJ Open Research2312-05412022-01-018110.1183/23120541.00422-202100422-2021Communicating with patients with idiopathic pulmonary fibrosis: can we do it better?Marlies S. Wijsenbeek0Francesco Bonella1Leticia Orsatti2Anne-Marie Russell3Claudia Valenzuela4Wim A. Wuyts5Walter F. Baile6 Dept of Respiratory Medicine, Erasmus MC, University Medical Centre, Rotterdam, The Netherlands Center for Interstitial and Rare Lung Disease, Ruhrlandklinik, University Hospital, Duisburg-Essen University, Essen, Germany Boehringer Ingelheim International GmbH, Ingelheim, Germany College of Medicine and Health University of Exeter, Exeter, UK Pulmonology Dept, Hospital Universitario de la Princesa, Universidad Autonoma de Madrid, Madrid, Spain Unit for Interstitial Lung Diseases, Dept of Pulmonary Medicine, University Hospitals Leuven, Leuven, Belgium University of Texas M.D. Anderson Cancer Center, Houston, TX, USA Communications between clinicians and patients with idiopathic pulmonary fibrosis (IPF) have the potential to be challenging. The variable course and poor prognosis of IPF complicate discussions around life expectancy but should not prevent clinicians from having meaningful conversations about patients’ fears and needs, while acknowledging uncertainties. Patients want information about the course of their disease and management options, but the provision of information needs to be individualised to the needs and preferences of the patient. Communication from clinicians should be empathetic and take account of the patient's perceptions and concerns. Models, tools and protocols are available that can help clinicians to improve their interactions with patients. In this article, we consider the difficulties inherent in discussions with patients with IPF and their loved ones, and how clinicians might communicate with patients more effectively, from breaking the news about the diagnosis to providing support throughout the course of the disease.http://openres.ersjournals.com/content/8/1/00422-2021.full |
| spellingShingle | Marlies S. Wijsenbeek Francesco Bonella Leticia Orsatti Anne-Marie Russell Claudia Valenzuela Wim A. Wuyts Walter F. Baile Communicating with patients with idiopathic pulmonary fibrosis: can we do it better? ERJ Open Research |
| title | Communicating with patients with idiopathic pulmonary fibrosis: can we do it better? |
| title_full | Communicating with patients with idiopathic pulmonary fibrosis: can we do it better? |
| title_fullStr | Communicating with patients with idiopathic pulmonary fibrosis: can we do it better? |
| title_full_unstemmed | Communicating with patients with idiopathic pulmonary fibrosis: can we do it better? |
| title_short | Communicating with patients with idiopathic pulmonary fibrosis: can we do it better? |
| title_sort | communicating with patients with idiopathic pulmonary fibrosis can we do it better |
| url | http://openres.ersjournals.com/content/8/1/00422-2021.full |
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