Living well with kidney disease by patient and care-partner empowerment: Kidney health for everyone everywhere
Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD related symptoms to enable life pa...
| Main Authors: | , , , , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Wolters Kluwer Medknow Publications
2021-01-01
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| Series: | Saudi Journal of Kidney Diseases and Transplantation |
| Online Access: | http://www.sjkdt.org/article.asp?issn=1319-2442;year=2021;volume=32;issue=2;spage=289;epage=297;aulast=Kalantar-Zadeh |
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| author | Kamyar Kalantar-Zadeh Philip Kam-Tao Li Ekamol Tantisattamo Latha Kumaraswami Vassilios Liakopoulos Siu-Fai Lui Ifeoma Ulasi Sharon Andreoli Alessandro Balducci Sophie Dupuis Tess Harris Anne Hradsky Richard Knight Sajay Kumar Maggie Ng Alice Poidevin Gamal Saadi Allison Tong World Kidney Day Steering Committee |
| author_facet | Kamyar Kalantar-Zadeh Philip Kam-Tao Li Ekamol Tantisattamo Latha Kumaraswami Vassilios Liakopoulos Siu-Fai Lui Ifeoma Ulasi Sharon Andreoli Alessandro Balducci Sophie Dupuis Tess Harris Anne Hradsky Richard Knight Sajay Kumar Maggie Ng Alice Poidevin Gamal Saadi Allison Tong World Kidney Day Steering Committee |
| author_sort | Kamyar Kalantar-Zadeh |
| collection | DOAJ |
| description | Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policymakers, applicable to both developed and developing countries. |
| first_indexed | 2024-12-20T15:40:06Z |
| format | Article |
| id | doaj.art-54c19ac151794197949c079df95f0e88 |
| institution | Directory Open Access Journal |
| issn | 1319-2442 |
| language | English |
| last_indexed | 2024-12-20T15:40:06Z |
| publishDate | 2021-01-01 |
| publisher | Wolters Kluwer Medknow Publications |
| record_format | Article |
| series | Saudi Journal of Kidney Diseases and Transplantation |
| spelling | doaj.art-54c19ac151794197949c079df95f0e882022-12-21T19:35:13ZengWolters Kluwer Medknow PublicationsSaudi Journal of Kidney Diseases and Transplantation1319-24422021-01-0132228929710.4103/1319-2442.335439Living well with kidney disease by patient and care-partner empowerment: Kidney health for everyone everywhereKamyar Kalantar-ZadehPhilip Kam-Tao LiEkamol TantisattamoLatha KumaraswamiVassilios LiakopoulosSiu-Fai LuiIfeoma UlasiSharon AndreoliAlessandro BalducciSophie DupuisTess HarrisAnne HradskyRichard KnightSajay KumarMaggie NgAlice PoidevinGamal SaadiAllison TongWorld Kidney Day Steering CommitteeLiving with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policymakers, applicable to both developed and developing countries.http://www.sjkdt.org/article.asp?issn=1319-2442;year=2021;volume=32;issue=2;spage=289;epage=297;aulast=Kalantar-Zadeh |
| spellingShingle | Kamyar Kalantar-Zadeh Philip Kam-Tao Li Ekamol Tantisattamo Latha Kumaraswami Vassilios Liakopoulos Siu-Fai Lui Ifeoma Ulasi Sharon Andreoli Alessandro Balducci Sophie Dupuis Tess Harris Anne Hradsky Richard Knight Sajay Kumar Maggie Ng Alice Poidevin Gamal Saadi Allison Tong World Kidney Day Steering Committee Living well with kidney disease by patient and care-partner empowerment: Kidney health for everyone everywhere Saudi Journal of Kidney Diseases and Transplantation |
| title | Living well with kidney disease by patient and care-partner empowerment: Kidney health for everyone everywhere |
| title_full | Living well with kidney disease by patient and care-partner empowerment: Kidney health for everyone everywhere |
| title_fullStr | Living well with kidney disease by patient and care-partner empowerment: Kidney health for everyone everywhere |
| title_full_unstemmed | Living well with kidney disease by patient and care-partner empowerment: Kidney health for everyone everywhere |
| title_short | Living well with kidney disease by patient and care-partner empowerment: Kidney health for everyone everywhere |
| title_sort | living well with kidney disease by patient and care partner empowerment kidney health for everyone everywhere |
| url | http://www.sjkdt.org/article.asp?issn=1319-2442;year=2021;volume=32;issue=2;spage=289;epage=297;aulast=Kalantar-Zadeh |
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