Assessing the Content Quality of Online Parental Resources about Newborn Metabolic Disease Screening: A Content Analysis

Assessing the Content Quality of Online Parental Resources about Newborn Metabolic Disease Screening: A Content Analysis

Parents increasingly utilise the internet to obtain information on health practices, but the quality of online information about screening for inherited metabolic diseases (IMD) needs to be improved. A content analysis examined how IMD blood and urine tests were described online in local healthcare...

Full description

Bibliographic Details
Main Authors:	Olivia M. Y. Ngan, Wing Ki Wong, Janice Ching Tam, Chi Kong Li
Format:	Article
Language:	English
Published:	MDPI AG 2022-11-01
Series:	International Journal of Neonatal Screening
Subjects:	inherited metabolic diseases expanded newborn screening dried blood spot test urine test direct-to-consumer internet
Online Access:	https://www.mdpi.com/2409-515X/8/4/63

Similar Items

“Using dried blood spots beyond newborn screening – is Hong Kong ready?”: navigating the intersection of innovation readiness, privacy concerns, and Chinese parenting culture
by: Olivia Miu Yung Ngan, et al.
Published: (2024-10-01)

Public and Healthcare Provider Receptivity toward the Retention of Dried Blood Spot Cards and Their Usage for Extended Genetic Testing in Hong Kong
by: Kiran Moti Belaramani, et al.
Published: (2023-08-01)

Investigation of the preanalytical process practices in primary care in Istanbul regarding the newborn screening tests
by: Erdim Leyla, et al.
Published: (2023-01-01)

Harnessing Next-Generation Sequencing as a Timely and Accurate Second-Tier Screening Test for Newborn Screening of Inborn Errors of Metabolism
by: Toby Chun Hei Chan, et al.
Published: (2024-03-01)

Future of Dutch NGS-Based Newborn Screening: Exploring the Technical Possibilities and Assessment of a Variant Classification Strategy
by: Gea Kiewiet, et al.
Published: (2024-03-01)

Shadow of a Pandemic: Persistence of Prenatal SARS-CoV-2 Antibodies in Newborn Blood Spots
by: Stanley Sciortino, et al.
Published: (2023-08-01)

Expanded Newborn Screening for Inborn Errors of Metabolism in Hong Kong: Results and Outcome of a 7 Year Journey
by: Kiran Moti Belaramani, et al.
Published: (2024-03-01)

At-Risk Testing for Pompe Disease Using Dried Blood Spots: Lessons Learned for Newborn Screening
by: Zoltan Lukacs, et al.
Published: (2020-12-01)

Healthcare professionals’ and parents’ experiences of the confirmatory testing period: a qualitative study of the UK expanded newborn screening pilot
by: Louise Moody, et al.
Published: (2017-05-01)

Eliciting parental support for the use of newborn blood spots for pediatric research
by: Edwina H. Yeung, et al.
Published: (2016-02-01)

Serological survey for IgG antibodies against SARS-CoV-2 from newborns and their mothers
by: Gabriela Soutto Mayor Assumpção Pinheiro, et al.
Published: (2022-09-01)

Suitable Specimen Types for Newborn Biochemical Screening-A Summary
by: Kate Hall
Published: (2017-07-01)

Extended and Fully Automated Newborn Screening Method for Mass Spectrometry Detection
by: Stefan Gaugler, et al.
Published: (2017-12-01)

Validation of amplicon-based next generation sequencing panel for second-tier test in newborn screening for inborn errors of metabolism
by: Tsang Kwok Yeung, et al.
Published: (2021-12-01)

Is Our Newborn Screening Working Well? A Literature Review of Quality Requirements for Newborn Blood Spot Screening (NBS) Infrastructure and Procedures
by: Birgit Odenwald, et al.
Published: (2023-06-01)

Evaluation of 11 years of newborn screening for maple syrup urine disease in the Netherlands and a systematic review of the literature: Strategies for optimization
by: Kevin Stroek, et al.
Published: (2020-07-01)

Current Status and Prospects of Screening for Newborn Hereditary Metaboolic Disease
by: GU Xuefan, et al.
Published: (2022-01-01)

Technical Study of Automated High-Throughput High-Sensitive Ceruloplasmin Assay on Dried Blood Spots—Reinstate the Potential Use for Newborn Screening of Wilson Disease
by: Chloe Miu Mak, et al.
Published: (2022-12-01)

Liquid Chromatography–Tandem Mass Spectrometry in Newborn Screening Laboratories
by: Michael H. Gelb, et al.
Published: (2022-11-01)

Performance of Expanded Newborn Screening in Norway Supported by Post-Analytical Bioinformatics Tools and Rapid Second-Tier DNA Analyses
by: Trine Tangeraas, et al.
Published: (2020-06-01)

Neonatal Urine Screening Program in the Province of Quebec: Technological Upgrade from Thin Layer Chromatography to Tandem Mass Spectrometry
by: Christiane Auray-Blais, et al.
Published: (2021-03-01)

History of Newborn Screening for Cystic Fibrosis—The Early Years
by: Georges Travert, et al.
Published: (2020-01-01)

Newborn Screening for X-Linked Adrenoleukodystrophy: Past, Present, and Future
by: Ann B. Moser, et al.
Published: (2022-02-01)

The view of Hong Kong parents on secondary use of dried blood spots in newborn screening program
by: L. L. Hui, et al.
Published: (2022-11-01)

Newborn screening for dihydrolipoamide dehydrogenase deficiency: Citrulline as a useful analyte
by: Shane C. Quinonez, et al.
Published: (2014-01-01)

Expanded Newborn Screening Using Tandem Mass Spectrometry: Seven Years of Experience in Eastern Sicily
by: MariaAnna Messina, et al.
Published: (2018-04-01)

Elevated Homocysteine after Elevated Propionylcarnitine or Low Methionine in Newborn Screening Is Highly Predictive for Low Vitamin B12 and Holo-Transcobalamin Levels in Newborns
by: Tomaž Rozmarič, et al.
Published: (2020-08-01)

Analysis of a pitfall in congenital adrenal hyperplasia newborn screening: evidence of maternal use of corticoids detected on dried blood spot
by: Muriel Houang, et al.
Published: (2022-06-01)

Successful Implementation of Expanded Newborn Screening in the Philippines Using Tandem Mass Spectrometry
by: Carmencita D. Padilla, et al.
Published: (2022-01-01)

Newborn Screening for Krabbe Disease—Illinois Experience: Role of Psychosine in Diagnosis of the Disease
by: Khaja Basheeruddin, et al.
Published: (2021-05-01)

Enhancing newborn screening sensitivity and specificity for missed NICCD using selected amino acids and acylcarnitines
by: Peiyao Wang, et al.
Published: (2025-01-01)

Current attitudes and preconceptions on newborn genetic screening in the Chinese reproductive-aged population
by: Xin Wang, et al.
Published: (2022-08-01)

Challenges identified in the management of patients with inherited metabolic disorders – A five year experience from Pakistan
by: Bushra Afroze, et al.
Published: (2016-07-01)

Using dried blood spot on HemoTypeSC™, a new frontier for newborn screening for sickle cell disease in Nigeria
by: Chinwe O. Okeke, et al.
Published: (2022-10-01)

How Long are Residual Newborn Screening Specimens Useful for Retesting when Stored in Suboptimal and Uncontrolled Conditions of Temperature and Humidity?
by: Gustavo J.C. Borrajo, et al.
Published: (2021-07-01)

Development of an enzyme-linked immunosorbent assay for newborns dried blood spot thyroglobulin
by: Camilo Fuentes Peña, et al.
Published: (2024-11-01)

Multi-Laboratory Evaluation of Prototype Dried Blood Spot Quality Control Materials for Creatine Kinase-MM Newborn Screening Assays
by: Paul Dantonio, et al.
Published: (2023-02-01)

Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice
by: J Kai, et al.
Published: (2009-11-01)

Current Status of Newborn Screening in Southeastern Europe
by: Vanesa Koracin, et al.
Published: (2021-05-01)

Vitamin B12 Deficiency (Un-)Detected Using Newborn Screening in Norway
by: Trine Tangeraas, et al.
Published: (2023-01-01)