Prioritizing Patient Reported Outcome Measures (PROMs) to use in the clinical care of youth living with mental health concerns: a nominal group technique study
Abstract Background In the past few decades, particularly in the mental health setting, there has been growing interest in using Patient Reported Outcome Measures (PROMs) to assess the efficacy of the treatments in healthcare systems. Despite recent initiatives for global harmonization, there remain...
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| Format: | Article |
| Language: | English |
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SpringerOpen
2024-02-01
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| Series: | Journal of Patient-Reported Outcomes |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s41687-024-00694-z |
| _version_ | 1797274439702806528 |
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| author | Kalpana Thapa Bajgain Justino Mendoza Farwa Naqvi Fariba Aghajafari Karen Tang Jennifer Zwicker Maria-Jose Santana |
| author_facet | Kalpana Thapa Bajgain Justino Mendoza Farwa Naqvi Fariba Aghajafari Karen Tang Jennifer Zwicker Maria-Jose Santana |
| author_sort | Kalpana Thapa Bajgain |
| collection | DOAJ |
| description | Abstract Background In the past few decades, particularly in the mental health setting, there has been growing interest in using Patient Reported Outcome Measures (PROMs) to assess the efficacy of the treatments in healthcare systems. Despite recent initiatives for global harmonization, there remains a lack of consensus on which PROMs are best practice and appropriate. Engagement of the service users, such as patients and family members/caregivers, is vital at this stage to ensure the selected PROMs are feasible, relevant, and acceptable to them. This study aimed to prioritize PROMs by youth and family/caregiver based on feasibility, relevance, and overall importance to be used in the clinical care of youth living with anxiety and/or depression. Methods Ten validated and widely used PROMs were presented to the patients and family/caregivers. Nominal group techniques were employed to prioritize the PROMs based on feasibility, relevance, and overall importance. Results For patients and families/caregivers, the PROMs, Revised Child Anxiety and Depression Scale (RCAD 25), and The Young Person’s Core (YP-CORE) were the highest priorities. Both felt that RCAD 25 was comprehensive, short, easy, and quick to complete, whereas regarding YP-CORE, patients and family/caregivers thought it was also short and relevant. Due to some specific concerns, the Strength and Difficulties Questionnaire and Child Health Questionnaire were the lowest prioritized by patients and family/caregivers. Conclusion It is of utmost importance that patient’s and family/caregivers’ voices or opinions are considered while selecting and implementing PROMs in mental health settings. Our study provides practical recommendations around measures best suited to achieve this. |
| first_indexed | 2024-03-07T14:58:24Z |
| format | Article |
| id | doaj.art-554685bbe2204119a9039e3368e43ea6 |
| institution | Directory Open Access Journal |
| issn | 2509-8020 |
| language | English |
| last_indexed | 2024-03-07T14:58:24Z |
| publishDate | 2024-02-01 |
| publisher | SpringerOpen |
| record_format | Article |
| series | Journal of Patient-Reported Outcomes |
| spelling | doaj.art-554685bbe2204119a9039e3368e43ea62024-03-05T19:17:28ZengSpringerOpenJournal of Patient-Reported Outcomes2509-80202024-02-018111110.1186/s41687-024-00694-zPrioritizing Patient Reported Outcome Measures (PROMs) to use in the clinical care of youth living with mental health concerns: a nominal group technique studyKalpana Thapa Bajgain0Justino Mendoza1Farwa Naqvi2Fariba Aghajafari3Karen Tang4Jennifer Zwicker5Maria-Jose Santana6Department of Community Health Sciences, University of CalgaryGeneral Psychology, Capella UniversityDepartment of Community Health Sciences, University of CalgaryDepartment of Medicine and Community Health Science, University of CalgaryDepartment of Medicine and Community Health Science, University of CalgarySchool of Public Policy, University of CalgaryDepartment of Community Health Sciences, University of CalgaryAbstract Background In the past few decades, particularly in the mental health setting, there has been growing interest in using Patient Reported Outcome Measures (PROMs) to assess the efficacy of the treatments in healthcare systems. Despite recent initiatives for global harmonization, there remains a lack of consensus on which PROMs are best practice and appropriate. Engagement of the service users, such as patients and family members/caregivers, is vital at this stage to ensure the selected PROMs are feasible, relevant, and acceptable to them. This study aimed to prioritize PROMs by youth and family/caregiver based on feasibility, relevance, and overall importance to be used in the clinical care of youth living with anxiety and/or depression. Methods Ten validated and widely used PROMs were presented to the patients and family/caregivers. Nominal group techniques were employed to prioritize the PROMs based on feasibility, relevance, and overall importance. Results For patients and families/caregivers, the PROMs, Revised Child Anxiety and Depression Scale (RCAD 25), and The Young Person’s Core (YP-CORE) were the highest priorities. Both felt that RCAD 25 was comprehensive, short, easy, and quick to complete, whereas regarding YP-CORE, patients and family/caregivers thought it was also short and relevant. Due to some specific concerns, the Strength and Difficulties Questionnaire and Child Health Questionnaire were the lowest prioritized by patients and family/caregivers. Conclusion It is of utmost importance that patient’s and family/caregivers’ voices or opinions are considered while selecting and implementing PROMs in mental health settings. Our study provides practical recommendations around measures best suited to achieve this.https://doi.org/10.1186/s41687-024-00694-zPatient-reported outcome measuresFeasibilityRelevance prioritizingNominal group techniqueYouthsPatients/caregivers |
| spellingShingle | Kalpana Thapa Bajgain Justino Mendoza Farwa Naqvi Fariba Aghajafari Karen Tang Jennifer Zwicker Maria-Jose Santana Prioritizing Patient Reported Outcome Measures (PROMs) to use in the clinical care of youth living with mental health concerns: a nominal group technique study Journal of Patient-Reported Outcomes Patient-reported outcome measures Feasibility Relevance prioritizing Nominal group technique Youths Patients/caregivers |
| title | Prioritizing Patient Reported Outcome Measures (PROMs) to use in the clinical care of youth living with mental health concerns: a nominal group technique study |
| title_full | Prioritizing Patient Reported Outcome Measures (PROMs) to use in the clinical care of youth living with mental health concerns: a nominal group technique study |
| title_fullStr | Prioritizing Patient Reported Outcome Measures (PROMs) to use in the clinical care of youth living with mental health concerns: a nominal group technique study |
| title_full_unstemmed | Prioritizing Patient Reported Outcome Measures (PROMs) to use in the clinical care of youth living with mental health concerns: a nominal group technique study |
| title_short | Prioritizing Patient Reported Outcome Measures (PROMs) to use in the clinical care of youth living with mental health concerns: a nominal group technique study |
| title_sort | prioritizing patient reported outcome measures proms to use in the clinical care of youth living with mental health concerns a nominal group technique study |
| topic | Patient-reported outcome measures Feasibility Relevance prioritizing Nominal group technique Youths Patients/caregivers |
| url | https://doi.org/10.1186/s41687-024-00694-z |
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