Neonatal end-of-life decisions and ethical perspectives

End-of-life decisions are usually required when a neonate is at high risk of disability or death, and such decisions involve many legal and ethical challenges. This article reviewed the processes of ethical decision-making for severely ill or terminal neonates, considering controversial issues inclu...

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Main Authors: Madjid Soltani Gerdfaramarzi, Shabnam Bazmi
Format: Article
Language:English
Published: Tehran University of Medical Sciences 2020-12-01
Series:Journal of Medical Ethics and History of Medicine
Subjects:
Online Access:https://jmehm.tums.ac.ir/index.php/jmehm/article/view/683
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author Madjid Soltani Gerdfaramarzi
Shabnam Bazmi
author_facet Madjid Soltani Gerdfaramarzi
Shabnam Bazmi
author_sort Madjid Soltani Gerdfaramarzi
collection DOAJ
description End-of-life decisions are usually required when a neonate is at high risk of disability or death, and such decisions involve many legal and ethical challenges. This article reviewed the processes of ethical decision-making for severely ill or terminal neonates, considering controversial issues including the followings: (i) identifying primary decision makers, (ii) the role of law and guidelines, and (iii) changes in treatment controversy, law and regulations over twenty years in several European countries such as Switzerland, Germany, Italy, United Kingdom, France, the Netherlands, Sweden, and Spain. This review study conducted on accessible articles from PubMed, Google Scholar, Web of Science and Scopus databases. Based on two studies in 2016 and 1996, neonatologists reported that withholding intensive care, withdrawing mechanical ventilation or life-saving drugs, and involvement of parents in decision-makings have become more acceptable as time passes, indicative of trend change. Trend of physicians on how end the life of neonates, at risk of death, varies in different countries, and cultural factors, parents’ involvement in decisions and gestational age are factors considered in end-of-life decision-making. Future investigations continuously need to identify upcoming ethical aspects of proper decision-making.
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spelling doaj.art-5548fec8e32f428ea2435381eb189ba12022-12-21T17:16:12ZengTehran University of Medical SciencesJournal of Medical Ethics and History of Medicine2008-03872020-12-011310.18502/jmehm.v13i19.4827Neonatal end-of-life decisions and ethical perspectivesMadjid Soltani Gerdfaramarzi0Shabnam Bazmi1PhD Candidate of Medical Ethics, Medical Ethics Department, School of Traditional Medicine, Shahid Beheshti University of Medical Sciences, Tehran, Iran.Associate professor, Medical Ethics Department, School of Traditional Medicine, Shahid Beheshti University of Medical Sciences, Tehran, Iran.End-of-life decisions are usually required when a neonate is at high risk of disability or death, and such decisions involve many legal and ethical challenges. This article reviewed the processes of ethical decision-making for severely ill or terminal neonates, considering controversial issues including the followings: (i) identifying primary decision makers, (ii) the role of law and guidelines, and (iii) changes in treatment controversy, law and regulations over twenty years in several European countries such as Switzerland, Germany, Italy, United Kingdom, France, the Netherlands, Sweden, and Spain. This review study conducted on accessible articles from PubMed, Google Scholar, Web of Science and Scopus databases. Based on two studies in 2016 and 1996, neonatologists reported that withholding intensive care, withdrawing mechanical ventilation or life-saving drugs, and involvement of parents in decision-makings have become more acceptable as time passes, indicative of trend change. Trend of physicians on how end the life of neonates, at risk of death, varies in different countries, and cultural factors, parents’ involvement in decisions and gestational age are factors considered in end-of-life decision-making. Future investigations continuously need to identify upcoming ethical aspects of proper decision-making.https://jmehm.tums.ac.ir/index.php/jmehm/article/view/683Ethics; Neonatal intensive care; End-of-life; Decision-making; Law.
spellingShingle Madjid Soltani Gerdfaramarzi
Shabnam Bazmi
Neonatal end-of-life decisions and ethical perspectives
Journal of Medical Ethics and History of Medicine
Ethics; Neonatal intensive care; End-of-life; Decision-making; Law.
title Neonatal end-of-life decisions and ethical perspectives
title_full Neonatal end-of-life decisions and ethical perspectives
title_fullStr Neonatal end-of-life decisions and ethical perspectives
title_full_unstemmed Neonatal end-of-life decisions and ethical perspectives
title_short Neonatal end-of-life decisions and ethical perspectives
title_sort neonatal end of life decisions and ethical perspectives
topic Ethics; Neonatal intensive care; End-of-life; Decision-making; Law.
url https://jmehm.tums.ac.ir/index.php/jmehm/article/view/683
work_keys_str_mv AT madjidsoltanigerdfaramarzi neonatalendoflifedecisionsandethicalperspectives
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