YouTube as a source of patient education in idiopathic pulmonary fibrosis: a media content analysis

Purpose: Idiopathic pulmonary fibrosis (IPF) is a common cause of pulmonary fibrosis, with millions of individuals affected in the world. Patients may use multiple resources to educate themselves regarding their illness, including popular social media video hosting site YouTube. We set out to determ...

Full description

Bibliographic Details
Main Authors: Bilal Haider Lashari, Vincent Chan, Umer Shoukat, Ahmad Arslan, Hadiatou Barry, Ahmad Raza, Rajeshkumar Patel
Format: Article
Language:English
Published: Greater Baltimore Medical Center 2019-03-01
Series:Journal of Community Hospital Internal Medicine Perspectives
Subjects:
Online Access:http://dx.doi.org/10.1080/20009666.2019.1593779
_version_ 1797970173256269824
author Bilal Haider Lashari
Vincent Chan
Umer Shoukat
Ahmad Arslan
Hadiatou Barry
Ahmad Raza
Rajeshkumar Patel
author_facet Bilal Haider Lashari
Vincent Chan
Umer Shoukat
Ahmad Arslan
Hadiatou Barry
Ahmad Raza
Rajeshkumar Patel
author_sort Bilal Haider Lashari
collection DOAJ
description Purpose: Idiopathic pulmonary fibrosis (IPF) is a common cause of pulmonary fibrosis, with millions of individuals affected in the world. Patients may use multiple resources to educate themselves regarding their illness, including popular social media video hosting site YouTube. We set out to determine the quality of patient education material discussing IPF available on YouTube. Methods: 100 consecutive videos were surveyed for review, of which 59 were included in the final analysis. Three independent blinded reviewers were assigned to score each video on a scoring system designed along patient education material available publicly at the American Thoracic Society and the American College of Chest Physicians. Scores by each reviewer were compared to others using means, standard deviation, Cohen’s Kappa, and intra-class reliability. Results: Video content had a mean score of 5.9, SD 3.96 out of a maximum of 20 points. Cohen’s Kappa between the three raters was calculated to a value of 0.92 and Interclass reliability was 0.79 (0.70–0.86, 95% CI) indicating appropriateness of comparison between the three raters. Conclusion: Patient education material regarding IPF on YouTube was found deficient in quantity and quality. Providers should be aware of the best information resources available and utilize these to educate their patients.
first_indexed 2024-04-11T03:12:38Z
format Article
id doaj.art-5562a870c98d4da8b442f59092c0d8a6
institution Directory Open Access Journal
issn 2000-9666
language English
last_indexed 2024-04-11T03:12:38Z
publishDate 2019-03-01
publisher Greater Baltimore Medical Center
record_format Article
series Journal of Community Hospital Internal Medicine Perspectives
spelling doaj.art-5562a870c98d4da8b442f59092c0d8a62023-01-02T11:07:28ZengGreater Baltimore Medical CenterJournal of Community Hospital Internal Medicine Perspectives2000-96662019-03-01929810210.1080/20009666.2019.15937791593779YouTube as a source of patient education in idiopathic pulmonary fibrosis: a media content analysisBilal Haider Lashari0Vincent Chan1Umer Shoukat2Ahmad Arslan3Hadiatou Barry4Ahmad Raza5Rajeshkumar Patel6Abington-Jefferson HealthAbington-Jefferson HealthAbington-Jefferson HealthAbington-Jefferson HealthAbington-Jefferson HealthAbington-Jefferson HealthAbington-Jefferson HealthPurpose: Idiopathic pulmonary fibrosis (IPF) is a common cause of pulmonary fibrosis, with millions of individuals affected in the world. Patients may use multiple resources to educate themselves regarding their illness, including popular social media video hosting site YouTube. We set out to determine the quality of patient education material discussing IPF available on YouTube. Methods: 100 consecutive videos were surveyed for review, of which 59 were included in the final analysis. Three independent blinded reviewers were assigned to score each video on a scoring system designed along patient education material available publicly at the American Thoracic Society and the American College of Chest Physicians. Scores by each reviewer were compared to others using means, standard deviation, Cohen’s Kappa, and intra-class reliability. Results: Video content had a mean score of 5.9, SD 3.96 out of a maximum of 20 points. Cohen’s Kappa between the three raters was calculated to a value of 0.92 and Interclass reliability was 0.79 (0.70–0.86, 95% CI) indicating appropriateness of comparison between the three raters. Conclusion: Patient education material regarding IPF on YouTube was found deficient in quantity and quality. Providers should be aware of the best information resources available and utilize these to educate their patients.http://dx.doi.org/10.1080/20009666.2019.1593779Idiopathic pulmonary fibrosispatient educationYouTube
spellingShingle Bilal Haider Lashari
Vincent Chan
Umer Shoukat
Ahmad Arslan
Hadiatou Barry
Ahmad Raza
Rajeshkumar Patel
YouTube as a source of patient education in idiopathic pulmonary fibrosis: a media content analysis
Journal of Community Hospital Internal Medicine Perspectives
Idiopathic pulmonary fibrosis
patient education
YouTube
title YouTube as a source of patient education in idiopathic pulmonary fibrosis: a media content analysis
title_full YouTube as a source of patient education in idiopathic pulmonary fibrosis: a media content analysis
title_fullStr YouTube as a source of patient education in idiopathic pulmonary fibrosis: a media content analysis
title_full_unstemmed YouTube as a source of patient education in idiopathic pulmonary fibrosis: a media content analysis
title_short YouTube as a source of patient education in idiopathic pulmonary fibrosis: a media content analysis
title_sort youtube as a source of patient education in idiopathic pulmonary fibrosis a media content analysis
topic Idiopathic pulmonary fibrosis
patient education
YouTube
url http://dx.doi.org/10.1080/20009666.2019.1593779
work_keys_str_mv AT bilalhaiderlashari youtubeasasourceofpatienteducationinidiopathicpulmonaryfibrosisamediacontentanalysis
AT vincentchan youtubeasasourceofpatienteducationinidiopathicpulmonaryfibrosisamediacontentanalysis
AT umershoukat youtubeasasourceofpatienteducationinidiopathicpulmonaryfibrosisamediacontentanalysis
AT ahmadarslan youtubeasasourceofpatienteducationinidiopathicpulmonaryfibrosisamediacontentanalysis
AT hadiatoubarry youtubeasasourceofpatienteducationinidiopathicpulmonaryfibrosisamediacontentanalysis
AT ahmadraza youtubeasasourceofpatienteducationinidiopathicpulmonaryfibrosisamediacontentanalysis
AT rajeshkumarpatel youtubeasasourceofpatienteducationinidiopathicpulmonaryfibrosisamediacontentanalysis