First stage psychometric testing of a new instrument for adolescents with visual impairment: the Participation and Activity Inventory for Children and Youth (PAI-CY) 13–17 years
Abstract Background To assess participation of children with visual impairment, the Participation and Activity Inventory for Children and Youth (PAI-CY) was recently developed. This study assessed some initial psychometric properties of the PAI-CY 13–17 years version, and investigated its feasibilit...
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| Format: | Article |
| Language: | English |
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SpringerOpen
2020-07-01
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| Series: | Journal of Patient-Reported Outcomes |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s41687-020-00228-3 |
| _version_ | 1818976787954139136 |
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| author | Ellen B. M. Elsman Ruth M. A. van Nispen Gerardus H. M. B. van Rens |
| author_facet | Ellen B. M. Elsman Ruth M. A. van Nispen Gerardus H. M. B. van Rens |
| author_sort | Ellen B. M. Elsman |
| collection | DOAJ |
| description | Abstract Background To assess participation of children with visual impairment, the Participation and Activity Inventory for Children and Youth (PAI-CY) was recently developed. This study assessed some initial psychometric properties of the PAI-CY 13–17 years version, and investigated its feasibility. Methods Adolescents with visual impairment and their parents (n = 72 dyads) completed the self-report and proxy-report version of the 58-item PAI-CY, an evaluation form and several questionnaires measuring related constructs. Item deletion was informed by item responses, inter-item correlations, test-retest reliability, adolescent-parent agreement and participants’ feedback. Known-group validity and concurrent validity with related questionnaires were investigated for the final item-set. Results Twelve items had > 20% missing values, whereas 39 items showed floor effects. Eight item pairs showed high inter-item correlations. Test-retest reliability was acceptable for most items (kappa ≥0.4). Evaluation forms showed that over 90% of respondents was neutral to very positive regarding several feasibility aspects such as administration time and comprehensiveness. Adolescent-parent agreement was mostly low. These results informed the deletion of three items. Known-group validity seemed adequate since PAI-CY scores were significantly worse for participants with comorbidity compared to those without. A trend towards worse scores for participants with more severe visual impairment was also observed. Correlations between the PAI-CY and related questionnaires confirmed concurrent validity. Conclusions Initial psychometric properties of the PAI-CY 13–17 were acceptable, although more work is needed to assess other psychometric properties, such as the underlying construct. Following implementation in low vision care to assess participation needs, enabling larger samples, acceptability of the PAI-CY 13–17 to end-users should be carefully monitored, especially if alterations are made based on the current study. |
| first_indexed | 2024-12-20T16:17:24Z |
| format | Article |
| id | doaj.art-564437297ffe416b8e5970516f196a6f |
| institution | Directory Open Access Journal |
| issn | 2509-8020 |
| language | English |
| last_indexed | 2024-12-20T16:17:24Z |
| publishDate | 2020-07-01 |
| publisher | SpringerOpen |
| record_format | Article |
| series | Journal of Patient-Reported Outcomes |
| spelling | doaj.art-564437297ffe416b8e5970516f196a6f2022-12-21T19:33:44ZengSpringerOpenJournal of Patient-Reported Outcomes2509-80202020-07-014111010.1186/s41687-020-00228-3First stage psychometric testing of a new instrument for adolescents with visual impairment: the Participation and Activity Inventory for Children and Youth (PAI-CY) 13–17 yearsEllen B. M. Elsman0Ruth M. A. van Nispen1Gerardus H. M. B. van Rens2Amsterdam UMC, Vrije Universiteit Amsterdam, Ophthalmology, Amsterdam Public Health Research InstituteAmsterdam UMC, Vrije Universiteit Amsterdam, Ophthalmology, Amsterdam Public Health Research InstituteAmsterdam UMC, Vrije Universiteit Amsterdam, Ophthalmology, Amsterdam Public Health Research InstituteAbstract Background To assess participation of children with visual impairment, the Participation and Activity Inventory for Children and Youth (PAI-CY) was recently developed. This study assessed some initial psychometric properties of the PAI-CY 13–17 years version, and investigated its feasibility. Methods Adolescents with visual impairment and their parents (n = 72 dyads) completed the self-report and proxy-report version of the 58-item PAI-CY, an evaluation form and several questionnaires measuring related constructs. Item deletion was informed by item responses, inter-item correlations, test-retest reliability, adolescent-parent agreement and participants’ feedback. Known-group validity and concurrent validity with related questionnaires were investigated for the final item-set. Results Twelve items had > 20% missing values, whereas 39 items showed floor effects. Eight item pairs showed high inter-item correlations. Test-retest reliability was acceptable for most items (kappa ≥0.4). Evaluation forms showed that over 90% of respondents was neutral to very positive regarding several feasibility aspects such as administration time and comprehensiveness. Adolescent-parent agreement was mostly low. These results informed the deletion of three items. Known-group validity seemed adequate since PAI-CY scores were significantly worse for participants with comorbidity compared to those without. A trend towards worse scores for participants with more severe visual impairment was also observed. Correlations between the PAI-CY and related questionnaires confirmed concurrent validity. Conclusions Initial psychometric properties of the PAI-CY 13–17 were acceptable, although more work is needed to assess other psychometric properties, such as the underlying construct. Following implementation in low vision care to assess participation needs, enabling larger samples, acceptability of the PAI-CY 13–17 to end-users should be carefully monitored, especially if alterations are made based on the current study.http://link.springer.com/article/10.1186/s41687-020-00228-3Visual impairmentQuestionnaireParticipationPsychometric propertiesAdolescents |
| spellingShingle | Ellen B. M. Elsman Ruth M. A. van Nispen Gerardus H. M. B. van Rens First stage psychometric testing of a new instrument for adolescents with visual impairment: the Participation and Activity Inventory for Children and Youth (PAI-CY) 13–17 years Journal of Patient-Reported Outcomes Visual impairment Questionnaire Participation Psychometric properties Adolescents |
| title | First stage psychometric testing of a new instrument for adolescents with visual impairment: the Participation and Activity Inventory for Children and Youth (PAI-CY) 13–17 years |
| title_full | First stage psychometric testing of a new instrument for adolescents with visual impairment: the Participation and Activity Inventory for Children and Youth (PAI-CY) 13–17 years |
| title_fullStr | First stage psychometric testing of a new instrument for adolescents with visual impairment: the Participation and Activity Inventory for Children and Youth (PAI-CY) 13–17 years |
| title_full_unstemmed | First stage psychometric testing of a new instrument for adolescents with visual impairment: the Participation and Activity Inventory for Children and Youth (PAI-CY) 13–17 years |
| title_short | First stage psychometric testing of a new instrument for adolescents with visual impairment: the Participation and Activity Inventory for Children and Youth (PAI-CY) 13–17 years |
| title_sort | first stage psychometric testing of a new instrument for adolescents with visual impairment the participation and activity inventory for children and youth pai cy 13 17 years |
| topic | Visual impairment Questionnaire Participation Psychometric properties Adolescents |
| url | http://link.springer.com/article/10.1186/s41687-020-00228-3 |
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