‘it was that … specialist … that finally listened to us … that's probably a weird answer to what you were expecting’: Clinician and carer perspectives on brilliant feeding care
Abstract Introduction To extend research on positive aspects of health care, this article focusses on health care for children who tube‐feed—this is because knowledge about tube‐feeding for children is limited and fragmented. This is achieved by consulting with clinicians and carers who supported ch...
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Wiley
2023-02-01
|
| Series: | Health Expectations |
| Subjects: | |
| Online Access: | https://doi.org/10.1111/hex.13683 |
| _version_ | 1828057526605709312 |
|---|---|
| author | Ann Dadich Simone Kaplun Cathy Kaplun Nick Hopwood Christopher Elliot |
| author_facet | Ann Dadich Simone Kaplun Cathy Kaplun Nick Hopwood Christopher Elliot |
| author_sort | Ann Dadich |
| collection | DOAJ |
| description | Abstract Introduction To extend research on positive aspects of health care, this article focusses on health care for children who tube‐feed—this is because knowledge about tube‐feeding for children is limited and fragmented. This is achieved by consulting with clinicians and carers who supported children who tube‐feed to clarify their understandings of and experiences with brilliant feeding care. Methods Nine clinicians and nine carers who supported children who tube‐fed were interviewed. The interview transcripts were analysed thematically. Results Findings highlighted several features of brilliant feeding care—namely: practices that go above and beyond; attentiveness; empowerment; being ‘on the same page’; hopefulness and normalcy. Conclusions These findings show that seemingly trivial or small acts of care can make a significant meaningful difference to carers of children who tube‐feed. Such accounts elucidate brilliant care as grounded in feasible, everyday actions, within clinicians' reach. The implications associated with these findings are threefold. First, the findings highlight the need for clinicians to listen, be attuned and committed to the well‐being of children who tube‐feed and their carers, share decision‐making, source resources, and instil hope. Second, the findings suggest that carers should seek out and acknowledge clinicians who listen, involve them in decision‐making processes, and continue to source the resources required to optimize child and carer well‐being. Third, the findings point to the need for research to clarify the models of care that foster brilliant feeding care, and the conditions required to introduce and sustain these models. Patient or Public Contribution All of the carers and clinicians who contributed to this study were invited to participate in a workshop to discuss, critique, and sense‐check the findings. Three carers and one clinician accepted this invitation. Collectively, they indicated that the findings resonated with them, and they agreed with the themes, which they indicated were well‐substantiated by the data. |
| first_indexed | 2024-04-10T21:14:05Z |
| format | Article |
| id | doaj.art-570334f7f7fe4eab896660e1a39c1398 |
| institution | Directory Open Access Journal |
| issn | 1369-6513 1369-7625 |
| language | English |
| last_indexed | 2024-04-10T21:14:05Z |
| publishDate | 2023-02-01 |
| publisher | Wiley |
| record_format | Article |
| series | Health Expectations |
| spelling | doaj.art-570334f7f7fe4eab896660e1a39c13982023-01-20T13:33:07ZengWileyHealth Expectations1369-65131369-76252023-02-0126148849710.1111/hex.13683‘it was that … specialist … that finally listened to us … that's probably a weird answer to what you were expecting’: Clinician and carer perspectives on brilliant feeding careAnn Dadich0Simone Kaplun1Cathy Kaplun2Nick Hopwood3Christopher Elliot4School of Business Western Sydney University Parramatta NSW AustraliaSchool of Business Western Sydney University Parramatta NSW AustraliaTransforming early Education and Child Health (TeEACH) Strategic Research Initiative Western Sydney University Westmead New South Wales AustraliaFaculty of Arts and Social Science University of Technology Sydney Broadway New South Wales AustraliaDepartment of Paediatrics St George Hospital Kogarah New South Wales AustraliaAbstract Introduction To extend research on positive aspects of health care, this article focusses on health care for children who tube‐feed—this is because knowledge about tube‐feeding for children is limited and fragmented. This is achieved by consulting with clinicians and carers who supported children who tube‐feed to clarify their understandings of and experiences with brilliant feeding care. Methods Nine clinicians and nine carers who supported children who tube‐fed were interviewed. The interview transcripts were analysed thematically. Results Findings highlighted several features of brilliant feeding care—namely: practices that go above and beyond; attentiveness; empowerment; being ‘on the same page’; hopefulness and normalcy. Conclusions These findings show that seemingly trivial or small acts of care can make a significant meaningful difference to carers of children who tube‐feed. Such accounts elucidate brilliant care as grounded in feasible, everyday actions, within clinicians' reach. The implications associated with these findings are threefold. First, the findings highlight the need for clinicians to listen, be attuned and committed to the well‐being of children who tube‐feed and their carers, share decision‐making, source resources, and instil hope. Second, the findings suggest that carers should seek out and acknowledge clinicians who listen, involve them in decision‐making processes, and continue to source the resources required to optimize child and carer well‐being. Third, the findings point to the need for research to clarify the models of care that foster brilliant feeding care, and the conditions required to introduce and sustain these models. Patient or Public Contribution All of the carers and clinicians who contributed to this study were invited to participate in a workshop to discuss, critique, and sense‐check the findings. Three carers and one clinician accepted this invitation. Collectively, they indicated that the findings resonated with them, and they agreed with the themes, which they indicated were well‐substantiated by the data.https://doi.org/10.1111/hex.13683brilliant carechild healthfeeding difficultiestube‐feeding |
| spellingShingle | Ann Dadich Simone Kaplun Cathy Kaplun Nick Hopwood Christopher Elliot ‘it was that … specialist … that finally listened to us … that's probably a weird answer to what you were expecting’: Clinician and carer perspectives on brilliant feeding care Health Expectations brilliant care child health feeding difficulties tube‐feeding |
| title | ‘it was that … specialist … that finally listened to us … that's probably a weird answer to what you were expecting’: Clinician and carer perspectives on brilliant feeding care |
| title_full | ‘it was that … specialist … that finally listened to us … that's probably a weird answer to what you were expecting’: Clinician and carer perspectives on brilliant feeding care |
| title_fullStr | ‘it was that … specialist … that finally listened to us … that's probably a weird answer to what you were expecting’: Clinician and carer perspectives on brilliant feeding care |
| title_full_unstemmed | ‘it was that … specialist … that finally listened to us … that's probably a weird answer to what you were expecting’: Clinician and carer perspectives on brilliant feeding care |
| title_short | ‘it was that … specialist … that finally listened to us … that's probably a weird answer to what you were expecting’: Clinician and carer perspectives on brilliant feeding care |
| title_sort | it was that specialist that finally listened to us that s probably a weird answer to what you were expecting clinician and carer perspectives on brilliant feeding care |
| topic | brilliant care child health feeding difficulties tube‐feeding |
| url | https://doi.org/10.1111/hex.13683 |
| work_keys_str_mv | AT anndadich itwasthatspecialistthatfinallylistenedtousthatsprobablyaweirdanswertowhatyouwereexpectingclinicianandcarerperspectivesonbrilliantfeedingcare AT simonekaplun itwasthatspecialistthatfinallylistenedtousthatsprobablyaweirdanswertowhatyouwereexpectingclinicianandcarerperspectivesonbrilliantfeedingcare AT cathykaplun itwasthatspecialistthatfinallylistenedtousthatsprobablyaweirdanswertowhatyouwereexpectingclinicianandcarerperspectivesonbrilliantfeedingcare AT nickhopwood itwasthatspecialistthatfinallylistenedtousthatsprobablyaweirdanswertowhatyouwereexpectingclinicianandcarerperspectivesonbrilliantfeedingcare AT christopherelliot itwasthatspecialistthatfinallylistenedtousthatsprobablyaweirdanswertowhatyouwereexpectingclinicianandcarerperspectivesonbrilliantfeedingcare |