LitCog Caregiver Cohort: a prospective, observational cohort study investigating US caregivers’ health literacy, self-care skills and cognitive function
Introduction Many older adults receive assistance in managing chronic conditions. Yet complicating the utility of caregiver support is whether caregivers have sufficient skills to aid in a patient’s self-care. Health literacy and cognition are important determinants of older adults’ health outcomes,...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2023-10-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/13/10/e075921.full |
| _version_ | 1797640329920249856 |
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| author | Rachel O'Conor Michael Wolf Laura M Curtis Lauren Opsasnick Morgan Bonham Julia Yoshino Benavente Grace Magnuson Mary Morrissey Kwasny |
| author_facet | Rachel O'Conor Michael Wolf Laura M Curtis Lauren Opsasnick Morgan Bonham Julia Yoshino Benavente Grace Magnuson Mary Morrissey Kwasny |
| author_sort | Rachel O'Conor |
| collection | DOAJ |
| description | Introduction Many older adults receive assistance in managing chronic conditions. Yet complicating the utility of caregiver support is whether caregivers have sufficient skills to aid in a patient’s self-care. Health literacy and cognition are important determinants of older adults’ health outcomes, but few studies have examined caregiver health literacy, cognition and self-care skills and their relations to patient outcomes.Methods and analysis We will expand an ongoing cognitive ageing cohort study (LitCog) to enroll a parallel caregiver cohort. Caregivers are eligible if they are (1) ≥18 years of age, (2) provided care for ≥6 months and (3) assisted with at least one activity of daily living, instrumental activity of daily living or health management task. Caregivers will complete interviews at time points corresponding with the LitCog participant interviews. Caregivers will complete assessments of health literacy, self-care skills, cognitive function, caregiver healthcare task difficulty, caregiver burden, caregiver self-efficacy, activation, technology use, busyness and routine and relationship quality. Caregivers will self-report the nature and intensity of care provided, and their own health status. Associations between caregiver presence and caregiver capacity with patient outcomes will be examined in a series of regression models, and mediating and moderating factors will be tested.Ethics and dissemination The Institutional Review Board at Northwestern University has approved the study protocol (STU00026255). Results will be published in peer-reviewed journals and summaries will be provided to the funders of the study as well as patients and caregivers. |
| first_indexed | 2024-03-11T13:30:23Z |
| format | Article |
| id | doaj.art-5859918c9f494ea78fb885520993cc93 |
| institution | Directory Open Access Journal |
| issn | 2044-6055 |
| language | English |
| last_indexed | 2024-03-11T13:30:23Z |
| publishDate | 2023-10-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj.art-5859918c9f494ea78fb885520993cc932023-11-02T21:05:08ZengBMJ Publishing GroupBMJ Open2044-60552023-10-01131010.1136/bmjopen-2023-075921LitCog Caregiver Cohort: a prospective, observational cohort study investigating US caregivers’ health literacy, self-care skills and cognitive functionRachel O'Conor0Michael Wolf1Laura M Curtis2Lauren Opsasnick3Morgan Bonham4Julia Yoshino Benavente5Grace Magnuson6Mary Morrissey Kwasny7Division of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USADivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USADivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USADivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USADivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USADivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USADivision of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USAPreventive Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USAIntroduction Many older adults receive assistance in managing chronic conditions. Yet complicating the utility of caregiver support is whether caregivers have sufficient skills to aid in a patient’s self-care. Health literacy and cognition are important determinants of older adults’ health outcomes, but few studies have examined caregiver health literacy, cognition and self-care skills and their relations to patient outcomes.Methods and analysis We will expand an ongoing cognitive ageing cohort study (LitCog) to enroll a parallel caregiver cohort. Caregivers are eligible if they are (1) ≥18 years of age, (2) provided care for ≥6 months and (3) assisted with at least one activity of daily living, instrumental activity of daily living or health management task. Caregivers will complete interviews at time points corresponding with the LitCog participant interviews. Caregivers will complete assessments of health literacy, self-care skills, cognitive function, caregiver healthcare task difficulty, caregiver burden, caregiver self-efficacy, activation, technology use, busyness and routine and relationship quality. Caregivers will self-report the nature and intensity of care provided, and their own health status. Associations between caregiver presence and caregiver capacity with patient outcomes will be examined in a series of regression models, and mediating and moderating factors will be tested.Ethics and dissemination The Institutional Review Board at Northwestern University has approved the study protocol (STU00026255). Results will be published in peer-reviewed journals and summaries will be provided to the funders of the study as well as patients and caregivers.https://bmjopen.bmj.com/content/13/10/e075921.full |
| spellingShingle | Rachel O'Conor Michael Wolf Laura M Curtis Lauren Opsasnick Morgan Bonham Julia Yoshino Benavente Grace Magnuson Mary Morrissey Kwasny LitCog Caregiver Cohort: a prospective, observational cohort study investigating US caregivers’ health literacy, self-care skills and cognitive function BMJ Open |
| title | LitCog Caregiver Cohort: a prospective, observational cohort study investigating US caregivers’ health literacy, self-care skills and cognitive function |
| title_full | LitCog Caregiver Cohort: a prospective, observational cohort study investigating US caregivers’ health literacy, self-care skills and cognitive function |
| title_fullStr | LitCog Caregiver Cohort: a prospective, observational cohort study investigating US caregivers’ health literacy, self-care skills and cognitive function |
| title_full_unstemmed | LitCog Caregiver Cohort: a prospective, observational cohort study investigating US caregivers’ health literacy, self-care skills and cognitive function |
| title_short | LitCog Caregiver Cohort: a prospective, observational cohort study investigating US caregivers’ health literacy, self-care skills and cognitive function |
| title_sort | litcog caregiver cohort a prospective observational cohort study investigating us caregivers health literacy self care skills and cognitive function |
| url | https://bmjopen.bmj.com/content/13/10/e075921.full |
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