“We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs

Abstract Background In the context of the current US opioid crisis, people who inject drugs (PWID) are increasingly researched, but their ability to tell their own stories may be limited. Photovoice is a participatory action research method that allows participants to use photography to directly dep...

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Main Authors: Mari-Lynn Drainoni, Ellen Childs, Katie B. Biello, Dea L. Biancarelli, Alberto Edeza, Peter Salhaney, Matthew J. Mimiaga, Angela R. Bazzi
Format: Article
Language:English
Published: BMC 2019-11-01
Series:Harm Reduction Journal
Subjects:
Online Access:http://link.springer.com/article/10.1186/s12954-019-0334-2
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author Mari-Lynn Drainoni
Ellen Childs
Katie B. Biello
Dea L. Biancarelli
Alberto Edeza
Peter Salhaney
Matthew J. Mimiaga
Angela R. Bazzi
author_facet Mari-Lynn Drainoni
Ellen Childs
Katie B. Biello
Dea L. Biancarelli
Alberto Edeza
Peter Salhaney
Matthew J. Mimiaga
Angela R. Bazzi
author_sort Mari-Lynn Drainoni
collection DOAJ
description Abstract Background In the context of the current US opioid crisis, people who inject drugs (PWID) are increasingly researched, but their ability to tell their own stories may be limited. Photovoice is a participatory action research method that allows participants to use photography to directly depict their experiences. Methods We conducted interviews with PWID (n = 33) as part of a qualitative study on the health needs of PWID in the USA to explore interest and acceptability of photovoice as a potential research method and way to share their voices. Results Participants identified facilitators and barriers to participating in a future photovoice project. Facilitators included a chance to depict one’s unique experience, help others in need by sharing one’s own story, and photography being a more “comfortable” way to tell their stories than traditional research methods. Barriers included safety concerns, embarrassment, and ability to retain cameras. Participants also identified areas of sensitivity related to documenting drug use. Conclusions While we found broad acceptability of photovoice, barriers would need to be addressed and additional training and support for research staff and potential participants related to the ethics of public photography and engaging PWID in photovoice research would be required.
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spelling doaj.art-59ac1132792e4b17985ceb520c07328c2022-12-22T00:50:59ZengBMCHarm Reduction Journal1477-75172019-11-011611810.1186/s12954-019-0334-2“We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugsMari-Lynn Drainoni0Ellen Childs1Katie B. Biello2Dea L. Biancarelli3Alberto Edeza4Peter Salhaney5Matthew J. Mimiaga6Angela R. Bazzi7Section of Infectious Diseases, Department of Medicine, Boston University School of MedicineDepartment of Health Law, Policy & Management, Boston University School of Public HealthCenter for Health Equity Research, Brown UniversityEvans Center for Implementation and Improvement Sciences, Boston University School of MedicineCenter for Health Equity Research, Brown UniversityCenter for Health Equity Research, Brown UniversityCenter for Health Equity Research, Brown UniversityDepartment of Community Health Sciences, Boston University School of Public HealthAbstract Background In the context of the current US opioid crisis, people who inject drugs (PWID) are increasingly researched, but their ability to tell their own stories may be limited. Photovoice is a participatory action research method that allows participants to use photography to directly depict their experiences. Methods We conducted interviews with PWID (n = 33) as part of a qualitative study on the health needs of PWID in the USA to explore interest and acceptability of photovoice as a potential research method and way to share their voices. Results Participants identified facilitators and barriers to participating in a future photovoice project. Facilitators included a chance to depict one’s unique experience, help others in need by sharing one’s own story, and photography being a more “comfortable” way to tell their stories than traditional research methods. Barriers included safety concerns, embarrassment, and ability to retain cameras. Participants also identified areas of sensitivity related to documenting drug use. Conclusions While we found broad acceptability of photovoice, barriers would need to be addressed and additional training and support for research staff and potential participants related to the ethics of public photography and engaging PWID in photovoice research would be required.http://link.springer.com/article/10.1186/s12954-019-0334-2Substance abuseIntravenousVulnerable populationsQualitative researchParticipatory action researchPhotography
spellingShingle Mari-Lynn Drainoni
Ellen Childs
Katie B. Biello
Dea L. Biancarelli
Alberto Edeza
Peter Salhaney
Matthew J. Mimiaga
Angela R. Bazzi
“We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
Harm Reduction Journal
Substance abuse
Intravenous
Vulnerable populations
Qualitative research
Participatory action research
Photography
title “We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
title_full “We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
title_fullStr “We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
title_full_unstemmed “We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
title_short “We don't get much of a voice about anything”: perspectives on photovoice among people who inject drugs
title_sort we don t get much of a voice about anything perspectives on photovoice among people who inject drugs
topic Substance abuse
Intravenous
Vulnerable populations
Qualitative research
Participatory action research
Photography
url http://link.springer.com/article/10.1186/s12954-019-0334-2
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