Thoughts on the end of life in patients with oxygen‐dependent chronic obstructive pulmonary disease: A qualitative interview study
Abstract Aim The aim of the study was to deepen the current knowledge of how patients with chronic obstructive pulmonary disease and long‐term oxygen treatment think about and expect end‐of‐life. Design A qualitative design was used. Methods A purposeful sample of 19 patients with oxygen‐dependent c...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Wiley
2023-04-01
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| Series: | Nursing Open |
| Online Access: | https://doi.org/10.1002/nop2.1463 |
| _version_ | 1811154648007966720 |
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| author | Lisa Skär Christel Borg Margareta Emtner Magnus Ekström |
| author_facet | Lisa Skär Christel Borg Margareta Emtner Magnus Ekström |
| author_sort | Lisa Skär |
| collection | DOAJ |
| description | Abstract Aim The aim of the study was to deepen the current knowledge of how patients with chronic obstructive pulmonary disease and long‐term oxygen treatment think about and expect end‐of‐life. Design A qualitative design was used. Methods A purposeful sample of 19 patients with oxygen‐dependent chronic obstructive pulmonary disease was obtained from the Swedish National Registry on Respiratory Failure (Swedevox). Data was collected with semi‐structured interviews and analysed using a hermeneutic approach. Results The analysis revealed three themes: Living in the present without a future; difficulty talking about the uncertainty; and feeling anxious about leaving family behind. Participants indicated that healthcare professionals should invite them to mutual discussions as it was easier to reject an invitation if they could not talk right then, than to initiate a discussion themselves. Start of home oxygen or a deteriorating health status may be an important time to clinically address existential and end‐of‐life issues. |
| first_indexed | 2024-04-10T04:20:35Z |
| format | Article |
| id | doaj.art-5a090706f5d4401fb8d58b995ded22cc |
| institution | Directory Open Access Journal |
| issn | 2054-1058 |
| language | English |
| last_indexed | 2024-04-10T04:20:35Z |
| publishDate | 2023-04-01 |
| publisher | Wiley |
| record_format | Article |
| series | Nursing Open |
| spelling | doaj.art-5a090706f5d4401fb8d58b995ded22cc2023-03-11T07:18:37ZengWileyNursing Open2054-10582023-04-011042158216410.1002/nop2.1463Thoughts on the end of life in patients with oxygen‐dependent chronic obstructive pulmonary disease: A qualitative interview studyLisa Skär0Christel Borg1Margareta Emtner2Magnus Ekström3Department of Health Blekinge Institute of Technology Karlskrona SwedenDepartment of Health Blekinge Institute of Technology Karlskrona SwedenDepartment of Medical Sciences, Respiratory‐, allergy‐ and sleep research Uppsala University Uppsala SwedenFaculty of Medicine, Department of Clinical Sciences Lund, Respiratory Medicine and Allergology Lund University Lund SwedenAbstract Aim The aim of the study was to deepen the current knowledge of how patients with chronic obstructive pulmonary disease and long‐term oxygen treatment think about and expect end‐of‐life. Design A qualitative design was used. Methods A purposeful sample of 19 patients with oxygen‐dependent chronic obstructive pulmonary disease was obtained from the Swedish National Registry on Respiratory Failure (Swedevox). Data was collected with semi‐structured interviews and analysed using a hermeneutic approach. Results The analysis revealed three themes: Living in the present without a future; difficulty talking about the uncertainty; and feeling anxious about leaving family behind. Participants indicated that healthcare professionals should invite them to mutual discussions as it was easier to reject an invitation if they could not talk right then, than to initiate a discussion themselves. Start of home oxygen or a deteriorating health status may be an important time to clinically address existential and end‐of‐life issues.https://doi.org/10.1002/nop2.1463 |
| spellingShingle | Lisa Skär Christel Borg Margareta Emtner Magnus Ekström Thoughts on the end of life in patients with oxygen‐dependent chronic obstructive pulmonary disease: A qualitative interview study Nursing Open |
| title | Thoughts on the end of life in patients with oxygen‐dependent chronic obstructive pulmonary disease: A qualitative interview study |
| title_full | Thoughts on the end of life in patients with oxygen‐dependent chronic obstructive pulmonary disease: A qualitative interview study |
| title_fullStr | Thoughts on the end of life in patients with oxygen‐dependent chronic obstructive pulmonary disease: A qualitative interview study |
| title_full_unstemmed | Thoughts on the end of life in patients with oxygen‐dependent chronic obstructive pulmonary disease: A qualitative interview study |
| title_short | Thoughts on the end of life in patients with oxygen‐dependent chronic obstructive pulmonary disease: A qualitative interview study |
| title_sort | thoughts on the end of life in patients with oxygen dependent chronic obstructive pulmonary disease a qualitative interview study |
| url | https://doi.org/10.1002/nop2.1463 |
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