A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden
The Swedish system of disability support is often praised for its comparably well-developed Personal Assistance (PA) scheme. PA is formally prescribed as a social right for disabled people with comprehensive support needs in the Act Concerning Support and Services to Persons with Certain Functional...
| Main Authors: | , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Cogitatio
2018-05-01
|
| Series: | Social Inclusion |
| Subjects: | |
| Online Access: | https://www.cogitatiopress.com/socialinclusion/article/view/1358 |
| _version_ | 1818010567858716672 |
|---|---|
| author | Dietmar Rauch Elisabeth Olin Anna Dunér |
| author_facet | Dietmar Rauch Elisabeth Olin Anna Dunér |
| author_sort | Dietmar Rauch |
| collection | DOAJ |
| description | The Swedish system of disability support is often praised for its comparably well-developed Personal Assistance (PA) scheme. PA is formally prescribed as a social right for disabled people with comprehensive support needs in the Act Concerning Support and Services to Persons with Certain Functional Impairments (LSS). In the decade following the introduction of LSS in 1994, the PA-scheme expanded steadily to accommodate the support needs of more and more disabled people. It is commonly believed that the expansion of PA has substantially boosted the agency of both disabled people and their relatives. This article critically discusses in what direction the Swedish system of disability support has moved in the past decade. Is the common image of a system moving towards an ever increasing defamilialization of disability support still accurate? Or are there signs of stagnation, or even reversal towards refamilialization? What are the possible consequences of the more recent developments for disabled people and their relatives in terms of agency and equality? These questions will be discussed with the help of an analysis of the regulatory framework of disability support, statistical data and findings from public reports. |
| first_indexed | 2024-04-14T05:56:59Z |
| format | Article |
| id | doaj.art-5b593f8e3b69470f8a359ac032efce23 |
| institution | Directory Open Access Journal |
| issn | 2183-2803 |
| language | English |
| last_indexed | 2024-04-14T05:56:59Z |
| publishDate | 2018-05-01 |
| publisher | Cogitatio |
| record_format | Article |
| series | Social Inclusion |
| spelling | doaj.art-5b593f8e3b69470f8a359ac032efce232022-12-22T02:08:54ZengCogitatioSocial Inclusion2183-28032018-05-0162566510.17645/si.v6i2.1358716A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in SwedenDietmar Rauch0Elisabeth Olin1Anna Dunér2Department of Social Work, University of Gothenburg, SwedenDepartment of Social Work, University of Gothenburg, SwedenDepartment of Social Work, University of Gothenburg, SwedenThe Swedish system of disability support is often praised for its comparably well-developed Personal Assistance (PA) scheme. PA is formally prescribed as a social right for disabled people with comprehensive support needs in the Act Concerning Support and Services to Persons with Certain Functional Impairments (LSS). In the decade following the introduction of LSS in 1994, the PA-scheme expanded steadily to accommodate the support needs of more and more disabled people. It is commonly believed that the expansion of PA has substantially boosted the agency of both disabled people and their relatives. This article critically discusses in what direction the Swedish system of disability support has moved in the past decade. Is the common image of a system moving towards an ever increasing defamilialization of disability support still accurate? Or are there signs of stagnation, or even reversal towards refamilialization? What are the possible consequences of the more recent developments for disabled people and their relatives in terms of agency and equality? These questions will be discussed with the help of an analysis of the regulatory framework of disability support, statistical data and findings from public reports.https://www.cogitatiopress.com/socialinclusion/article/view/1358agencyassistance allowancedefamilializationdisability supportequalityfamilialismpersonal assistanceSweden |
| spellingShingle | Dietmar Rauch Elisabeth Olin Anna Dunér A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden Social Inclusion agency assistance allowance defamilialization disability support equality familialism personal assistance Sweden |
| title | A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden |
| title_full | A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden |
| title_fullStr | A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden |
| title_full_unstemmed | A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden |
| title_short | A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden |
| title_sort | refamilialized system an analysis of recent developments of personal assistance in sweden |
| topic | agency assistance allowance defamilialization disability support equality familialism personal assistance Sweden |
| url | https://www.cogitatiopress.com/socialinclusion/article/view/1358 |
| work_keys_str_mv | AT dietmarrauch arefamilializedsystemananalysisofrecentdevelopmentsofpersonalassistanceinsweden AT elisabetholin arefamilializedsystemananalysisofrecentdevelopmentsofpersonalassistanceinsweden AT annaduner arefamilializedsystemananalysisofrecentdevelopmentsofpersonalassistanceinsweden AT dietmarrauch refamilializedsystemananalysisofrecentdevelopmentsofpersonalassistanceinsweden AT elisabetholin refamilializedsystemananalysisofrecentdevelopmentsofpersonalassistanceinsweden AT annaduner refamilializedsystemananalysisofrecentdevelopmentsofpersonalassistanceinsweden |