Feasibility and Acceptability of a Digital Patient-Reported Outcome Tool in Routine Outpatient Diabetes Care: Mixed Methods Formative Pilot Study

BackgroundImprovements in the digital capabilities of health systems provide new opportunities for the integration of patient-reported outcome (PRO) solutions in routine care, which can facilitate the delivery of person-centered diabetes care. We undertook this study as part...

Full description

Bibliographic Details
Main Authors: Soren E Skovlund, Lise Havbæk Troelsen, Lise Mellergaard Noergaard, Anna Pietraszek, Poul Erik Jakobsen, Niels Ejskjaer
Format: Article
Language:English
Published: JMIR Publications 2021-11-01
Series:JMIR Formative Research
Online Access:https://formative.jmir.org/2021/11/e28329
_version_ 1797735598020100096
author Soren E Skovlund
Lise Havbæk Troelsen
Lise Mellergaard Noergaard
Anna Pietraszek
Poul Erik Jakobsen
Niels Ejskjaer
author_facet Soren E Skovlund
Lise Havbæk Troelsen
Lise Mellergaard Noergaard
Anna Pietraszek
Poul Erik Jakobsen
Niels Ejskjaer
author_sort Soren E Skovlund
collection DOAJ
description BackgroundImprovements in the digital capabilities of health systems provide new opportunities for the integration of patient-reported outcome (PRO) solutions in routine care, which can facilitate the delivery of person-centered diabetes care. We undertook this study as part of our development of a new digital PRO diabetes questionnaire and clinical dialog support tool for use by people with diabetes and their health care professionals (HCPs) to improve person-centered diabetes care quality and outcomes. ObjectiveThis study evaluates the feasibility, acceptability, and perceived benefits and impacts of using a digital PRO diabetes tool, DiaProfil, in routine outpatient diabetes care. MethodsOverall, 12 people with diabetes scheduled for routine medical diabetes visits at the outpatient clinic were recruited. Purposive sampling was used to optimize heterogeneity regarding age, gender, duration, type of diabetes, treatment modality, and disease severity. Participants filled out a PRO diabetes questionnaire 2 to 5 days before their visit. During the visit, HCPs used a digital PRO tool to review PRO data with the person with diabetes for collaborative care planning. Participants completed evaluation forms before and after the visit and were interviewed for 30 to 45 minutes after the visit. HCPs completed the evaluation questionnaires after each visit. All visits were audio-recorded and transcribed for analysis. Data were analyzed using quantitative, qualitative, and mixed methods analyses. ResultsPeople with diabetes found the PRO diabetes questionnaire to be relevant, acceptable, and feasible to complete from home. People with diabetes and HCPs found the digital PRO tool to be feasible and acceptable for use during the diabetes visit and would like to continue using it. HCPs were able to use the tool in a person-centered manner, as intended. For several people with diabetes, completion of the questionnaire facilitated positive reflection and better preparation for the visit. The use of the PRO tool primarily improved the quality of the dialog by improving the identification and focus on the issues most important to the person with diabetes. People with diabetes did not report any negative aspects of the PRO tool, whereas HCPs highlighted that it was demanding when the person with diabetes had many PRO issues that required attention within the predefined time allocated for a visit. ConclusionsThe Danish PRO diabetes questionnaire and the digital tool, DiaProfil, are feasible and acceptable solutions for routine diabetes visits, and this tool may generate important benefits related to advancement of person-centered care. Further research is now required to corroborate and expand these formative insights on a larger scale and in diverse health care settings. The results of this study are therefore being used to define research hypotheses and finalize real-world PRO evaluation tools for a forthcoming large-scale multisector implementation study in Denmark.
first_indexed 2024-03-12T13:01:22Z
format Article
id doaj.art-5bfd7068404140668e35fd0d931bf2bb
institution Directory Open Access Journal
issn 2561-326X
language English
last_indexed 2024-03-12T13:01:22Z
publishDate 2021-11-01
publisher JMIR Publications
record_format Article
series JMIR Formative Research
spelling doaj.art-5bfd7068404140668e35fd0d931bf2bb2023-08-28T19:43:23ZengJMIR PublicationsJMIR Formative Research2561-326X2021-11-01511e2832910.2196/28329Feasibility and Acceptability of a Digital Patient-Reported Outcome Tool in Routine Outpatient Diabetes Care: Mixed Methods Formative Pilot StudySoren E Skovlundhttps://orcid.org/0000-0003-3464-0885Lise Havbæk Troelsenhttps://orcid.org/0000-0002-5038-1396Lise Mellergaard Noergaardhttps://orcid.org/0000-0002-6915-4505Anna Pietraszekhttps://orcid.org/0000-0003-4736-2255Poul Erik Jakobsenhttps://orcid.org/0000-0002-9072-8753Niels Ejskjaerhttps://orcid.org/0000-0003-3749-3403 BackgroundImprovements in the digital capabilities of health systems provide new opportunities for the integration of patient-reported outcome (PRO) solutions in routine care, which can facilitate the delivery of person-centered diabetes care. We undertook this study as part of our development of a new digital PRO diabetes questionnaire and clinical dialog support tool for use by people with diabetes and their health care professionals (HCPs) to improve person-centered diabetes care quality and outcomes. ObjectiveThis study evaluates the feasibility, acceptability, and perceived benefits and impacts of using a digital PRO diabetes tool, DiaProfil, in routine outpatient diabetes care. MethodsOverall, 12 people with diabetes scheduled for routine medical diabetes visits at the outpatient clinic were recruited. Purposive sampling was used to optimize heterogeneity regarding age, gender, duration, type of diabetes, treatment modality, and disease severity. Participants filled out a PRO diabetes questionnaire 2 to 5 days before their visit. During the visit, HCPs used a digital PRO tool to review PRO data with the person with diabetes for collaborative care planning. Participants completed evaluation forms before and after the visit and were interviewed for 30 to 45 minutes after the visit. HCPs completed the evaluation questionnaires after each visit. All visits were audio-recorded and transcribed for analysis. Data were analyzed using quantitative, qualitative, and mixed methods analyses. ResultsPeople with diabetes found the PRO diabetes questionnaire to be relevant, acceptable, and feasible to complete from home. People with diabetes and HCPs found the digital PRO tool to be feasible and acceptable for use during the diabetes visit and would like to continue using it. HCPs were able to use the tool in a person-centered manner, as intended. For several people with diabetes, completion of the questionnaire facilitated positive reflection and better preparation for the visit. The use of the PRO tool primarily improved the quality of the dialog by improving the identification and focus on the issues most important to the person with diabetes. People with diabetes did not report any negative aspects of the PRO tool, whereas HCPs highlighted that it was demanding when the person with diabetes had many PRO issues that required attention within the predefined time allocated for a visit. ConclusionsThe Danish PRO diabetes questionnaire and the digital tool, DiaProfil, are feasible and acceptable solutions for routine diabetes visits, and this tool may generate important benefits related to advancement of person-centered care. Further research is now required to corroborate and expand these formative insights on a larger scale and in diverse health care settings. The results of this study are therefore being used to define research hypotheses and finalize real-world PRO evaluation tools for a forthcoming large-scale multisector implementation study in Denmark.https://formative.jmir.org/2021/11/e28329
spellingShingle Soren E Skovlund
Lise Havbæk Troelsen
Lise Mellergaard Noergaard
Anna Pietraszek
Poul Erik Jakobsen
Niels Ejskjaer
Feasibility and Acceptability of a Digital Patient-Reported Outcome Tool in Routine Outpatient Diabetes Care: Mixed Methods Formative Pilot Study
JMIR Formative Research
title Feasibility and Acceptability of a Digital Patient-Reported Outcome Tool in Routine Outpatient Diabetes Care: Mixed Methods Formative Pilot Study
title_full Feasibility and Acceptability of a Digital Patient-Reported Outcome Tool in Routine Outpatient Diabetes Care: Mixed Methods Formative Pilot Study
title_fullStr Feasibility and Acceptability of a Digital Patient-Reported Outcome Tool in Routine Outpatient Diabetes Care: Mixed Methods Formative Pilot Study
title_full_unstemmed Feasibility and Acceptability of a Digital Patient-Reported Outcome Tool in Routine Outpatient Diabetes Care: Mixed Methods Formative Pilot Study
title_short Feasibility and Acceptability of a Digital Patient-Reported Outcome Tool in Routine Outpatient Diabetes Care: Mixed Methods Formative Pilot Study
title_sort feasibility and acceptability of a digital patient reported outcome tool in routine outpatient diabetes care mixed methods formative pilot study
url https://formative.jmir.org/2021/11/e28329
work_keys_str_mv AT soreneskovlund feasibilityandacceptabilityofadigitalpatientreportedoutcometoolinroutineoutpatientdiabetescaremixedmethodsformativepilotstudy
AT lisehavbæktroelsen feasibilityandacceptabilityofadigitalpatientreportedoutcometoolinroutineoutpatientdiabetescaremixedmethodsformativepilotstudy
AT lisemellergaardnoergaard feasibilityandacceptabilityofadigitalpatientreportedoutcometoolinroutineoutpatientdiabetescaremixedmethodsformativepilotstudy
AT annapietraszek feasibilityandacceptabilityofadigitalpatientreportedoutcometoolinroutineoutpatientdiabetescaremixedmethodsformativepilotstudy
AT poulerikjakobsen feasibilityandacceptabilityofadigitalpatientreportedoutcometoolinroutineoutpatientdiabetescaremixedmethodsformativepilotstudy
AT nielsejskjaer feasibilityandacceptabilityofadigitalpatientreportedoutcometoolinroutineoutpatientdiabetescaremixedmethodsformativepilotstudy