Regaining autonomy, competence, and relatedness: Experiences from two Shared Reading groups for people diagnosed with cancer

This study explored 12 cancer patients’ experiences from participating in an online and on-site Shared Reading group for 16 weeks in Norway. Shared Reading is a practice in which prose and poetry are read aloud in small parts and discussed along the way. The study is a qualitative evaluation study w...

Full description

Bibliographic Details
Main Author: Tine Riis Andersen
Format: Article
Language:English
Published: Frontiers Media S.A. 2022-11-01
Series:Frontiers in Psychology
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fpsyg.2022.1017166/full
_version_ 1811191813302648832
author Tine Riis Andersen
Tine Riis Andersen
author_facet Tine Riis Andersen
Tine Riis Andersen
author_sort Tine Riis Andersen
collection DOAJ
description This study explored 12 cancer patients’ experiences from participating in an online and on-site Shared Reading group for 16 weeks in Norway. Shared Reading is a practice in which prose and poetry are read aloud in small parts and discussed along the way. The study is a qualitative evaluation study with a particular focus on how the participants experienced the reading group supported their life living with cancer. The study was mainly based on the data collected from focus group discussions with the participants, which was analysed qualitatively through open coding. In total, four themes were identified: (1) open space, (2) disconnecting through connecting, (3) community, and (4) resonances and echoes. The participants expressed that the RG helped them to “balance life and cancer”, and “disconnect” from their illness. The cognitive effort needed was beneficial for the participants as a form for “cognitive training.” Since many of the participants had, due to their illness, completely stopped reading books, the reading group also brought literature back into the participants’ lives. Furthermore, it was essential for the participants to feel they contributed to a community, to feel useful and valuable for others. The texts were also important, as some of them resonated strongly with the participants in the way of activating memories and connecting a text to own experiences. After a session, a text could still have an impact as an echo. The results are synthesised, discussed, and supported through the framework of self-determination theory and, more specifically, the basic psychological need theory. The reading group was experienced as a support for autonomy, competence, and relatedness and promoted a feeling of intrinsic motivation that brought about new dimensions in the participants’ lives. The study wishes to increase our knowledge of the benefits of integrating Shared Reading groups as a low-cost, literature-based psychosocial support in cancer organisations.
first_indexed 2024-04-11T23:42:02Z
format Article
id doaj.art-5c6494056a4b41f4809272036d610093
institution Directory Open Access Journal
issn 1664-1078
language English
last_indexed 2024-04-11T23:42:02Z
publishDate 2022-11-01
publisher Frontiers Media S.A.
record_format Article
series Frontiers in Psychology
spelling doaj.art-5c6494056a4b41f4809272036d6100932022-12-22T03:56:45ZengFrontiers Media S.A.Frontiers in Psychology1664-10782022-11-011310.3389/fpsyg.2022.10171661017166Regaining autonomy, competence, and relatedness: Experiences from two Shared Reading groups for people diagnosed with cancerTine Riis Andersen0Tine Riis Andersen1Norwegian Centre for Reading Education and Research, University of Stavanger, Stavanger, NorwayFaculty of Education, University of Trnava, Trnava, SlovakiaThis study explored 12 cancer patients’ experiences from participating in an online and on-site Shared Reading group for 16 weeks in Norway. Shared Reading is a practice in which prose and poetry are read aloud in small parts and discussed along the way. The study is a qualitative evaluation study with a particular focus on how the participants experienced the reading group supported their life living with cancer. The study was mainly based on the data collected from focus group discussions with the participants, which was analysed qualitatively through open coding. In total, four themes were identified: (1) open space, (2) disconnecting through connecting, (3) community, and (4) resonances and echoes. The participants expressed that the RG helped them to “balance life and cancer”, and “disconnect” from their illness. The cognitive effort needed was beneficial for the participants as a form for “cognitive training.” Since many of the participants had, due to their illness, completely stopped reading books, the reading group also brought literature back into the participants’ lives. Furthermore, it was essential for the participants to feel they contributed to a community, to feel useful and valuable for others. The texts were also important, as some of them resonated strongly with the participants in the way of activating memories and connecting a text to own experiences. After a session, a text could still have an impact as an echo. The results are synthesised, discussed, and supported through the framework of self-determination theory and, more specifically, the basic psychological need theory. The reading group was experienced as a support for autonomy, competence, and relatedness and promoted a feeling of intrinsic motivation that brought about new dimensions in the participants’ lives. The study wishes to increase our knowledge of the benefits of integrating Shared Reading groups as a low-cost, literature-based psychosocial support in cancer organisations.https://www.frontiersin.org/articles/10.3389/fpsyg.2022.1017166/fullShared Readingcancer patientsarts in healthliteraturequality of lifepsychosocial intervention
spellingShingle Tine Riis Andersen
Tine Riis Andersen
Regaining autonomy, competence, and relatedness: Experiences from two Shared Reading groups for people diagnosed with cancer
Frontiers in Psychology
Shared Reading
cancer patients
arts in health
literature
quality of life
psychosocial intervention
title Regaining autonomy, competence, and relatedness: Experiences from two Shared Reading groups for people diagnosed with cancer
title_full Regaining autonomy, competence, and relatedness: Experiences from two Shared Reading groups for people diagnosed with cancer
title_fullStr Regaining autonomy, competence, and relatedness: Experiences from two Shared Reading groups for people diagnosed with cancer
title_full_unstemmed Regaining autonomy, competence, and relatedness: Experiences from two Shared Reading groups for people diagnosed with cancer
title_short Regaining autonomy, competence, and relatedness: Experiences from two Shared Reading groups for people diagnosed with cancer
title_sort regaining autonomy competence and relatedness experiences from two shared reading groups for people diagnosed with cancer
topic Shared Reading
cancer patients
arts in health
literature
quality of life
psychosocial intervention
url https://www.frontiersin.org/articles/10.3389/fpsyg.2022.1017166/full
work_keys_str_mv AT tineriisandersen regainingautonomycompetenceandrelatednessexperiencesfromtwosharedreadinggroupsforpeoplediagnosedwithcancer
AT tineriisandersen regainingautonomycompetenceandrelatednessexperiencesfromtwosharedreadinggroupsforpeoplediagnosedwithcancer