Parental Coping, Representations, and Interactions with Their Infants at High Risk of Cerebral Palsy

The aim of this study is to describe parental coping, representations, and interactions during the time of inclusion in the Small Step early intervention program for infants at high risk of cerebral palsy (CP) in Norway (ClinicalTrials.gov: NCT03264339). Altogether, 11 infants (mean age 4.8 months,...

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Main Authors: Silja Berg Kårstad, Åse Bjørseth, Johanna Lindstedt, Anne Synnøve Brenne, Helene Steihaug, Ann-Kristin Gunnes Elvrum
Format: Article
Language:English
Published: MDPI AG 2022-12-01
Series:Journal of Clinical Medicine
Subjects:
Online Access:https://www.mdpi.com/2077-0383/12/1/277
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author Silja Berg Kårstad
Åse Bjørseth
Johanna Lindstedt
Anne Synnøve Brenne
Helene Steihaug
Ann-Kristin Gunnes Elvrum
author_facet Silja Berg Kårstad
Åse Bjørseth
Johanna Lindstedt
Anne Synnøve Brenne
Helene Steihaug
Ann-Kristin Gunnes Elvrum
author_sort Silja Berg Kårstad
collection DOAJ
description The aim of this study is to describe parental coping, representations, and interactions during the time of inclusion in the Small Step early intervention program for infants at high risk of cerebral palsy (CP) in Norway (ClinicalTrials.gov: NCT03264339). Altogether, 11 infants (mean age 4.8 months, <i>SD</i>: 1.5) and their parents (mothers: <i>n =</i> 10, fathers:<i> n =</i> 9) were included. Parental coping was assessed using the Parenting Stress Index-Short Form (PSI-SF) and the Hospital Anxiety and Depression Scale (HADS). Parental representations and parent–infant interactions were assessed using the Working Model of the Child Interview (WMCI) and the Parent–Child Early Relational Assessment (PCERA). Parents’ PSI-SF and HADS scores were within normal range; however, 26.7% showed symptoms of stress, 52.6% showed symptoms of anxiety, and 31.6% showed symptoms of depression above the cut-off. WMCI results indicate that 73.7% of the parents had balanced representations. For PCERA, the subscale Dyadic Mutuality and Reciprocity was of concern, while two other subscales were in areas of strength and three subscales in some concern areas. There were no differences between mothers and fathers. Most of the parents had balanced representations, some had mental or stress symptoms and many were struggling with aspects of the parent–infant interaction. This knowledge could be useful when developing more family-centered interventions.
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spelling doaj.art-5c6fd6bb10bf4418a1d09bf70f9e9bad2023-11-16T15:43:54ZengMDPI AGJournal of Clinical Medicine2077-03832022-12-0112127710.3390/jcm12010277Parental Coping, Representations, and Interactions with Their Infants at High Risk of Cerebral PalsySilja Berg Kårstad0Åse Bjørseth1Johanna Lindstedt2Anne Synnøve Brenne3Helene Steihaug4Ann-Kristin Gunnes Elvrum5Regional Centre for Child and Youth Mental Health and Child Welfare (RKBU Central Norway), Department of Mental Health, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, 7130 Trondheim, NorwayRegional Centre for Child and Youth Mental Health and Child Welfare (RKBU Central Norway), Department of Mental Health, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, 7130 Trondheim, NorwayDepartment of Psychology and Speech-Language Pathology, University of Turku, 20500 Turku, FinlandRegional Centre for Child and Youth Mental Health and Child Welfare (RKBU Central Norway), Department of Mental Health, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, 7130 Trondheim, NorwayChild and Adolescent Mental Health Services, St. Olav’s Hospital, Trondheim University Hospital, 7130 Trondheim, NorwayDepartment of Neuromedicine and Movement Science, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, 7130 Trondheim, NorwayThe aim of this study is to describe parental coping, representations, and interactions during the time of inclusion in the Small Step early intervention program for infants at high risk of cerebral palsy (CP) in Norway (ClinicalTrials.gov: NCT03264339). Altogether, 11 infants (mean age 4.8 months, <i>SD</i>: 1.5) and their parents (mothers: <i>n =</i> 10, fathers:<i> n =</i> 9) were included. Parental coping was assessed using the Parenting Stress Index-Short Form (PSI-SF) and the Hospital Anxiety and Depression Scale (HADS). Parental representations and parent–infant interactions were assessed using the Working Model of the Child Interview (WMCI) and the Parent–Child Early Relational Assessment (PCERA). Parents’ PSI-SF and HADS scores were within normal range; however, 26.7% showed symptoms of stress, 52.6% showed symptoms of anxiety, and 31.6% showed symptoms of depression above the cut-off. WMCI results indicate that 73.7% of the parents had balanced representations. For PCERA, the subscale Dyadic Mutuality and Reciprocity was of concern, while two other subscales were in areas of strength and three subscales in some concern areas. There were no differences between mothers and fathers. Most of the parents had balanced representations, some had mental or stress symptoms and many were struggling with aspects of the parent–infant interaction. This knowledge could be useful when developing more family-centered interventions.https://www.mdpi.com/2077-0383/12/1/277CPinfantstressanxietydepressionparents
spellingShingle Silja Berg Kårstad
Åse Bjørseth
Johanna Lindstedt
Anne Synnøve Brenne
Helene Steihaug
Ann-Kristin Gunnes Elvrum
Parental Coping, Representations, and Interactions with Their Infants at High Risk of Cerebral Palsy
Journal of Clinical Medicine
CP
infant
stress
anxiety
depression
parents
title Parental Coping, Representations, and Interactions with Their Infants at High Risk of Cerebral Palsy
title_full Parental Coping, Representations, and Interactions with Their Infants at High Risk of Cerebral Palsy
title_fullStr Parental Coping, Representations, and Interactions with Their Infants at High Risk of Cerebral Palsy
title_full_unstemmed Parental Coping, Representations, and Interactions with Their Infants at High Risk of Cerebral Palsy
title_short Parental Coping, Representations, and Interactions with Their Infants at High Risk of Cerebral Palsy
title_sort parental coping representations and interactions with their infants at high risk of cerebral palsy
topic CP
infant
stress
anxiety
depression
parents
url https://www.mdpi.com/2077-0383/12/1/277
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