Adults Without Advocates and the Unrepresented: A Narrative Review of Terminology and Settings

Socially isolated adults, including those with and without the ability to make medical decisions, are encountered in clinical practice and are at risk for adverse health outcomes. Consensus is lacking on appropriate terminology to describe subpopulations of these patients. In addition, little is kno...

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Main Authors: Rachel Brenner MD, Linda Cole MS, Gail L. Towsley PhD, NHA, FGSA, Timothy W. Farrell MD, AGSF
Format: Article
Language:English
Published: SAGE Publishing 2023-01-01
Series:Gerontology and Geriatric Medicine
Online Access:https://doi.org/10.1177/23337214221142936
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author Rachel Brenner MD
Linda Cole MS
Gail L. Towsley PhD, NHA, FGSA
Timothy W. Farrell MD, AGSF
author_facet Rachel Brenner MD
Linda Cole MS
Gail L. Towsley PhD, NHA, FGSA
Timothy W. Farrell MD, AGSF
author_sort Rachel Brenner MD
collection DOAJ
description Socially isolated adults, including those with and without the ability to make medical decisions, are encountered in clinical practice and are at risk for adverse health outcomes. Consensus is lacking on appropriate terminology to describe subpopulations of these patients. In addition, little is known about the settings in which they present. These gaps prevent clinicians and policymakers from identifying and understanding these populations and deploying appropriate resources to meet their complex needs. We conducted a narrative review of literature on socially isolated adults aged 50 and older to assess and integrate the available evidence regarding the terminology used to describe unrepresented patients and adults without advocates to inform consensus on terminology. We also identified the settings in which unrepresented patients and adults without advocates are described in the literature, including both within and outside health care settings. Our results indicate that there is heterogeneity and inconsistency in the terminology used to describe socially isolated adults, as well as heterogeneity in the settings in which they are identified in the literature. Our findings suggest that future work should include achieving consensus on terminology and integrating proactive interdisciplinary interventions across health systems and communities to prevent adults without advocates from becoming unrepresented.
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spelling doaj.art-5cc5461720714b9b955c28611308ff5b2023-01-26T09:05:57ZengSAGE PublishingGerontology and Geriatric Medicine2333-72142023-01-01910.1177/23337214221142936Adults Without Advocates and the Unrepresented: A Narrative Review of Terminology and SettingsRachel Brenner MD0Linda Cole MS1Gail L. Towsley PhD, NHA, FGSA2Timothy W. Farrell MD, AGSF3Spencer Fox Eccles School of Medicine at the University of Utah, Salt Lake City, USAUniversity of Utah College of Nursing, Salt Lake City, USAUniversity of Utah College of Nursing, Salt Lake City, USASpencer Fox Eccles School of Medicine at the University of Utah, Salt Lake City, USASocially isolated adults, including those with and without the ability to make medical decisions, are encountered in clinical practice and are at risk for adverse health outcomes. Consensus is lacking on appropriate terminology to describe subpopulations of these patients. In addition, little is known about the settings in which they present. These gaps prevent clinicians and policymakers from identifying and understanding these populations and deploying appropriate resources to meet their complex needs. We conducted a narrative review of literature on socially isolated adults aged 50 and older to assess and integrate the available evidence regarding the terminology used to describe unrepresented patients and adults without advocates to inform consensus on terminology. We also identified the settings in which unrepresented patients and adults without advocates are described in the literature, including both within and outside health care settings. Our results indicate that there is heterogeneity and inconsistency in the terminology used to describe socially isolated adults, as well as heterogeneity in the settings in which they are identified in the literature. Our findings suggest that future work should include achieving consensus on terminology and integrating proactive interdisciplinary interventions across health systems and communities to prevent adults without advocates from becoming unrepresented.https://doi.org/10.1177/23337214221142936
spellingShingle Rachel Brenner MD
Linda Cole MS
Gail L. Towsley PhD, NHA, FGSA
Timothy W. Farrell MD, AGSF
Adults Without Advocates and the Unrepresented: A Narrative Review of Terminology and Settings
Gerontology and Geriatric Medicine
title Adults Without Advocates and the Unrepresented: A Narrative Review of Terminology and Settings
title_full Adults Without Advocates and the Unrepresented: A Narrative Review of Terminology and Settings
title_fullStr Adults Without Advocates and the Unrepresented: A Narrative Review of Terminology and Settings
title_full_unstemmed Adults Without Advocates and the Unrepresented: A Narrative Review of Terminology and Settings
title_short Adults Without Advocates and the Unrepresented: A Narrative Review of Terminology and Settings
title_sort adults without advocates and the unrepresented a narrative review of terminology and settings
url https://doi.org/10.1177/23337214221142936
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