Low health literacy levels in patients with chronic retinal disease

Abstract Background A patient’s health literacy is fundamental for navigating the health system and managing disease. This study aimed to compare the health literacy levels of patients with chronic retinal disease in Denmark. Methods This cross-sectional questionnaire study used the validated HLS-EU...

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Main Authors: Sofie Jandorf, Marie Krogh Nielsen, Kristine Sørensen, Torben Lykke Sørensen
Format: Article
Language:English
Published: BMC 2019-08-01
Series:BMC Ophthalmology
Subjects:
Online Access:http://link.springer.com/article/10.1186/s12886-019-1191-1
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author Sofie Jandorf
Marie Krogh Nielsen
Kristine Sørensen
Torben Lykke Sørensen
author_facet Sofie Jandorf
Marie Krogh Nielsen
Kristine Sørensen
Torben Lykke Sørensen
author_sort Sofie Jandorf
collection DOAJ
description Abstract Background A patient’s health literacy is fundamental for navigating the health system and managing disease. This study aimed to compare the health literacy levels of patients with chronic retinal disease in Denmark. Methods This cross-sectional questionnaire study used the validated HLS-EU-Q16 questionnaire to determine the health literacy of 225 patients with age-related macular degeneration (AMD), diabetic macular edema (DME) or retinal vein occlusion (RVO), receiving intravitreal treatment at the retinal clinic, Zealand University Hospital, Denmark. Patients were consecutively included as participants for the study. All patients had the option of having the survey read aloud to them. Results Health literacy levels between the patient groups did not differ significantly, however, the proportion of patients with poor health literacy was high—65% of AMD patients, 73% of DME patients, and 63% of patients with RVO. Conclusions Low health literacy of patients with retinal disease signify a need for more health literacy research in the field of retinal diseases, to secure that patients have the timely and appropriate knowledge and competencies to manage their condition.
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spelling doaj.art-5d0062fdbc7d4c27bd67af1a0f8c82092022-12-22T00:19:37ZengBMCBMC Ophthalmology1471-24152019-08-011911510.1186/s12886-019-1191-1Low health literacy levels in patients with chronic retinal diseaseSofie Jandorf0Marie Krogh Nielsen1Kristine Sørensen2Torben Lykke Sørensen3Clinical Eye Research Division, Department of Ophthalmology, Zealand University HospitalClinical Eye Research Division, Department of Ophthalmology, Zealand University HospitalGlobal Health Literacy AcademyClinical Eye Research Division, Department of Ophthalmology, Zealand University HospitalAbstract Background A patient’s health literacy is fundamental for navigating the health system and managing disease. This study aimed to compare the health literacy levels of patients with chronic retinal disease in Denmark. Methods This cross-sectional questionnaire study used the validated HLS-EU-Q16 questionnaire to determine the health literacy of 225 patients with age-related macular degeneration (AMD), diabetic macular edema (DME) or retinal vein occlusion (RVO), receiving intravitreal treatment at the retinal clinic, Zealand University Hospital, Denmark. Patients were consecutively included as participants for the study. All patients had the option of having the survey read aloud to them. Results Health literacy levels between the patient groups did not differ significantly, however, the proportion of patients with poor health literacy was high—65% of AMD patients, 73% of DME patients, and 63% of patients with RVO. Conclusions Low health literacy of patients with retinal disease signify a need for more health literacy research in the field of retinal diseases, to secure that patients have the timely and appropriate knowledge and competencies to manage their condition.http://link.springer.com/article/10.1186/s12886-019-1191-1Age-related macular degenerationDiabetic macular edemaHealth literacyRetinal vein occlusion
spellingShingle Sofie Jandorf
Marie Krogh Nielsen
Kristine Sørensen
Torben Lykke Sørensen
Low health literacy levels in patients with chronic retinal disease
BMC Ophthalmology
Age-related macular degeneration
Diabetic macular edema
Health literacy
Retinal vein occlusion
title Low health literacy levels in patients with chronic retinal disease
title_full Low health literacy levels in patients with chronic retinal disease
title_fullStr Low health literacy levels in patients with chronic retinal disease
title_full_unstemmed Low health literacy levels in patients with chronic retinal disease
title_short Low health literacy levels in patients with chronic retinal disease
title_sort low health literacy levels in patients with chronic retinal disease
topic Age-related macular degeneration
Diabetic macular edema
Health literacy
Retinal vein occlusion
url http://link.springer.com/article/10.1186/s12886-019-1191-1
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