A Critical Discussion of Patient Engagement in Research

Patients are increasingly expected to take a more involved role in research. Funding for some projects now requires incorporating patients’ viewpoints or involvement in research processes. While intended to achieve commendable goals, it is important to critically assess the means used to achieve the...

Full description

Bibliographic Details
Main Authors: Andrea Elaine Bombak, Heather M. Hanson
Format: Article
Language:English
Published: Advocate Aurora Health 2017-01-01
Series:Journal of Patient-Centered Research and Reviews
Subjects:
Online Access:http://digitalrepository.aurorahealthcare.org/cgi/viewcontent.cgi?article=1273&context=jpcrr
Description
Summary:Patients are increasingly expected to take a more involved role in research. Funding for some projects now requires incorporating patients’ viewpoints or involvement in research processes. While intended to achieve commendable goals, it is important to critically assess the means used to achieve these aims. Presently, there may be issues of valuing only certain epistemologies, failing to evaluate existing programs and their impacts, marginalizing less “engaged” patients, and promoting only tokenism. These are areas that require exploration and reflection before assuming that patient engagement approaches are sufficient or the only means of incorporating patient perspectives into research.
ISSN:2330-0698