A Critical Discussion of Patient Engagement in Research
Patients are increasingly expected to take a more involved role in research. Funding for some projects now requires incorporating patients’ viewpoints or involvement in research processes. While intended to achieve commendable goals, it is important to critically assess the means used to achieve the...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
Advocate Aurora Health
2017-01-01
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| Series: | Journal of Patient-Centered Research and Reviews |
| Subjects: | |
| Online Access: | http://digitalrepository.aurorahealthcare.org/cgi/viewcontent.cgi?article=1273&context=jpcrr |
| _version_ | 1828044696513937408 |
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| author | Andrea Elaine Bombak Heather M. Hanson |
| author_facet | Andrea Elaine Bombak Heather M. Hanson |
| author_sort | Andrea Elaine Bombak |
| collection | DOAJ |
| description | Patients are increasingly expected to take a more involved role in research. Funding for some projects now requires incorporating patients’ viewpoints or involvement in research processes. While intended to achieve commendable goals, it is important to critically assess the means used to achieve these aims. Presently, there may be issues of valuing only certain epistemologies, failing to evaluate existing programs and their impacts, marginalizing less “engaged” patients, and promoting only tokenism. These are areas that require exploration and reflection before assuming that patient engagement approaches are sufficient or the only means of incorporating patient perspectives into research. |
| first_indexed | 2024-04-10T17:59:25Z |
| format | Article |
| id | doaj.art-5e79d4e069aa4523b175d64126e015bc |
| institution | Directory Open Access Journal |
| issn | 2330-0698 |
| language | English |
| last_indexed | 2024-04-10T17:59:25Z |
| publishDate | 2017-01-01 |
| publisher | Advocate Aurora Health |
| record_format | Article |
| series | Journal of Patient-Centered Research and Reviews |
| spelling | doaj.art-5e79d4e069aa4523b175d64126e015bc2023-02-02T16:22:18ZengAdvocate Aurora HealthJournal of Patient-Centered Research and Reviews2330-06982017-01-0141394110.17294/2330-0698.1273A Critical Discussion of Patient Engagement in ResearchAndrea Elaine Bombak0Heather M. Hanson1Central Michigan University, Mt. Pleasant, MIUniversity of Calgary / Alberta Health Services, Calgary, CanadaPatients are increasingly expected to take a more involved role in research. Funding for some projects now requires incorporating patients’ viewpoints or involvement in research processes. While intended to achieve commendable goals, it is important to critically assess the means used to achieve these aims. Presently, there may be issues of valuing only certain epistemologies, failing to evaluate existing programs and their impacts, marginalizing less “engaged” patients, and promoting only tokenism. These are areas that require exploration and reflection before assuming that patient engagement approaches are sufficient or the only means of incorporating patient perspectives into research.http://digitalrepository.aurorahealthcare.org/cgi/viewcontent.cgi?article=1273&context=jpcrrpatient engagementpublic involvementpatient activationspatient-centered outcomes research |
| spellingShingle | Andrea Elaine Bombak Heather M. Hanson A Critical Discussion of Patient Engagement in Research Journal of Patient-Centered Research and Reviews patient engagement public involvement patient activations patient-centered outcomes research |
| title | A Critical Discussion of Patient Engagement in Research |
| title_full | A Critical Discussion of Patient Engagement in Research |
| title_fullStr | A Critical Discussion of Patient Engagement in Research |
| title_full_unstemmed | A Critical Discussion of Patient Engagement in Research |
| title_short | A Critical Discussion of Patient Engagement in Research |
| title_sort | critical discussion of patient engagement in research |
| topic | patient engagement public involvement patient activations patient-centered outcomes research |
| url | http://digitalrepository.aurorahealthcare.org/cgi/viewcontent.cgi?article=1273&context=jpcrr |
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