Reflecting on Parental Terminal Illness and Death During Adolescence: An Interpretative Phenomenological Analysis

There has been little consideration of how adolescents experience parental terminal illness (PTI) and death and any continuing impact it may have on their lives. In particular, limited attention has been given to this group’s perceptions and experiences of support during this period. This study expl...

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Main Authors: Jennifer Cafferky, Samantha Banbury, Catherine Athanasiadou-Lewis
Format: Article
Language:English
Published: PsychOpen GOLD/ Leibniz Institute for Psychology 2018-12-01
Series:Interpersona: An International Journal on Personal Relationships
Subjects:
Online Access:http://ijpr.psychopen.eu/article/view/306
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author Jennifer Cafferky
Samantha Banbury
Catherine Athanasiadou-Lewis
author_facet Jennifer Cafferky
Samantha Banbury
Catherine Athanasiadou-Lewis
author_sort Jennifer Cafferky
collection DOAJ
description There has been little consideration of how adolescents experience parental terminal illness (PTI) and death and any continuing impact it may have on their lives. In particular, limited attention has been given to this group’s perceptions and experiences of support during this period. This study explores the retrospective experiences of six individuals who had a parent diagnosed with a terminal illness (TI) during late adolescence. Their experiences are qualitatively explored in terms of their understanding, processing and adjustment to their parent’s TI and death; both as an individual, and in the context of their wider family and social setting. Interpretative Phenomenological Analysis was employed to analyse participant data. Participants were individuals who had a parent diagnosed with a terminal illness aged 16-18. Four superordinate themes emerged from the data. These were: changing family dynamics, grappling with adolescence and adjustment to loss, barriers to feeling/being supported and living with the consequences. Participants relate the profound impact that PTI during adolescence has had and continues to have on their lives. Study findings provide clinically useful information for healthcare professionals working with bereaved young people and those presently experiencing PTI. Implications are discussed in terms of service provision and design, including therapeutic recommendations for counselling psychologists and other professionals working with this group.
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spelling doaj.art-5e8052588f8b49d2a88bde121e1093ce2023-01-02T10:27:52ZengPsychOpen GOLD/ Leibniz Institute for PsychologyInterpersona: An International Journal on Personal Relationships1981-64722018-12-0112218019610.5964/ijpr.v12i2.306ijpr.v12i2.306Reflecting on Parental Terminal Illness and Death During Adolescence: An Interpretative Phenomenological AnalysisJennifer Cafferky0Samantha Banbury1Catherine Athanasiadou-Lewis2School of Psychology, London Metropolitan University, London, UKSchool of Psychology, London Metropolitan University, London, UKSchool of Psychology, London Metropolitan University, London, UKThere has been little consideration of how adolescents experience parental terminal illness (PTI) and death and any continuing impact it may have on their lives. In particular, limited attention has been given to this group’s perceptions and experiences of support during this period. This study explores the retrospective experiences of six individuals who had a parent diagnosed with a terminal illness (TI) during late adolescence. Their experiences are qualitatively explored in terms of their understanding, processing and adjustment to their parent’s TI and death; both as an individual, and in the context of their wider family and social setting. Interpretative Phenomenological Analysis was employed to analyse participant data. Participants were individuals who had a parent diagnosed with a terminal illness aged 16-18. Four superordinate themes emerged from the data. These were: changing family dynamics, grappling with adolescence and adjustment to loss, barriers to feeling/being supported and living with the consequences. Participants relate the profound impact that PTI during adolescence has had and continues to have on their lives. Study findings provide clinically useful information for healthcare professionals working with bereaved young people and those presently experiencing PTI. Implications are discussed in terms of service provision and design, including therapeutic recommendations for counselling psychologists and other professionals working with this group.http://ijpr.psychopen.eu/article/view/306parental terminal illnessbereavementadolescencecounselling psychologyinterpretative phenomenological analysis
spellingShingle Jennifer Cafferky
Samantha Banbury
Catherine Athanasiadou-Lewis
Reflecting on Parental Terminal Illness and Death During Adolescence: An Interpretative Phenomenological Analysis
Interpersona: An International Journal on Personal Relationships
parental terminal illness
bereavement
adolescence
counselling psychology
interpretative phenomenological analysis
title Reflecting on Parental Terminal Illness and Death During Adolescence: An Interpretative Phenomenological Analysis
title_full Reflecting on Parental Terminal Illness and Death During Adolescence: An Interpretative Phenomenological Analysis
title_fullStr Reflecting on Parental Terminal Illness and Death During Adolescence: An Interpretative Phenomenological Analysis
title_full_unstemmed Reflecting on Parental Terminal Illness and Death During Adolescence: An Interpretative Phenomenological Analysis
title_short Reflecting on Parental Terminal Illness and Death During Adolescence: An Interpretative Phenomenological Analysis
title_sort reflecting on parental terminal illness and death during adolescence an interpretative phenomenological analysis
topic parental terminal illness
bereavement
adolescence
counselling psychology
interpretative phenomenological analysis
url http://ijpr.psychopen.eu/article/view/306
work_keys_str_mv AT jennifercafferky reflectingonparentalterminalillnessanddeathduringadolescenceaninterpretativephenomenologicalanalysis
AT samanthabanbury reflectingonparentalterminalillnessanddeathduringadolescenceaninterpretativephenomenologicalanalysis
AT catherineathanasiadoulewis reflectingonparentalterminalillnessanddeathduringadolescenceaninterpretativephenomenologicalanalysis