The importance of patient engagement in the management of giant cell arteritis
Giant cell arteritis (GCA) is a vascular condition characterized by ocular, systemic and neurological symptoms. Visual loss is the dreaded complication of this condition, prompting expedient diagnosis and treatment. Treatment typically involves prolonged glucocorticoid therapy which is often accompa...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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The Beryl Institute
2022-11-01
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| Series: | Patient Experience Journal |
| Subjects: | |
| Online Access: | https://pxjournal.org/journal/vol9/iss3/5 |
| _version_ | 1798043762745671680 |
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| author | Nikhil Patil Max Gelkopf Santano Rodrigues Arun Sundaram |
| author_facet | Nikhil Patil Max Gelkopf Santano Rodrigues Arun Sundaram |
| author_sort | Nikhil Patil |
| collection | DOAJ |
| description | Giant cell arteritis (GCA) is a vascular condition characterized by ocular, systemic and neurological symptoms. Visual loss is the dreaded complication of this condition, prompting expedient diagnosis and treatment. Treatment typically involves prolonged glucocorticoid therapy which is often accompanied by several undesired side effects. In this report, we document one patient’s experience with GCA, its treatment, and relapse. Particularly, the patient highlights the difficulties and successes he had with the disease and its treatment. We also document the physician perspective on this disease and its treatment, specifically discussing the significance of prolonged treatment with glucocorticoids. We comment on the importance of patient experience and engagement in the setting of GCA and its management, particularly focusing on our recommendations of patient education over multiple visits and individualizing glucocorticoid treatment.
<strong>Experience Framework</strong>
This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework (<a href="https://www.theberylinstitute.org/ExperienceFramework">https://www.theberylinstitute.org/ExperienceFramework</a>). <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul> |
| first_indexed | 2024-04-11T22:53:36Z |
| format | Article |
| id | doaj.art-5f78d6212d2d4dd384587b538b9ba139 |
| institution | Directory Open Access Journal |
| issn | 2372-0247 |
| language | English |
| last_indexed | 2024-04-11T22:53:36Z |
| publishDate | 2022-11-01 |
| publisher | The Beryl Institute |
| record_format | Article |
| series | Patient Experience Journal |
| spelling | doaj.art-5f78d6212d2d4dd384587b538b9ba1392022-12-22T03:58:30ZengThe Beryl InstitutePatient Experience Journal2372-02472022-11-0193The importance of patient engagement in the management of giant cell arteritisNikhil PatilMax GelkopfSantano RodriguesArun SundaramGiant cell arteritis (GCA) is a vascular condition characterized by ocular, systemic and neurological symptoms. Visual loss is the dreaded complication of this condition, prompting expedient diagnosis and treatment. Treatment typically involves prolonged glucocorticoid therapy which is often accompanied by several undesired side effects. In this report, we document one patient’s experience with GCA, its treatment, and relapse. Particularly, the patient highlights the difficulties and successes he had with the disease and its treatment. We also document the physician perspective on this disease and its treatment, specifically discussing the significance of prolonged treatment with glucocorticoids. We comment on the importance of patient experience and engagement in the setting of GCA and its management, particularly focusing on our recommendations of patient education over multiple visits and individualizing glucocorticoid treatment. <strong>Experience Framework</strong> This article is associated with the Patient, Family & Community Engagement lens of The Beryl Institute Experience Framework (<a href="https://www.theberylinstitute.org/ExperienceFramework">https://www.theberylinstitute.org/ExperienceFramework</a>). <ul> <li><a href="https://www.theberylinstitute.org/page/PXSEARCH#resource-list-all/?view_28_page=1&view_28_filters=%5B%7B%22field%22%3A%22field_38%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22PXJ%20Article%22%5D%7D%2C%7B%22field%22%3A%22field_40%22%2C%22operator%22%3A%22in%22%2C%22value%22%3A%5B%22Patient%2C%20Family%20%26%20Community%20Engagement%22%5D%7D%5D">Access other PXJ articles</a> related to this lens.</li> <li><a href="https://www.theberylinstitute.org/page/Ecosystem-PatientFamilyCommunityEngagement">Access other resources</a> related to this lens.</li> </ul>https://pxjournal.org/journal/vol9/iss3/5giant cell arteritispatient engagementglucocorticoid therapyprednisone |
| spellingShingle | Nikhil Patil Max Gelkopf Santano Rodrigues Arun Sundaram The importance of patient engagement in the management of giant cell arteritis Patient Experience Journal giant cell arteritis patient engagement glucocorticoid therapy prednisone |
| title | The importance of patient engagement in the management of giant cell arteritis |
| title_full | The importance of patient engagement in the management of giant cell arteritis |
| title_fullStr | The importance of patient engagement in the management of giant cell arteritis |
| title_full_unstemmed | The importance of patient engagement in the management of giant cell arteritis |
| title_short | The importance of patient engagement in the management of giant cell arteritis |
| title_sort | importance of patient engagement in the management of giant cell arteritis |
| topic | giant cell arteritis patient engagement glucocorticoid therapy prednisone |
| url | https://pxjournal.org/journal/vol9/iss3/5 |
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