Advanced care planning in the early phase of COVID-19: a rapid review of the practice and policy lessons learned

BackgroundThe importance of advance care planning (ACP) has been highlighted by the advent of life-threatening COVID-19. Anecdotal evidence suggests changes in implementation of policies and procedures is needed to support uptake of ACPs. We investigated the barriers and enablers of ACP in the COVID...

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Main Authors: Sarah Younan, Magnolia Cardona, Ashlyn Sahay, Eileen Willis, Danielle Ni Chroinin
Format: Article
Language:English
Published: Frontiers Media S.A. 2023-09-01
Series:Frontiers in Health Services
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/frhs.2023.1242413/full
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author Sarah Younan
Magnolia Cardona
Magnolia Cardona
Ashlyn Sahay
Eileen Willis
Danielle Ni Chroinin
Danielle Ni Chroinin
author_facet Sarah Younan
Magnolia Cardona
Magnolia Cardona
Ashlyn Sahay
Eileen Willis
Danielle Ni Chroinin
Danielle Ni Chroinin
author_sort Sarah Younan
collection DOAJ
description BackgroundThe importance of advance care planning (ACP) has been highlighted by the advent of life-threatening COVID-19. Anecdotal evidence suggests changes in implementation of policies and procedures is needed to support uptake of ACPs. We investigated the barriers and enablers of ACP in the COVID-19 context and identify recommendations to facilitate ACP, to inform future policy and practice.MethodsWe adopted the WHO recommendation of using rapid reviews for the production of actionable evidence for this study. We searched PUBMED from January 2020 to April 2021. All study designs including commentaries were included that focused on ACPs during COVID-19. Preprints/unpublished papers and Non-English language articles were excluded. Titles and abstracts were screened, full-texts were reviewed, and discrepancies resolved by discussion until consensus.ResultsFrom amongst 343 papers screened, 123 underwent full-text review. In total, 74 papers were included, comprising commentaries (39) and primary research studies covering cohorts, reviews, case studies, and cross-sectional designs (35). The various study types and settings such as hospitals, outpatient services, aged care and community indicated widespread interest in accelerating ACP documentation to facilitate management decisions and care which is unwanted/not aligned with goals. Enablers of ACP included targeted public awareness, availability of telehealth, easy access to online tools and adopting person-centered approach, respectful of patient autonomy and values. The emerging barriers were uncertainty regarding clinical outcomes, cultural and communication difficulties, barriers associated with legal and ethical considerations, infection control restrictions, lack of time, and limited resources and support systems.ConclusionThe pandemic has provided opportunities for rapid implementation of ACP in creative ways to circumvent social distancing restrictions and high demand for health services. This review suggests the pandemic has provided some impetus to drive adaptable ACP conversations at individual, local, and international levels, affording an opportunity for longer term improvements in ACP practice and patient care. The enablers of ACP and the accelerated adoption evident here will hopefully continue to be part of everyday practice, with or without the pandemic.
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spelling doaj.art-6143e360af4b4946a15b1263de50558f2023-09-18T05:49:31ZengFrontiers Media S.A.Frontiers in Health Services2813-01462023-09-01310.3389/frhs.2023.12424131242413Advanced care planning in the early phase of COVID-19: a rapid review of the practice and policy lessons learnedSarah Younan0Magnolia Cardona1Magnolia Cardona2Ashlyn Sahay3Eileen Willis4Danielle Ni Chroinin5Danielle Ni Chroinin6Department of Geriatric Medicine, Liverpool Hospital, Sydney, NSW, AustraliaInstitute for Evidence Based Healthcare, Bond University, Gold Coast, QLD, AustraliaInstitute for Evidence Based Healthcare, Bond University, Gold Coast, QLD, AustraliaSchool of Nursing, Midwifery and Social Sciences, Central Queensland University, Mackay, QLD, AustraliaSchool of Nursing, Midwifery and Social Sciences, Central Queensland University, Mackay, QLD, AustraliaDepartment of Geriatric Medicine, Liverpool Hospital, Sydney, NSW, AustraliaSouth Western Sydney Clinical School, UNSW, Sydney, NSW, AustraliaBackgroundThe importance of advance care planning (ACP) has been highlighted by the advent of life-threatening COVID-19. Anecdotal evidence suggests changes in implementation of policies and procedures is needed to support uptake of ACPs. We investigated the barriers and enablers of ACP in the COVID-19 context and identify recommendations to facilitate ACP, to inform future policy and practice.MethodsWe adopted the WHO recommendation of using rapid reviews for the production of actionable evidence for this study. We searched PUBMED from January 2020 to April 2021. All study designs including commentaries were included that focused on ACPs during COVID-19. Preprints/unpublished papers and Non-English language articles were excluded. Titles and abstracts were screened, full-texts were reviewed, and discrepancies resolved by discussion until consensus.ResultsFrom amongst 343 papers screened, 123 underwent full-text review. In total, 74 papers were included, comprising commentaries (39) and primary research studies covering cohorts, reviews, case studies, and cross-sectional designs (35). The various study types and settings such as hospitals, outpatient services, aged care and community indicated widespread interest in accelerating ACP documentation to facilitate management decisions and care which is unwanted/not aligned with goals. Enablers of ACP included targeted public awareness, availability of telehealth, easy access to online tools and adopting person-centered approach, respectful of patient autonomy and values. The emerging barriers were uncertainty regarding clinical outcomes, cultural and communication difficulties, barriers associated with legal and ethical considerations, infection control restrictions, lack of time, and limited resources and support systems.ConclusionThe pandemic has provided opportunities for rapid implementation of ACP in creative ways to circumvent social distancing restrictions and high demand for health services. This review suggests the pandemic has provided some impetus to drive adaptable ACP conversations at individual, local, and international levels, affording an opportunity for longer term improvements in ACP practice and patient care. The enablers of ACP and the accelerated adoption evident here will hopefully continue to be part of everyday practice, with or without the pandemic.https://www.frontiersin.org/articles/10.3389/frhs.2023.1242413/fullCOVID-19advance care planningpolicyrapid reviewbarriersenablers
spellingShingle Sarah Younan
Magnolia Cardona
Magnolia Cardona
Ashlyn Sahay
Eileen Willis
Danielle Ni Chroinin
Danielle Ni Chroinin
Advanced care planning in the early phase of COVID-19: a rapid review of the practice and policy lessons learned
Frontiers in Health Services
COVID-19
advance care planning
policy
rapid review
barriers
enablers
title Advanced care planning in the early phase of COVID-19: a rapid review of the practice and policy lessons learned
title_full Advanced care planning in the early phase of COVID-19: a rapid review of the practice and policy lessons learned
title_fullStr Advanced care planning in the early phase of COVID-19: a rapid review of the practice and policy lessons learned
title_full_unstemmed Advanced care planning in the early phase of COVID-19: a rapid review of the practice and policy lessons learned
title_short Advanced care planning in the early phase of COVID-19: a rapid review of the practice and policy lessons learned
title_sort advanced care planning in the early phase of covid 19 a rapid review of the practice and policy lessons learned
topic COVID-19
advance care planning
policy
rapid review
barriers
enablers
url https://www.frontiersin.org/articles/10.3389/frhs.2023.1242413/full
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