Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare

The aim of this paper is to analyze the announcement of a renal fetal disease, this announcement activity being located at the joint between the accompaniment experience of doctors and the "families medical working" (Waissman, 1995). Following an investigation conducted around semi-structu...

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Main Authors: Séverine Colinet, Céline Avenel
Format: Article
Language:fra
Published: Presses universitaires de la Méditerranée
Series:Éducation et Socialisation
Subjects:
Online Access:https://journals.openedition.org/edso/2146
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author Séverine Colinet
Céline Avenel
author_facet Séverine Colinet
Céline Avenel
author_sort Séverine Colinet
collection DOAJ
description The aim of this paper is to analyze the announcement of a renal fetal disease, this announcement activity being located at the joint between the accompaniment experience of doctors and the "families medical working" (Waissman, 1995). Following an investigation conducted around semi-structured interviews with doctors (32) and couples (30), our results show that resources combining care actions or activities and educational actions or activities reduce the feeling of threat for the patients, and also for the couples during the announcement process. Through the analysis of therapeutic education systems and parental meetings, we discuss not only the need to take into account the changes in the social role of the couple in family parent-caregiver but also the interest of including a collective approach in the announcement accompaniment process.
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spelling doaj.art-619de4b121a24d879bf2b5293f89a8a92024-02-14T13:37:05ZfraPresses universitaires de la MéditerranéeÉducation et Socialisation2271-60924410.4000/edso.2146Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rareSéverine ColinetCéline AvenelThe aim of this paper is to analyze the announcement of a renal fetal disease, this announcement activity being located at the joint between the accompaniment experience of doctors and the "families medical working" (Waissman, 1995). Following an investigation conducted around semi-structured interviews with doctors (32) and couples (30), our results show that resources combining care actions or activities and educational actions or activities reduce the feeling of threat for the patients, and also for the couples during the announcement process. Through the analysis of therapeutic education systems and parental meetings, we discuss not only the need to take into account the changes in the social role of the couple in family parent-caregiver but also the interest of including a collective approach in the announcement accompaniment process.https://journals.openedition.org/edso/2146experienceriskhealth skillsexpert knowledgetherapeutic education.Announcement activity
spellingShingle Séverine Colinet
Céline Avenel
Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare
Éducation et Socialisation
experience
risk
health skills
expert knowledge
therapeutic education.
Announcement activity
title Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare
title_full Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare
title_fullStr Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare
title_full_unstemmed Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare
title_short Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare
title_sort vecus croises de medecins et de patients le cas de l annonce diagnostique de la maladie rare
topic experience
risk
health skills
expert knowledge
therapeutic education.
Announcement activity
url https://journals.openedition.org/edso/2146
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