Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare
The aim of this paper is to analyze the announcement of a renal fetal disease, this announcement activity being located at the joint between the accompaniment experience of doctors and the "families medical working" (Waissman, 1995). Following an investigation conducted around semi-structu...
Main Authors: | , |
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Format: | Article |
Language: | fra |
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Presses universitaires de la Méditerranée
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Series: | Éducation et Socialisation |
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Online Access: | https://journals.openedition.org/edso/2146 |
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author | Séverine Colinet Céline Avenel |
author_facet | Séverine Colinet Céline Avenel |
author_sort | Séverine Colinet |
collection | DOAJ |
description | The aim of this paper is to analyze the announcement of a renal fetal disease, this announcement activity being located at the joint between the accompaniment experience of doctors and the "families medical working" (Waissman, 1995). Following an investigation conducted around semi-structured interviews with doctors (32) and couples (30), our results show that resources combining care actions or activities and educational actions or activities reduce the feeling of threat for the patients, and also for the couples during the announcement process. Through the analysis of therapeutic education systems and parental meetings, we discuss not only the need to take into account the changes in the social role of the couple in family parent-caregiver but also the interest of including a collective approach in the announcement accompaniment process. |
first_indexed | 2024-03-08T01:37:28Z |
format | Article |
id | doaj.art-619de4b121a24d879bf2b5293f89a8a9 |
institution | Directory Open Access Journal |
issn | 2271-6092 |
language | fra |
last_indexed | 2024-03-08T01:37:28Z |
publisher | Presses universitaires de la Méditerranée |
record_format | Article |
series | Éducation et Socialisation |
spelling | doaj.art-619de4b121a24d879bf2b5293f89a8a92024-02-14T13:37:05ZfraPresses universitaires de la MéditerranéeÉducation et Socialisation2271-60924410.4000/edso.2146Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rareSéverine ColinetCéline AvenelThe aim of this paper is to analyze the announcement of a renal fetal disease, this announcement activity being located at the joint between the accompaniment experience of doctors and the "families medical working" (Waissman, 1995). Following an investigation conducted around semi-structured interviews with doctors (32) and couples (30), our results show that resources combining care actions or activities and educational actions or activities reduce the feeling of threat for the patients, and also for the couples during the announcement process. Through the analysis of therapeutic education systems and parental meetings, we discuss not only the need to take into account the changes in the social role of the couple in family parent-caregiver but also the interest of including a collective approach in the announcement accompaniment process.https://journals.openedition.org/edso/2146experienceriskhealth skillsexpert knowledgetherapeutic education.Announcement activity |
spellingShingle | Séverine Colinet Céline Avenel Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare Éducation et Socialisation experience risk health skills expert knowledge therapeutic education. Announcement activity |
title | Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare |
title_full | Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare |
title_fullStr | Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare |
title_full_unstemmed | Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare |
title_short | Vécus croisés de médecins et de patients. Le cas de l’annonce diagnostique de la maladie rare |
title_sort | vecus croises de medecins et de patients le cas de l annonce diagnostique de la maladie rare |
topic | experience risk health skills expert knowledge therapeutic education. Announcement activity |
url | https://journals.openedition.org/edso/2146 |
work_keys_str_mv | AT severinecolinet vecuscroisesdemedecinsetdepatientslecasdelannoncediagnostiquedelamaladierare AT celineavenel vecuscroisesdemedecinsetdepatientslecasdelannoncediagnostiquedelamaladierare |