Informing mHealth and Web-Based Eating Disorder Interventions: Combining Lived Experience Perspectives With Design Thinking Approaches

BackgroundApp-based interventions designed to prevent and treat eating disorders have considerable potential to overcome known barriers to treatment seeking. Existing apps have shown efficacy in terms of symptom reduction; however, uptake and retention issues are common. To e...

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Main Authors: Hannah K Jarman, Siân A McLean, Rachel Rodgers, Matthew Fuller-Tyszkiewicz, Susan Paxton, Beth O'Gorman, Emily Harris, Adrian Shatte, Katie Bishop, Tahlia Baumann, Danielle Mahoney, Melissa-Claire Daugelat, Zali Yager
Format: Article
Language:English
Published: JMIR Publications 2022-10-01
Series:JMIR Formative Research
Online Access:https://formative.jmir.org/2022/10/e38387
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author Hannah K Jarman
Siân A McLean
Rachel Rodgers
Matthew Fuller-Tyszkiewicz
Susan Paxton
Beth O'Gorman
Emily Harris
Adrian Shatte
Katie Bishop
Tahlia Baumann
Danielle Mahoney
Melissa-Claire Daugelat
Zali Yager
author_facet Hannah K Jarman
Siân A McLean
Rachel Rodgers
Matthew Fuller-Tyszkiewicz
Susan Paxton
Beth O'Gorman
Emily Harris
Adrian Shatte
Katie Bishop
Tahlia Baumann
Danielle Mahoney
Melissa-Claire Daugelat
Zali Yager
author_sort Hannah K Jarman
collection DOAJ
description BackgroundApp-based interventions designed to prevent and treat eating disorders have considerable potential to overcome known barriers to treatment seeking. Existing apps have shown efficacy in terms of symptom reduction; however, uptake and retention issues are common. To ensure that apps meet the needs and preferences of those for whom they were designed, it is critical to understand the lived experience of potential users and involve them in the process of design, development, and delivery. However, few app-based interventions are pretested on and co-designed with end users before randomized controlled trials. ObjectiveTo address the issue, this study used a highly novel design thinking approach to provide the context and a lived experience perspective of the end user, thus allowing for a deeper level of understanding. MethodsIn total, 7 young women (mean age 25.83, SD 5.34, range 21-33 years) who self-identified as having a history of body image issues or eating disorders were recruited. Participants were interviewed about their lived experience of body image and eating disorders and reported their needs and preferences for app-based eating disorder interventions. Traditional (thematic analysis) and novel (empathy mapping; visually depicting and empathizing with the user’s personal experience) analyses were performed, providing a lived experience perspective of eating disorders and identifying the needs and preferences of this population in relation to app-based interventions for eating disorders. Key challenges and opportunities for app-based eating disorder interventions were also identified. ResultsFindings highlighted the importance of understanding and identifying problematic eating disorder symptoms for the user, helpful practices for recovery that identify personal values and goals, the role of social support in facilitating hope, and aspects of usability to promote continued engagement and recovery. ConclusionsPractical guidance and recommendations are described for those developing app-based eating disorder interventions. These findings have the potential to inform practices to enhance participant uptake and retention in the context of app-based interventions for this population.
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spelling doaj.art-634a01f0f1e2408793982c3e8822e00d2023-08-28T23:21:12ZengJMIR PublicationsJMIR Formative Research2561-326X2022-10-01610e3838710.2196/38387Informing mHealth and Web-Based Eating Disorder Interventions: Combining Lived Experience Perspectives With Design Thinking ApproachesHannah K Jarmanhttps://orcid.org/0000-0001-8225-4511Siân A McLeanhttps://orcid.org/0000-0002-4273-2037Rachel Rodgershttps://orcid.org/0000-0002-2582-4220Matthew Fuller-Tyszkiewiczhttps://orcid.org/0000-0003-1145-6057Susan Paxtonhttps://orcid.org/0000-0002-8486-1996Beth O'Gormanhttps://orcid.org/0000-0002-3783-715XEmily Harrishttps://orcid.org/0000-0003-1777-083XAdrian Shattehttps://orcid.org/0000-0002-6225-9697Katie Bishophttps://orcid.org/0000-0001-9252-5653Tahlia Baumannhttps://orcid.org/0000-0002-7774-3019Danielle Mahoneyhttps://orcid.org/0000-0002-6300-6827Melissa-Claire Daugelathttps://orcid.org/0000-0003-3772-4478Zali Yagerhttps://orcid.org/0000-0002-2503-7374 BackgroundApp-based interventions designed to prevent and treat eating disorders have considerable potential to overcome known barriers to treatment seeking. Existing apps have shown efficacy in terms of symptom reduction; however, uptake and retention issues are common. To ensure that apps meet the needs and preferences of those for whom they were designed, it is critical to understand the lived experience of potential users and involve them in the process of design, development, and delivery. However, few app-based interventions are pretested on and co-designed with end users before randomized controlled trials. ObjectiveTo address the issue, this study used a highly novel design thinking approach to provide the context and a lived experience perspective of the end user, thus allowing for a deeper level of understanding. MethodsIn total, 7 young women (mean age 25.83, SD 5.34, range 21-33 years) who self-identified as having a history of body image issues or eating disorders were recruited. Participants were interviewed about their lived experience of body image and eating disorders and reported their needs and preferences for app-based eating disorder interventions. Traditional (thematic analysis) and novel (empathy mapping; visually depicting and empathizing with the user’s personal experience) analyses were performed, providing a lived experience perspective of eating disorders and identifying the needs and preferences of this population in relation to app-based interventions for eating disorders. Key challenges and opportunities for app-based eating disorder interventions were also identified. ResultsFindings highlighted the importance of understanding and identifying problematic eating disorder symptoms for the user, helpful practices for recovery that identify personal values and goals, the role of social support in facilitating hope, and aspects of usability to promote continued engagement and recovery. ConclusionsPractical guidance and recommendations are described for those developing app-based eating disorder interventions. These findings have the potential to inform practices to enhance participant uptake and retention in the context of app-based interventions for this population.https://formative.jmir.org/2022/10/e38387
spellingShingle Hannah K Jarman
Siân A McLean
Rachel Rodgers
Matthew Fuller-Tyszkiewicz
Susan Paxton
Beth O'Gorman
Emily Harris
Adrian Shatte
Katie Bishop
Tahlia Baumann
Danielle Mahoney
Melissa-Claire Daugelat
Zali Yager
Informing mHealth and Web-Based Eating Disorder Interventions: Combining Lived Experience Perspectives With Design Thinking Approaches
JMIR Formative Research
title Informing mHealth and Web-Based Eating Disorder Interventions: Combining Lived Experience Perspectives With Design Thinking Approaches
title_full Informing mHealth and Web-Based Eating Disorder Interventions: Combining Lived Experience Perspectives With Design Thinking Approaches
title_fullStr Informing mHealth and Web-Based Eating Disorder Interventions: Combining Lived Experience Perspectives With Design Thinking Approaches
title_full_unstemmed Informing mHealth and Web-Based Eating Disorder Interventions: Combining Lived Experience Perspectives With Design Thinking Approaches
title_short Informing mHealth and Web-Based Eating Disorder Interventions: Combining Lived Experience Perspectives With Design Thinking Approaches
title_sort informing mhealth and web based eating disorder interventions combining lived experience perspectives with design thinking approaches
url https://formative.jmir.org/2022/10/e38387
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