Experiences of persons with multiple sclerosis with rehabilitation—a qualitative interview study
Abstract Background Managing multiple sclerosis (MS) includes different treatment approaches. Rehabilitation is a key strategy in MS for improving functioning, activity and participation. As part of a larger study on overall patient experiences with different treatment approaches, this study aims to...
| Main Authors: | , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2022-06-01
|
| Series: | BMC Health Services Research |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12913-022-08150-8 |
| _version_ | 1818207304421474304 |
|---|---|
| author | Donya Ghaidar Anna Sippel Karin Riemann-Lorenz Christopher Kofahl Rebecca Morrison Ingo Kleiter Stephan Schmidt Christian Dettmers Holger Schulz Christoph Heesen |
| author_facet | Donya Ghaidar Anna Sippel Karin Riemann-Lorenz Christopher Kofahl Rebecca Morrison Ingo Kleiter Stephan Schmidt Christian Dettmers Holger Schulz Christoph Heesen |
| author_sort | Donya Ghaidar |
| collection | DOAJ |
| description | Abstract Background Managing multiple sclerosis (MS) includes different treatment approaches. Rehabilitation is a key strategy in MS for improving functioning, activity and participation. As part of a larger study on overall patient experiences with different treatment approaches, this study aims to give an overview of different patients’ experiences and perspectives on inpatient rehabilitation in MS. Methods We conducted problem-centered interviews in 50 persons with MS in Germany, of whom most had relapsing–remitting MS. We used the maximum variation sampling method during recruitment. Data were analyzed thematically. Results As a result of the analysis, three major themes were identified: 1) factors contributing to the decision-making concerning rehabilitation, 2) experience with the rehabilitation setting, 3) benefits of rehabilitation treatments. The treating physicians’ attitude had a major impact on the decision to either opt for rehabilitation or not. Setting goals prior to rehabilitation was given a high priority. Exchanging experiences with other persons with MS presented a major benefit from rehabilitation while for some being separated from regular daily life resulted in a more ambiguous attitude ranging from appreciation of escaping daily hassles to substantial behavioral change management. Conclusion Patients reported various experiences in the process of decision-making with regard to rehabilitation. Physicians´ advice, goal setting and the selection of the most suitable rehabilitation clinic were considered most relevant. |
| first_indexed | 2024-12-12T04:26:48Z |
| format | Article |
| id | doaj.art-6450b614d353463fb54e4d8bfae7e128 |
| institution | Directory Open Access Journal |
| issn | 1472-6963 |
| language | English |
| last_indexed | 2024-12-12T04:26:48Z |
| publishDate | 2022-06-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Health Services Research |
| spelling | doaj.art-6450b614d353463fb54e4d8bfae7e1282022-12-22T00:38:11ZengBMCBMC Health Services Research1472-69632022-06-0122111110.1186/s12913-022-08150-8Experiences of persons with multiple sclerosis with rehabilitation—a qualitative interview studyDonya Ghaidar0Anna Sippel1Karin Riemann-Lorenz2Christopher Kofahl3Rebecca Morrison4Ingo Kleiter5Stephan Schmidt6Christian Dettmers7Holger Schulz8Christoph Heesen9Institute of Neuroimmunology and Multiple Sclerosis (INIMS), University Medical Center Hamburg-Eppendorf (UKE)Institute of Neuroimmunology and Multiple Sclerosis (INIMS), University Medical Center Hamburg-Eppendorf (UKE)Institute of Neuroimmunology and Multiple Sclerosis (INIMS), University Medical Center Hamburg-Eppendorf (UKE)Institute of Medical Sociology, University Medical Center Hamburg-Eppendorf (UKE)Independent ResearcherMarianne-Strauß-Klinik, Behandlungszentrum Kempfenhausen für Multiple Sklerose Kranke gGmbHGesundheitszentrum St. Johannes HospitalKliniken SchmiederDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf (UKE)Institute of Neuroimmunology and Multiple Sclerosis (INIMS), University Medical Center Hamburg-Eppendorf (UKE)Abstract Background Managing multiple sclerosis (MS) includes different treatment approaches. Rehabilitation is a key strategy in MS for improving functioning, activity and participation. As part of a larger study on overall patient experiences with different treatment approaches, this study aims to give an overview of different patients’ experiences and perspectives on inpatient rehabilitation in MS. Methods We conducted problem-centered interviews in 50 persons with MS in Germany, of whom most had relapsing–remitting MS. We used the maximum variation sampling method during recruitment. Data were analyzed thematically. Results As a result of the analysis, three major themes were identified: 1) factors contributing to the decision-making concerning rehabilitation, 2) experience with the rehabilitation setting, 3) benefits of rehabilitation treatments. The treating physicians’ attitude had a major impact on the decision to either opt for rehabilitation or not. Setting goals prior to rehabilitation was given a high priority. Exchanging experiences with other persons with MS presented a major benefit from rehabilitation while for some being separated from regular daily life resulted in a more ambiguous attitude ranging from appreciation of escaping daily hassles to substantial behavioral change management. Conclusion Patients reported various experiences in the process of decision-making with regard to rehabilitation. Physicians´ advice, goal setting and the selection of the most suitable rehabilitation clinic were considered most relevant.https://doi.org/10.1186/s12913-022-08150-8Multiple sclerosisDecision-makingPatient experiencesRehabilitationQualitative studyThematic analysis |
| spellingShingle | Donya Ghaidar Anna Sippel Karin Riemann-Lorenz Christopher Kofahl Rebecca Morrison Ingo Kleiter Stephan Schmidt Christian Dettmers Holger Schulz Christoph Heesen Experiences of persons with multiple sclerosis with rehabilitation—a qualitative interview study BMC Health Services Research Multiple sclerosis Decision-making Patient experiences Rehabilitation Qualitative study Thematic analysis |
| title | Experiences of persons with multiple sclerosis with rehabilitation—a qualitative interview study |
| title_full | Experiences of persons with multiple sclerosis with rehabilitation—a qualitative interview study |
| title_fullStr | Experiences of persons with multiple sclerosis with rehabilitation—a qualitative interview study |
| title_full_unstemmed | Experiences of persons with multiple sclerosis with rehabilitation—a qualitative interview study |
| title_short | Experiences of persons with multiple sclerosis with rehabilitation—a qualitative interview study |
| title_sort | experiences of persons with multiple sclerosis with rehabilitation a qualitative interview study |
| topic | Multiple sclerosis Decision-making Patient experiences Rehabilitation Qualitative study Thematic analysis |
| url | https://doi.org/10.1186/s12913-022-08150-8 |
| work_keys_str_mv | AT donyaghaidar experiencesofpersonswithmultiplesclerosiswithrehabilitationaqualitativeinterviewstudy AT annasippel experiencesofpersonswithmultiplesclerosiswithrehabilitationaqualitativeinterviewstudy AT karinriemannlorenz experiencesofpersonswithmultiplesclerosiswithrehabilitationaqualitativeinterviewstudy AT christopherkofahl experiencesofpersonswithmultiplesclerosiswithrehabilitationaqualitativeinterviewstudy AT rebeccamorrison experiencesofpersonswithmultiplesclerosiswithrehabilitationaqualitativeinterviewstudy AT ingokleiter experiencesofpersonswithmultiplesclerosiswithrehabilitationaqualitativeinterviewstudy AT stephanschmidt experiencesofpersonswithmultiplesclerosiswithrehabilitationaqualitativeinterviewstudy AT christiandettmers experiencesofpersonswithmultiplesclerosiswithrehabilitationaqualitativeinterviewstudy AT holgerschulz experiencesofpersonswithmultiplesclerosiswithrehabilitationaqualitativeinterviewstudy AT christophheesen experiencesofpersonswithmultiplesclerosiswithrehabilitationaqualitativeinterviewstudy |