Perceptions of patients with end-stage kidney disease (ESKD) and their informal caregivers on palliative care as a treatment option: a qualitative study
Abstract Background Palliative care is increasingly becoming an accepted treatment choice for many individuals diagnosed with end-stage kidney disease (ESKD). Yet, its utilisation is non-existent in many lower- and middle-income countries (LMICs). This study explored the perceptions of individuals w...
| Main Authors: | , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2020-08-01
|
| Series: | BMC Palliative Care |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s12904-020-00640-y |
| _version_ | 1818148690225790976 |
|---|---|
| author | Catherine Sarfo-Walters Edward Appiah Boateng |
| author_facet | Catherine Sarfo-Walters Edward Appiah Boateng |
| author_sort | Catherine Sarfo-Walters |
| collection | DOAJ |
| description | Abstract Background Palliative care is increasingly becoming an accepted treatment choice for many individuals diagnosed with end-stage kidney disease (ESKD). Yet, its utilisation is non-existent in many lower- and middle-income countries (LMICs). This study explored the perceptions of individuals with ESKD and their informal caregivers on palliative care as a treatment option for the disease in Ghana. Methods This was a phenomenological study, with an in-depth analysis of data collected from nine individuals with ESKD and six informal caregivers through individual, face-to-face semi-structured interviews. The study was conducted in two renal centres within the Kumasi metropolis, Ghana among individuals with ESKD seeking care from both renal centres and their informal caregivers. Results Three main themes were derived from this study – motivation for initiating haemodialysis, facing realities of haemodialysis, and considering palliative care. Participants felt that haemodialysis (HD) was not meeting their health expectations and demonstrated a general willingness to utilise palliative care if it would reduce suffering. Conclusions This study has shown that individuals with ESKD or their informal caregivers would consider palliative care services, if available. It paves the way for discussions about palliative care for ESKD to begin across renal centres within Ghana and other similar settings. Exploring perspectives of clinicians in such settings could inform strategies on how to implement palliative care for ESKD management in such settings. |
| first_indexed | 2024-12-11T12:55:09Z |
| format | Article |
| id | doaj.art-656961650a464a7c8896334766e36ccd |
| institution | Directory Open Access Journal |
| issn | 1472-684X |
| language | English |
| last_indexed | 2024-12-11T12:55:09Z |
| publishDate | 2020-08-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Palliative Care |
| spelling | doaj.art-656961650a464a7c8896334766e36ccd2022-12-22T01:06:36ZengBMCBMC Palliative Care1472-684X2020-08-011911810.1186/s12904-020-00640-yPerceptions of patients with end-stage kidney disease (ESKD) and their informal caregivers on palliative care as a treatment option: a qualitative studyCatherine Sarfo-Walters0Edward Appiah Boateng1Department of Nursing, Garden City University CollegeDepartment of Nursing, Kwame Nkrumah University of Science and TechnologyAbstract Background Palliative care is increasingly becoming an accepted treatment choice for many individuals diagnosed with end-stage kidney disease (ESKD). Yet, its utilisation is non-existent in many lower- and middle-income countries (LMICs). This study explored the perceptions of individuals with ESKD and their informal caregivers on palliative care as a treatment option for the disease in Ghana. Methods This was a phenomenological study, with an in-depth analysis of data collected from nine individuals with ESKD and six informal caregivers through individual, face-to-face semi-structured interviews. The study was conducted in two renal centres within the Kumasi metropolis, Ghana among individuals with ESKD seeking care from both renal centres and their informal caregivers. Results Three main themes were derived from this study – motivation for initiating haemodialysis, facing realities of haemodialysis, and considering palliative care. Participants felt that haemodialysis (HD) was not meeting their health expectations and demonstrated a general willingness to utilise palliative care if it would reduce suffering. Conclusions This study has shown that individuals with ESKD or their informal caregivers would consider palliative care services, if available. It paves the way for discussions about palliative care for ESKD to begin across renal centres within Ghana and other similar settings. Exploring perspectives of clinicians in such settings could inform strategies on how to implement palliative care for ESKD management in such settings.http://link.springer.com/article/10.1186/s12904-020-00640-yEnd-stage kidney diseasePalliative careConservative managementHaemodialysisGhanaAfrica |
| spellingShingle | Catherine Sarfo-Walters Edward Appiah Boateng Perceptions of patients with end-stage kidney disease (ESKD) and their informal caregivers on palliative care as a treatment option: a qualitative study BMC Palliative Care End-stage kidney disease Palliative care Conservative management Haemodialysis Ghana Africa |
| title | Perceptions of patients with end-stage kidney disease (ESKD) and their informal caregivers on palliative care as a treatment option: a qualitative study |
| title_full | Perceptions of patients with end-stage kidney disease (ESKD) and their informal caregivers on palliative care as a treatment option: a qualitative study |
| title_fullStr | Perceptions of patients with end-stage kidney disease (ESKD) and their informal caregivers on palliative care as a treatment option: a qualitative study |
| title_full_unstemmed | Perceptions of patients with end-stage kidney disease (ESKD) and their informal caregivers on palliative care as a treatment option: a qualitative study |
| title_short | Perceptions of patients with end-stage kidney disease (ESKD) and their informal caregivers on palliative care as a treatment option: a qualitative study |
| title_sort | perceptions of patients with end stage kidney disease eskd and their informal caregivers on palliative care as a treatment option a qualitative study |
| topic | End-stage kidney disease Palliative care Conservative management Haemodialysis Ghana Africa |
| url | http://link.springer.com/article/10.1186/s12904-020-00640-y |
| work_keys_str_mv | AT catherinesarfowalters perceptionsofpatientswithendstagekidneydiseaseeskdandtheirinformalcaregiversonpalliativecareasatreatmentoptionaqualitativestudy AT edwardappiahboateng perceptionsofpatientswithendstagekidneydiseaseeskdandtheirinformalcaregiversonpalliativecareasatreatmentoptionaqualitativestudy |