Youth engagement in mental health research: A systematic review
Abstract Introduction Patient engagement in youth mental health research has the potential to inform research on the interventions, services and policies that will benefit youth. At present, there is little evidence to guide mental health researchers on youth engagement. This systematic review aims...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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Wiley
2023-02-01
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| Series: | Health Expectations |
| Subjects: | |
| Online Access: | https://doi.org/10.1111/hex.13650 |
| _version_ | 1828057530217005056 |
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| author | Erin McCabe Mungunzul (Megan) Amarbayan Sarah Rabi Justino Mendoza Syeda Farwa Naqvi Kalpana Thapa Bajgain Jennifer D. Zwicker Maria Santana |
| author_facet | Erin McCabe Mungunzul (Megan) Amarbayan Sarah Rabi Justino Mendoza Syeda Farwa Naqvi Kalpana Thapa Bajgain Jennifer D. Zwicker Maria Santana |
| author_sort | Erin McCabe |
| collection | DOAJ |
| description | Abstract Introduction Patient engagement in youth mental health research has the potential to inform research on the interventions, services and policies that will benefit youth. At present, there is little evidence to guide mental health researchers on youth engagement. This systematic review aims to describe the impacts of youth engagement on mental health research and to summarize youth engagement in mental health research. Methods We searched the following databases: MEDLINE, EMBASE and PsycINFO, using a combination of subject headings, keywords and synonyms for the concepts ‘patient engagement’, ‘youth’ and ‘mental health’. Articles that described engaging youth in mental health research were included. Two reviewers performed the study selection. Study characteristics, research activities performed by youth, impacts of youth engagement, challenges, and facilitators to engagement and recommendations for youth engagement described by authors were extracted. Quality appraisal involved determining the level of engagement of youth and the stage(s) of research where youth were involved. Results The database search returned 2836 citations, 151 full‐text articles were screened and 16 articles, representing 14 studies, were selected for inclusion. Youth were involved at nearly all stages of the research cycle, in either advisory or co‐production roles. Youth engagement impacts included enhancing relevant research findings, data collection and analysis and dissemination to academic and stakeholder audiences. Both youth and academic researchers reported personal development across many domains. One negative impact reported was the increase in funding and resources needed for engagement. We produced a list of 35 recommendations under the headings of training, youth researcher composition, strategy, expectations, relationships, meeting approaches and engagement conditions. Conclusions This study provides an understanding of the impacts and recommendations of youth engagement in mental health research. The findings from this study may encourage researchers to engage youth in their mental health research and support youth engagement in funding applications. Patient and Public Contribution We consulted three youths with experience being engaged in mental health research about the review findings and the discussion. One youth designed a visual representation of the results and provided feedback on the manuscript. All youth's input informed the way the findings were presented and the focus of the discussion. |
| first_indexed | 2024-04-10T21:14:09Z |
| format | Article |
| id | doaj.art-657a14db2dd540578456a6ea8cadeef4 |
| institution | Directory Open Access Journal |
| issn | 1369-6513 1369-7625 |
| language | English |
| last_indexed | 2024-04-10T21:14:09Z |
| publishDate | 2023-02-01 |
| publisher | Wiley |
| record_format | Article |
| series | Health Expectations |
| spelling | doaj.art-657a14db2dd540578456a6ea8cadeef42023-01-20T13:33:07ZengWileyHealth Expectations1369-65131369-76252023-02-01261305010.1111/hex.13650Youth engagement in mental health research: A systematic reviewErin McCabe0Mungunzul (Megan) Amarbayan1Sarah Rabi2Justino Mendoza3Syeda Farwa Naqvi4Kalpana Thapa Bajgain5Jennifer D. Zwicker6Maria Santana7Department of Pediatrics, School of Public Policy University of Calgary Calgary Alberta CanadaDepartment of Medicine, School of Public Policy University of Calgary Calgary Alberta CanadaDepartment of Community Health Sciences University of Calgary Calgary Alberta CanadaDepartment of Biology, Faculty of Science and Technology Mount Royal University Calgary Alberta CanadaDepartment of Community Health Sciences University of Calgary Calgary Alberta CanadaDepartment of Community Health Sciences University of Calgary Calgary Alberta CanadaDepartment of Social Policy and Health, School of Public Policy University of Calgary Calgary Alberta CanadaDepartment of Pediatrics, Community Health Sciences University of Calgary Calgary Alberta CanadaAbstract Introduction Patient engagement in youth mental health research has the potential to inform research on the interventions, services and policies that will benefit youth. At present, there is little evidence to guide mental health researchers on youth engagement. This systematic review aims to describe the impacts of youth engagement on mental health research and to summarize youth engagement in mental health research. Methods We searched the following databases: MEDLINE, EMBASE and PsycINFO, using a combination of subject headings, keywords and synonyms for the concepts ‘patient engagement’, ‘youth’ and ‘mental health’. Articles that described engaging youth in mental health research were included. Two reviewers performed the study selection. Study characteristics, research activities performed by youth, impacts of youth engagement, challenges, and facilitators to engagement and recommendations for youth engagement described by authors were extracted. Quality appraisal involved determining the level of engagement of youth and the stage(s) of research where youth were involved. Results The database search returned 2836 citations, 151 full‐text articles were screened and 16 articles, representing 14 studies, were selected for inclusion. Youth were involved at nearly all stages of the research cycle, in either advisory or co‐production roles. Youth engagement impacts included enhancing relevant research findings, data collection and analysis and dissemination to academic and stakeholder audiences. Both youth and academic researchers reported personal development across many domains. One negative impact reported was the increase in funding and resources needed for engagement. We produced a list of 35 recommendations under the headings of training, youth researcher composition, strategy, expectations, relationships, meeting approaches and engagement conditions. Conclusions This study provides an understanding of the impacts and recommendations of youth engagement in mental health research. The findings from this study may encourage researchers to engage youth in their mental health research and support youth engagement in funding applications. Patient and Public Contribution We consulted three youths with experience being engaged in mental health research about the review findings and the discussion. One youth designed a visual representation of the results and provided feedback on the manuscript. All youth's input informed the way the findings were presented and the focus of the discussion.https://doi.org/10.1111/hex.13650co‐designcommunity‐based researchmental healthmental health servicespatient and public involvementpatient engagement |
| spellingShingle | Erin McCabe Mungunzul (Megan) Amarbayan Sarah Rabi Justino Mendoza Syeda Farwa Naqvi Kalpana Thapa Bajgain Jennifer D. Zwicker Maria Santana Youth engagement in mental health research: A systematic review Health Expectations co‐design community‐based research mental health mental health services patient and public involvement patient engagement |
| title | Youth engagement in mental health research: A systematic review |
| title_full | Youth engagement in mental health research: A systematic review |
| title_fullStr | Youth engagement in mental health research: A systematic review |
| title_full_unstemmed | Youth engagement in mental health research: A systematic review |
| title_short | Youth engagement in mental health research: A systematic review |
| title_sort | youth engagement in mental health research a systematic review |
| topic | co‐design community‐based research mental health mental health services patient and public involvement patient engagement |
| url | https://doi.org/10.1111/hex.13650 |
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