A review of paper-based advance care planning aids
Abstract Background Advance care planning (ACP) aids can help prepare patients, family members, and physicians for in-the-moment medical decision-making. We wished to describe the content and approach of paper-based ACP aids in order to characterize existing aids and inform the development of a new...
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| Format: | Article |
| Language: | English |
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BMC
2018-03-01
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| Series: | BMC Palliative Care |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s12904-018-0298-0 |
| _version_ | 1819144479800557568 |
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| author | John F. P. Bridges Thomas Lynch Anne L. R. Schuster Norah L. Crossnohere Katherine Clegg Smith Rebecca A. Aslakson |
| author_facet | John F. P. Bridges Thomas Lynch Anne L. R. Schuster Norah L. Crossnohere Katherine Clegg Smith Rebecca A. Aslakson |
| author_sort | John F. P. Bridges |
| collection | DOAJ |
| description | Abstract Background Advance care planning (ACP) aids can help prepare patients, family members, and physicians for in-the-moment medical decision-making. We wished to describe the content and approach of paper-based ACP aids in order to characterize existing aids and inform the development of a new ACP aid. Methods Paper-based ACP aids were identified through an environmental scan and screened for eligibility. ACP conceptual frameworks and data were gathered via stakeholder engagement and used to inform the coding framework that two investigators used to independently code each aid. A directed content analysis was conducted on these eligible aids. Aids were categorized through a deliberative process with an investigator abstracting general information for each aid. Results Fifteen aids met the eligibility criteria. They ranged in length from 6 to 78 pages with the average aid written at an eighth-grade reading level. The content analysis revealed that many aids encouraged choosing a surrogate decision maker and informed users about legal medical documents. Fewer than half of the aids facilitated patient clarification of values regarding quality of life issues. The authors identified and termed the following three categories of aids: informative; semi-action oriented; and action-oriented. It was often unclear whether patients contributed to the development or testing of the ACP aids reviewed. Conclusions Most existing paper-based ACP aids address legal matters such as completing an advance directive. Only a minority elicited patient values and it was unclear whether any were developed in partnership with patients. Future development of ACP aids should account for patient preferences with a goal of supporting in-the-moment medical decision-making. |
| first_indexed | 2024-12-22T12:42:48Z |
| format | Article |
| id | doaj.art-65b8b8a203f846eab3bb92b4b8bca25d |
| institution | Directory Open Access Journal |
| issn | 1472-684X |
| language | English |
| last_indexed | 2024-12-22T12:42:48Z |
| publishDate | 2018-03-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Palliative Care |
| spelling | doaj.art-65b8b8a203f846eab3bb92b4b8bca25d2022-12-21T18:25:23ZengBMCBMC Palliative Care1472-684X2018-03-011711910.1186/s12904-018-0298-0A review of paper-based advance care planning aidsJohn F. P. Bridges0Thomas Lynch1Anne L. R. Schuster2Norah L. Crossnohere3Katherine Clegg Smith4Rebecca A. Aslakson5Department of Health Policy and Management, The Johns Hopkins Bloomberg School of Public HealthDepartment of Anesthesiology and Critical Care Medicine, The Johns Hopkins School of MedicineDepartment of Health Policy and Management, The Johns Hopkins Bloomberg School of Public HealthDepartment of Health, Behavior and Society, The Johns Hopkins Bloomberg School of Public HealthDepartment of Health, Behavior and Society, The Johns Hopkins Bloomberg School of Public HealthDepartment of Anesthesiology and Critical Care Medicine, The Johns Hopkins School of MedicineAbstract Background Advance care planning (ACP) aids can help prepare patients, family members, and physicians for in-the-moment medical decision-making. We wished to describe the content and approach of paper-based ACP aids in order to characterize existing aids and inform the development of a new ACP aid. Methods Paper-based ACP aids were identified through an environmental scan and screened for eligibility. ACP conceptual frameworks and data were gathered via stakeholder engagement and used to inform the coding framework that two investigators used to independently code each aid. A directed content analysis was conducted on these eligible aids. Aids were categorized through a deliberative process with an investigator abstracting general information for each aid. Results Fifteen aids met the eligibility criteria. They ranged in length from 6 to 78 pages with the average aid written at an eighth-grade reading level. The content analysis revealed that many aids encouraged choosing a surrogate decision maker and informed users about legal medical documents. Fewer than half of the aids facilitated patient clarification of values regarding quality of life issues. The authors identified and termed the following three categories of aids: informative; semi-action oriented; and action-oriented. It was often unclear whether patients contributed to the development or testing of the ACP aids reviewed. Conclusions Most existing paper-based ACP aids address legal matters such as completing an advance directive. Only a minority elicited patient values and it was unclear whether any were developed in partnership with patients. Future development of ACP aids should account for patient preferences with a goal of supporting in-the-moment medical decision-making.http://link.springer.com/article/10.1186/s12904-018-0298-0Advance care planningPatient decision-makingPatient-centered careDecision aid |
| spellingShingle | John F. P. Bridges Thomas Lynch Anne L. R. Schuster Norah L. Crossnohere Katherine Clegg Smith Rebecca A. Aslakson A review of paper-based advance care planning aids BMC Palliative Care Advance care planning Patient decision-making Patient-centered care Decision aid |
| title | A review of paper-based advance care planning aids |
| title_full | A review of paper-based advance care planning aids |
| title_fullStr | A review of paper-based advance care planning aids |
| title_full_unstemmed | A review of paper-based advance care planning aids |
| title_short | A review of paper-based advance care planning aids |
| title_sort | review of paper based advance care planning aids |
| topic | Advance care planning Patient decision-making Patient-centered care Decision aid |
| url | http://link.springer.com/article/10.1186/s12904-018-0298-0 |
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