Measuring Older Peoples’ Experiences of Person-Centred Coordinated Care: Experience and Methodological Reflections from Applying a Patient Reported Experience Measure in SUSTAIN
Introduction: While several evaluation studies on (cost-)effectiveness of integrated care have been conducted in recent years, more insight is deemed necessary into integrated care from the perspective of service users. In the context of a European project on integrated care for older people living...
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| Format: | Article |
| Language: | English |
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Ubiquity Press
2021-07-01
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| Series: | International Journal of Integrated Care |
| Subjects: | |
| Online Access: | https://www.ijic.org/articles/5504 |
| _version_ | 1829479270684033024 |
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| author | Jillian Reynolds Erica Gadsby Mieke Rijken Annerieke Stoop Mireia Espallargues Helen M. Lloyd James Close Simone de Bruin |
| author_facet | Jillian Reynolds Erica Gadsby Mieke Rijken Annerieke Stoop Mireia Espallargues Helen M. Lloyd James Close Simone de Bruin |
| author_sort | Jillian Reynolds |
| collection | DOAJ |
| description | Introduction: While several evaluation studies on (cost-)effectiveness of integrated care have been conducted in recent years, more insight is deemed necessary into integrated care from the perspective of service users. In the context of a European project on integrated care for older people living at home (SUSTAIN), this paper shares the experience and methodological reflections from applying a Patient Reported Experience Measure (PREM) on person-centred coordinated care -the P3CEQ- among this population. Methods: A combination of quantitative and qualitative data and analysis methods was used to assess the usability and the quality of applying a PREM among older people presenting complex care needs, using the P3CEQ delivery in SUSTAIN as a case study. 228 service users completed the P3CEQ and nine SUSTAIN researchers participated in a consultation about their experience administering the questionnaire. P3CEQ scores were analysed quantitatively using principal component analysis and multilevel linear regression. P3CEQ open responses and researcher notes collected when administering the questionnaire were thematically analysed. Results: Service user inclusion was high and most P3CEQ items had low non-response rates. Quantitative analysis and researcher experience indicate the relevance of face-to-face administration for obtaining such an amount of data in this population group. The presence of a carer increased inclusion of more vulnerable respondents, such as the cognitively impaired, but posed a challenge in data interpretation. Although several P3CEQ items were generally understood as intended by questionnaire developers, the analysis of open responses highlights how questions can lead to diverging and sometimes narrow interpretations by respondents. Cognitive impairment and a higher educational attainment were associated with lower levels of perceived person-centredness of care. Conclusion: This study shows essential preconditions to meaningfully collect and analyse PREM data on older peoples’ experiences with integrated care: face-to-face administration away from care providers, collection of reasons for non-response and open comments providing nuances to answers, and multilevel modelling taking into account diversity in the target population. Several areas of improvement for future PREM use in this population have been identified: use of administration and coding guides, inclusion of clear and easy to understand definitions and examples illustrating what questions do and do not mean, measures of the expectations of person-centred coordinated care, and procedures ensuring sound ethical research. These methodological learnings can enhance future evaluation of integrated care from a service user perspective. |
| first_indexed | 2024-12-14T17:34:08Z |
| format | Article |
| id | doaj.art-65e18d746bdd43f8b160892535ebee3c |
| institution | Directory Open Access Journal |
| issn | 1568-4156 |
| language | English |
| last_indexed | 2024-12-14T17:34:08Z |
| publishDate | 2021-07-01 |
| publisher | Ubiquity Press |
| record_format | Article |
| series | International Journal of Integrated Care |
| spelling | doaj.art-65e18d746bdd43f8b160892535ebee3c2022-12-21T22:53:03ZengUbiquity PressInternational Journal of Integrated Care1568-41562021-07-0121310.5334/ijic.55045155Measuring Older Peoples’ Experiences of Person-Centred Coordinated Care: Experience and Methodological Reflections from Applying a Patient Reported Experience Measure in SUSTAINJillian Reynolds0Erica Gadsby1Mieke Rijken2Annerieke Stoop3Mireia Espallargues4Helen M. Lloyd5James Close6Simone de Bruin7Research Fellow, Agency for Health Quality and Assessment of Catalonia (AQuAS), Department of Health of the Catalan Government, BarcelonaSenior Research Fellow, Centre for Health Services Studies, University of Kent, CanterburySenior Researcher, Netherlands Institute for Health Services Research (Nivel), Utrecht, NL; Professor, Department of Health and Social Management, University of Eastern Finland, KuopioResearcher, National Institute for Public Health and the Environment, Bilthoven; Amsterdam Public Health research institute, Amsterdam UMC – VU University Amsterdam, Amsterdam; Scientific Centre for Transformation in Care and Welfare (Tranzo), University of Tilburg, TilburgScientific Coordinator; Agency for Health Quality and Assessment of Catalonia (AQuAS), Department of Health of the Catalan Government, Barcelona; Spanish Health Services Research on Chronic Patients Network (REDISSEC), BarcelonaAssociate Professor, School of Psychology, University of Plymouth, PlymouthSenior Research Fellow, School of Medicine & Dentistry, University of Plymouth, PlymouthSenior researcher, National Institute for Public Health and the Environment, Centre for Nutrition Prevention and Health Services, BilthovenIntroduction: While several evaluation studies on (cost-)effectiveness of integrated care have been conducted in recent years, more insight is deemed necessary into integrated care from the perspective of service users. In the context of a European project on integrated care for older people living at home (SUSTAIN), this paper shares the experience and methodological reflections from applying a Patient Reported Experience Measure (PREM) on person-centred coordinated care -the P3CEQ- among this population. Methods: A combination of quantitative and qualitative data and analysis methods was used to assess the usability and the quality of applying a PREM among older people presenting complex care needs, using the P3CEQ delivery in SUSTAIN as a case study. 228 service users completed the P3CEQ and nine SUSTAIN researchers participated in a consultation about their experience administering the questionnaire. P3CEQ scores were analysed quantitatively using principal component analysis and multilevel linear regression. P3CEQ open responses and researcher notes collected when administering the questionnaire were thematically analysed. Results: Service user inclusion was high and most P3CEQ items had low non-response rates. Quantitative analysis and researcher experience indicate the relevance of face-to-face administration for obtaining such an amount of data in this population group. The presence of a carer increased inclusion of more vulnerable respondents, such as the cognitively impaired, but posed a challenge in data interpretation. Although several P3CEQ items were generally understood as intended by questionnaire developers, the analysis of open responses highlights how questions can lead to diverging and sometimes narrow interpretations by respondents. Cognitive impairment and a higher educational attainment were associated with lower levels of perceived person-centredness of care. Conclusion: This study shows essential preconditions to meaningfully collect and analyse PREM data on older peoples’ experiences with integrated care: face-to-face administration away from care providers, collection of reasons for non-response and open comments providing nuances to answers, and multilevel modelling taking into account diversity in the target population. Several areas of improvement for future PREM use in this population have been identified: use of administration and coding guides, inclusion of clear and easy to understand definitions and examples illustrating what questions do and do not mean, measures of the expectations of person-centred coordinated care, and procedures ensuring sound ethical research. These methodological learnings can enhance future evaluation of integrated care from a service user perspective.https://www.ijic.org/articles/5504patient reported experience measuresintegrated careolder peopleperson-centrednesscare coordinationdata qualitymethods |
| spellingShingle | Jillian Reynolds Erica Gadsby Mieke Rijken Annerieke Stoop Mireia Espallargues Helen M. Lloyd James Close Simone de Bruin Measuring Older Peoples’ Experiences of Person-Centred Coordinated Care: Experience and Methodological Reflections from Applying a Patient Reported Experience Measure in SUSTAIN International Journal of Integrated Care patient reported experience measures integrated care older people person-centredness care coordination data quality methods |
| title | Measuring Older Peoples’ Experiences of Person-Centred Coordinated Care: Experience and Methodological Reflections from Applying a Patient Reported Experience Measure in SUSTAIN |
| title_full | Measuring Older Peoples’ Experiences of Person-Centred Coordinated Care: Experience and Methodological Reflections from Applying a Patient Reported Experience Measure in SUSTAIN |
| title_fullStr | Measuring Older Peoples’ Experiences of Person-Centred Coordinated Care: Experience and Methodological Reflections from Applying a Patient Reported Experience Measure in SUSTAIN |
| title_full_unstemmed | Measuring Older Peoples’ Experiences of Person-Centred Coordinated Care: Experience and Methodological Reflections from Applying a Patient Reported Experience Measure in SUSTAIN |
| title_short | Measuring Older Peoples’ Experiences of Person-Centred Coordinated Care: Experience and Methodological Reflections from Applying a Patient Reported Experience Measure in SUSTAIN |
| title_sort | measuring older peoples experiences of person centred coordinated care experience and methodological reflections from applying a patient reported experience measure in sustain |
| topic | patient reported experience measures integrated care older people person-centredness care coordination data quality methods |
| url | https://www.ijic.org/articles/5504 |
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