Involving patients in checking the validity of the NHS shared record: a single practice pilot

Objective To assess how involved patients wish to be in the compilation of their NHS core clinical record, and to assess the accuracy of general practitioner (GP) produced summaries. Design, setting, method and participants In a Scottish urban practice of 6800 patients we compiled a core clinical su...

Full description

Bibliographic Details
Main Authors: Sally Al-Agilly, Ronald Neville, Heather Robb, Sam Riddell
Format: Article
Language:English
Published: BCS, The Chartered Institute for IT 2008-01-01
Series:Journal of Innovation in Health Informatics
Subjects:
Online Access:https://hijournal.bcs.org/index.php/jhi/article/view/661
_version_ 1811214461160128512
author Sally Al-Agilly
Ronald Neville
Heather Robb
Sam Riddell
author_facet Sally Al-Agilly
Ronald Neville
Heather Robb
Sam Riddell
author_sort Sally Al-Agilly
collection DOAJ
description Objective To assess how involved patients wish to be in the compilation of their NHS core clinical record, and to assess the accuracy of general practitioner (GP) produced summaries. Design, setting, method and participants In a Scottish urban practice of 6800 patients we compiled a core clinical summary based on historical paper and electronic records. We invited a 1 in 10 sample of our patients of all ages to request, view and checka copy of their core clinical record. We offered patients the chance to discuss and correct any inaccuracies in their core clinical summary by use of a response form, telephone or meeting. Results Out of 646 patients, 258 (40% of our sample) responded to the invitation to checktheir core clinical summary. Of those, 187 (72.5%) of these summaries were accurate according to patients. There were 89 inaccuracies reported by patients. Of these, 42 (47%) were of obvious clinical importance including wrongly entered diagnoses, or missing major morbidity such as an operation, or errors in repeat medication. There were 47 (53%) inaccuracies in lifestyle data (smoking, alcohol history or weight), or dates of illnesses. Conclusion Only a minority of patients chose to view and offer comment on their core clinical summaries. The majority of summaries were deemed to be accurate but there was a worrying level of omission and inaccuracy, including medication. It might be a better use of time to support doctors and patients working together to construct and check summaries rather than on information technology (IT) and the complex ethical debate surrounding the core clinical Spine.
first_indexed 2024-04-12T06:04:59Z
format Article
id doaj.art-664ae00b504e4fffb4c45134061c27cb
institution Directory Open Access Journal
issn 2058-4555
2058-4563
language English
last_indexed 2024-04-12T06:04:59Z
publishDate 2008-01-01
publisher BCS, The Chartered Institute for IT
record_format Article
series Journal of Innovation in Health Informatics
spelling doaj.art-664ae00b504e4fffb4c45134061c27cb2022-12-22T03:44:55ZengBCS, The Chartered Institute for ITJournal of Innovation in Health Informatics2058-45552058-45632008-01-0115421722010.14236/jhi.v15i4.661603Involving patients in checking the validity of the NHS shared record: a single practice pilotSally Al-AgillyRonald NevilleHeather RobbSam RiddellObjective To assess how involved patients wish to be in the compilation of their NHS core clinical record, and to assess the accuracy of general practitioner (GP) produced summaries. Design, setting, method and participants In a Scottish urban practice of 6800 patients we compiled a core clinical summary based on historical paper and electronic records. We invited a 1 in 10 sample of our patients of all ages to request, view and checka copy of their core clinical record. We offered patients the chance to discuss and correct any inaccuracies in their core clinical summary by use of a response form, telephone or meeting. Results Out of 646 patients, 258 (40% of our sample) responded to the invitation to checktheir core clinical summary. Of those, 187 (72.5%) of these summaries were accurate according to patients. There were 89 inaccuracies reported by patients. Of these, 42 (47%) were of obvious clinical importance including wrongly entered diagnoses, or missing major morbidity such as an operation, or errors in repeat medication. There were 47 (53%) inaccuracies in lifestyle data (smoking, alcohol history or weight), or dates of illnesses. Conclusion Only a minority of patients chose to view and offer comment on their core clinical summaries. The majority of summaries were deemed to be accurate but there was a worrying level of omission and inaccuracy, including medication. It might be a better use of time to support doctors and patients working together to construct and check summaries rather than on information technology (IT) and the complex ethical debate surrounding the core clinical Spine.https://hijournal.bcs.org/index.php/jhi/article/view/661core clinical summarydata quality general practitionerpatient
spellingShingle Sally Al-Agilly
Ronald Neville
Heather Robb
Sam Riddell
Involving patients in checking the validity of the NHS shared record: a single practice pilot
Journal of Innovation in Health Informatics
core clinical summary
data quality general practitioner
patient
title Involving patients in checking the validity of the NHS shared record: a single practice pilot
title_full Involving patients in checking the validity of the NHS shared record: a single practice pilot
title_fullStr Involving patients in checking the validity of the NHS shared record: a single practice pilot
title_full_unstemmed Involving patients in checking the validity of the NHS shared record: a single practice pilot
title_short Involving patients in checking the validity of the NHS shared record: a single practice pilot
title_sort involving patients in checking the validity of the nhs shared record a single practice pilot
topic core clinical summary
data quality general practitioner
patient
url https://hijournal.bcs.org/index.php/jhi/article/view/661
work_keys_str_mv AT sallyalagilly involvingpatientsincheckingthevalidityofthenhssharedrecordasinglepracticepilot
AT ronaldneville involvingpatientsincheckingthevalidityofthenhssharedrecordasinglepracticepilot
AT heatherrobb involvingpatientsincheckingthevalidityofthenhssharedrecordasinglepracticepilot
AT samriddell involvingpatientsincheckingthevalidityofthenhssharedrecordasinglepracticepilot