Patient and parent perceptions of the diagnosis and management of cystic fibrosis-related diabetes
Background: Cystic Fibrosis Related Diabetes (CFRD) is an increasingly common complication in CF. CFRD introduces an additional complex chronic disease to individuals already attending to demanding treatment regimens. An improved understanding of the reaction to and coping mechanisms surrounding CFR...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2014-09-01
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| Series: | Journal of Clinical & Translational Endocrinology |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2214623714000246 |
| _version_ | 1818163693998833664 |
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| author | Kate Millington Victoria Miller Ronald C. Rubenstein Andrea Kelly |
| author_facet | Kate Millington Victoria Miller Ronald C. Rubenstein Andrea Kelly |
| author_sort | Kate Millington |
| collection | DOAJ |
| description | Background: Cystic Fibrosis Related Diabetes (CFRD) is an increasingly common complication in CF. CFRD introduces an additional complex chronic disease to individuals already attending to demanding treatment regimens. An improved understanding of the reaction to and coping mechanisms surrounding CFRD may facilitate management of CFRD.
Methods: Semi-structured interviews completed by 10 children with CFRD, 10 adults with CFRD and 10 parents of children with CFRD in a single large CF Care Center were analyzed utilizing phenomenological analysis.
Results: Patients and families reported having limited knowledge of CFRD prior to diagnosis. CFRD was considered an extension of their underlying CF and successful management depended upon integration into existing routines.
Conclusions: Health care professionals caring for patients with CFRD should be informed of the specific challenges that arise in CFRD. Education in advance of CFRD diagnosis may facilitate management. |
| first_indexed | 2024-12-11T16:53:37Z |
| format | Article |
| id | doaj.art-66682bb69da0448cbae11309a7b6962f |
| institution | Directory Open Access Journal |
| issn | 2214-6237 |
| language | English |
| last_indexed | 2024-12-11T16:53:37Z |
| publishDate | 2014-09-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Journal of Clinical & Translational Endocrinology |
| spelling | doaj.art-66682bb69da0448cbae11309a7b6962f2022-12-22T00:58:01ZengElsevierJournal of Clinical & Translational Endocrinology2214-62372014-09-011310010710.1016/j.jcte.2014.07.003Patient and parent perceptions of the diagnosis and management of cystic fibrosis-related diabetesKate Millington0Victoria Miller1Ronald C. Rubenstein2Andrea Kelly3Perelman School of Medicine, University of Pennsylvania, 100 Stemmler Hall, Philadelphia, PA 19104, USADivision of Adolescent Medicine, The Children's Hospital of Philadelphia, Department of Pediatrics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA 19104, USADivision of Pulmonary Medicine and Cystic Fibrosis Center, The Children's Hospital of Philadelphia, Department of Pediatrics, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA 19104, USADivision of Endocrinology & Diabetes, The Children's Hospital of Philadelphia, Department of Pediatrics, Perelman School of Medicine at University of Pennsylvania, Philadelphia, PA 19104, USABackground: Cystic Fibrosis Related Diabetes (CFRD) is an increasingly common complication in CF. CFRD introduces an additional complex chronic disease to individuals already attending to demanding treatment regimens. An improved understanding of the reaction to and coping mechanisms surrounding CFRD may facilitate management of CFRD. Methods: Semi-structured interviews completed by 10 children with CFRD, 10 adults with CFRD and 10 parents of children with CFRD in a single large CF Care Center were analyzed utilizing phenomenological analysis. Results: Patients and families reported having limited knowledge of CFRD prior to diagnosis. CFRD was considered an extension of their underlying CF and successful management depended upon integration into existing routines. Conclusions: Health care professionals caring for patients with CFRD should be informed of the specific challenges that arise in CFRD. Education in advance of CFRD diagnosis may facilitate management.http://www.sciencedirect.com/science/article/pii/S2214623714000246Cystic fibrosisDiabetesAdherence |
| spellingShingle | Kate Millington Victoria Miller Ronald C. Rubenstein Andrea Kelly Patient and parent perceptions of the diagnosis and management of cystic fibrosis-related diabetes Journal of Clinical & Translational Endocrinology Cystic fibrosis Diabetes Adherence |
| title | Patient and parent perceptions of the diagnosis and management of cystic fibrosis-related diabetes |
| title_full | Patient and parent perceptions of the diagnosis and management of cystic fibrosis-related diabetes |
| title_fullStr | Patient and parent perceptions of the diagnosis and management of cystic fibrosis-related diabetes |
| title_full_unstemmed | Patient and parent perceptions of the diagnosis and management of cystic fibrosis-related diabetes |
| title_short | Patient and parent perceptions of the diagnosis and management of cystic fibrosis-related diabetes |
| title_sort | patient and parent perceptions of the diagnosis and management of cystic fibrosis related diabetes |
| topic | Cystic fibrosis Diabetes Adherence |
| url | http://www.sciencedirect.com/science/article/pii/S2214623714000246 |
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