Caregiver Burden for Patients Diagnosed with Parkinson’s Disease: A Cross-sectional Study from Southern India
Introduction: Parkinson’s Disease (PD) is a progressive neurodegenerative disorder where the individual over time needs more and more assistance from their caregivers to carry on their life and that causes increasing burden on the caregiver. The burden for the caregiver is affecting them physica...
| Main Authors: | , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
JCDR Research and Publications Private Limited
2020-12-01
|
| Series: | Journal of Clinical and Diagnostic Research |
| Subjects: | |
| Online Access: | https://jcdr.net/articles/PDF/14384/46176_CE[Ra1]_F(SB)_PF1(SY_OM)_PN(SL).pdf |
| _version_ | 1818443719431421952 |
|---|---|
| author | Arun Kurupath Praveen Arathil Rahul Bansal |
| author_facet | Arun Kurupath Praveen Arathil Rahul Bansal |
| author_sort | Arun Kurupath |
| collection | DOAJ |
| description | Introduction: Parkinson’s Disease (PD) is a progressive
neurodegenerative disorder where the individual over time
needs more and more assistance from their caregivers to carry
on their life and that causes increasing burden on the caregiver.
The burden for the caregiver is affecting them physically,
mentally and also on a socioeconomic level.
Aim: To examine the factors related to caregiver burden in
caregivers of Parkinson’s patients.
Materials and Methods: This was a cross-sectional study
conducted in Parkinson’s clinic of a Tertiary Care Hospital
of Kochi, on 100 Parkinsonism patients and their respective
caregivers. Patients were assessed using the Unified PD Rating
Scale (UPDRS), Hoehn and Yahr Scale (H&Y) and Mini-Mental
State Examination (MMSE). Caregivers were assessed using
Zerit’s Caregiver Burden inventory (CBI). Semi structured
questionnaire was administered for socio-demographic details.
Non parametric tests were done to examine the correlation
among various variables.
Results: Among the patients and caregivers, mean age was
70.65±7.30 and 67.31±8.56, respectively. Among the patient’s
majority were males (n=74) while among caregivers, majority were
females (n=73). Mean duration of disease was 6.79±2.68 years,
mean caregiver burden score was 65.05±21.79, mean UPDRS
score was 21.89±8.74 and had significant positive correlation
with caregiver burden. Mean MMSE score was 17.19±4.91. The
disease duration and UPDRS score had a significant positive
correlation with caregiver burden score. MMSE score had
significant negative correlation with caregiver burden score.
Conclusion: This study concludes that a patient’s Parkinsonism
related disability accounts for majority of caregiver burden. An
early identification of factors contributing to stress in caregivers
will help to avoid its persistency leading to a better insight in the
caregiving role and thus in-patient care. |
| first_indexed | 2024-12-14T19:04:31Z |
| format | Article |
| id | doaj.art-66d9e7eda2f24021bb3f48a2e68e9d5d |
| institution | Directory Open Access Journal |
| issn | 2249-782X 0973-709X |
| language | English |
| last_indexed | 2024-12-14T19:04:31Z |
| publishDate | 2020-12-01 |
| publisher | JCDR Research and Publications Private Limited |
| record_format | Article |
| series | Journal of Clinical and Diagnostic Research |
| spelling | doaj.art-66d9e7eda2f24021bb3f48a2e68e9d5d2022-12-21T22:50:53ZengJCDR Research and Publications Private LimitedJournal of Clinical and Diagnostic Research2249-782X0973-709X2020-12-011412VC05VC0810.7860/JCDR/2020/46176.14384Caregiver Burden for Patients Diagnosed with Parkinson’s Disease: A Cross-sectional Study from Southern IndiaArun Kurupath0Praveen Arathil1Rahul Bansal2Assistant Professor, Department of Psychiatry, Amrita Institute of Medicine, Kochi, Kerala, India.Associate Professor, Department of Psychiatry, Amrita Institute of Medicine, Kochi, Kerala, India.Junior Resident, Department of Psychiatry, Amrita Institute of Medicine, Kochi, Kerala, India.Introduction: Parkinson’s Disease (PD) is a progressive neurodegenerative disorder where the individual over time needs more and more assistance from their caregivers to carry on their life and that causes increasing burden on the caregiver. The burden for the caregiver is affecting them physically, mentally and also on a socioeconomic level. Aim: To examine the factors related to caregiver burden in caregivers of Parkinson’s patients. Materials and Methods: This was a cross-sectional study conducted in Parkinson’s clinic of a Tertiary Care Hospital of Kochi, on 100 Parkinsonism patients and their respective caregivers. Patients were assessed using the Unified PD Rating Scale (UPDRS), Hoehn and Yahr Scale (H&Y) and Mini-Mental State Examination (MMSE). Caregivers were assessed using Zerit’s Caregiver Burden inventory (CBI). Semi structured questionnaire was administered for socio-demographic details. Non parametric tests were done to examine the correlation among various variables. Results: Among the patients and caregivers, mean age was 70.65±7.30 and 67.31±8.56, respectively. Among the patient’s majority were males (n=74) while among caregivers, majority were females (n=73). Mean duration of disease was 6.79±2.68 years, mean caregiver burden score was 65.05±21.79, mean UPDRS score was 21.89±8.74 and had significant positive correlation with caregiver burden. Mean MMSE score was 17.19±4.91. The disease duration and UPDRS score had a significant positive correlation with caregiver burden score. MMSE score had significant negative correlation with caregiver burden score. Conclusion: This study concludes that a patient’s Parkinsonism related disability accounts for majority of caregiver burden. An early identification of factors contributing to stress in caregivers will help to avoid its persistency leading to a better insight in the caregiving role and thus in-patient care.https://jcdr.net/articles/PDF/14384/46176_CE[Ra1]_F(SB)_PF1(SY_OM)_PN(SL).pdfcaregiver distresselderlymovement disorder |
| spellingShingle | Arun Kurupath Praveen Arathil Rahul Bansal Caregiver Burden for Patients Diagnosed with Parkinson’s Disease: A Cross-sectional Study from Southern India Journal of Clinical and Diagnostic Research caregiver distress elderly movement disorder |
| title | Caregiver Burden for Patients Diagnosed with Parkinson’s Disease: A Cross-sectional Study from Southern India |
| title_full | Caregiver Burden for Patients Diagnosed with Parkinson’s Disease: A Cross-sectional Study from Southern India |
| title_fullStr | Caregiver Burden for Patients Diagnosed with Parkinson’s Disease: A Cross-sectional Study from Southern India |
| title_full_unstemmed | Caregiver Burden for Patients Diagnosed with Parkinson’s Disease: A Cross-sectional Study from Southern India |
| title_short | Caregiver Burden for Patients Diagnosed with Parkinson’s Disease: A Cross-sectional Study from Southern India |
| title_sort | caregiver burden for patients diagnosed with parkinson s disease a cross sectional study from southern india |
| topic | caregiver distress elderly movement disorder |
| url | https://jcdr.net/articles/PDF/14384/46176_CE[Ra1]_F(SB)_PF1(SY_OM)_PN(SL).pdf |
| work_keys_str_mv | AT arunkurupath caregiverburdenforpatientsdiagnosedwithparkinsonsdiseaseacrosssectionalstudyfromsouthernindia AT praveenarathil caregiverburdenforpatientsdiagnosedwithparkinsonsdiseaseacrosssectionalstudyfromsouthernindia AT rahulbansal caregiverburdenforpatientsdiagnosedwithparkinsonsdiseaseacrosssectionalstudyfromsouthernindia |