Storytelling workshop to encourage stakeholder engagement with the Global Initiative for Childhood Cancer

Storytelling can enhance stakeholder engagement and support the implementation of the World Health Organization and Pan American Health Organization’s (PAHO) Global Initiative for Childhood Cancer, which aims to improve care globally for children with cancer. The Initiative aligns with the United Na...

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Main Authors: Soad Fuentes-Alabí, Kendall Carpenter, Meghan Shea, Liliana Vásquez, Sara Benitez Majano, Mauricio Maza, Silvana Luciani, Irini Albanti
Format: Article
Language:English
Published: Pan American Health Organization 2023-10-01
Series:Revista Panamericana de Salud Pública
Subjects:
Online Access:https://iris.paho.org/handle/10665.2/58195
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author Soad Fuentes-Alabí
Kendall Carpenter
Meghan Shea
Liliana Vásquez
Sara Benitez Majano
Mauricio Maza
Silvana Luciani
Irini Albanti
author_facet Soad Fuentes-Alabí
Kendall Carpenter
Meghan Shea
Liliana Vásquez
Sara Benitez Majano
Mauricio Maza
Silvana Luciani
Irini Albanti
author_sort Soad Fuentes-Alabí
collection DOAJ
description Storytelling can enhance stakeholder engagement and support the implementation of the World Health Organization and Pan American Health Organization’s (PAHO) Global Initiative for Childhood Cancer, which aims to improve care globally for children with cancer. The Initiative aligns with the United Nations Sustainable Development Goals, addressing health, education, inequalities and international collaboration. This report describes the design and implementation of a workshop that used storytelling through film to encourage stakeholders in national cancer control plans to engage with the Initiative in its focal countries in Central America, the Dominican Republic and Haiti. A six-step process was used to develop the virtual workshop hosted by PAHO: (i) define the audience; (ii) define the goals of storytelling; (iii) build an appropriate storyline, including choosing a platform and content, and addressing group dynamics and the length of the film; (iv) guide the workshop’s design and implementation with current theoretical frameworks, including the Socioecological Model of Health and the Theory of Change; (v) design interactive group exercises; and (vi) disseminate workshop results. The skills-building component of the day-long workshop included 80 representatives from eight countries in the Region of the Americas, with participants representing pediatric oncology, hospital administration, ministries of health, nonprofit foundations, the scientific community and public health organizations. Outputs from the workshop included (i) a summary report, (ii) an empathy word cloud with live reactions from participants, (iii) qualitative responses (i.e. quotes from participants), (iv) stakeholders’ analyses and (v) a prioritization matrix for country-level strategic activities that could be undertaken to strengthen health systems when caring for children with cancer. The workshop used storytelling through film to try to reduce health inequalities and have a regional impact. Combining art, public health and medicine, the workshop created positive change by sharing real-life experiences. Commitment was fostered among stakeholders through their engagement with the workshop, which aimed to increase their awareness of the need and advocacy to improve health systems and enhance access to health care for this vulnerable population.
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spelling doaj.art-66fc48322f844656bf887ffcc2ab0cdf2023-10-09T20:09:25ZengPan American Health OrganizationRevista Panamericana de Salud Pública1020-49891680-53482023-10-014714811110.26633/RPSP.2023.148rpspStorytelling workshop to encourage stakeholder engagement with the Global Initiative for Childhood CancerSoad Fuentes-Alabí0Kendall Carpenter1Meghan Shea2Liliana Vásquez3Sara Benitez Majano4Mauricio Maza5Silvana Luciani6Irini Albanti7Pan American Health Organization, Washington, D.C., United States of AmericaBoston Children’s Hospital, Harvard Medical School, Boston, United States of AmericaPersistent Productions, Rockport, United States of AmericaPan American Health Organization, Washington, D.C., United States of AmericaPan American Health Organization, Washington, D.C., United States of AmericaPan American Health Organization, Washington, D.C., United States of AmericaPan American Health Organization, Washington, D.C., United States of AmericaHarvard Humanitarian Initiative, Harvard School of Public Health, Boston, United States of AmericaStorytelling can enhance stakeholder engagement and support the implementation of the World Health Organization and Pan American Health Organization’s (PAHO) Global Initiative for Childhood Cancer, which aims to improve care globally for children with cancer. The Initiative aligns with the United Nations Sustainable Development Goals, addressing health, education, inequalities and international collaboration. This report describes the design and implementation of a workshop that used storytelling through film to encourage stakeholders in national cancer control plans to engage with the Initiative in its focal countries in Central America, the Dominican Republic and Haiti. A six-step process was used to develop the virtual workshop hosted by PAHO: (i) define the audience; (ii) define the goals of storytelling; (iii) build an appropriate storyline, including choosing a platform and content, and addressing group dynamics and the length of the film; (iv) guide the workshop’s design and implementation with current theoretical frameworks, including the Socioecological Model of Health and the Theory of Change; (v) design interactive group exercises; and (vi) disseminate workshop results. The skills-building component of the day-long workshop included 80 representatives from eight countries in the Region of the Americas, with participants representing pediatric oncology, hospital administration, ministries of health, nonprofit foundations, the scientific community and public health organizations. Outputs from the workshop included (i) a summary report, (ii) an empathy word cloud with live reactions from participants, (iii) qualitative responses (i.e. quotes from participants), (iv) stakeholders’ analyses and (v) a prioritization matrix for country-level strategic activities that could be undertaken to strengthen health systems when caring for children with cancer. The workshop used storytelling through film to try to reduce health inequalities and have a regional impact. Combining art, public health and medicine, the workshop created positive change by sharing real-life experiences. Commitment was fostered among stakeholders through their engagement with the workshop, which aimed to increase their awareness of the need and advocacy to improve health systems and enhance access to health care for this vulnerable population.https://iris.paho.org/handle/10665.2/58195adolescent healthchild healthhealth communicationneoplasmsdisease preventionhealth systems
spellingShingle Soad Fuentes-Alabí
Kendall Carpenter
Meghan Shea
Liliana Vásquez
Sara Benitez Majano
Mauricio Maza
Silvana Luciani
Irini Albanti
Storytelling workshop to encourage stakeholder engagement with the Global Initiative for Childhood Cancer
Revista Panamericana de Salud Pública
adolescent health
child health
health communication
neoplasms
disease prevention
health systems
title Storytelling workshop to encourage stakeholder engagement with the Global Initiative for Childhood Cancer
title_full Storytelling workshop to encourage stakeholder engagement with the Global Initiative for Childhood Cancer
title_fullStr Storytelling workshop to encourage stakeholder engagement with the Global Initiative for Childhood Cancer
title_full_unstemmed Storytelling workshop to encourage stakeholder engagement with the Global Initiative for Childhood Cancer
title_short Storytelling workshop to encourage stakeholder engagement with the Global Initiative for Childhood Cancer
title_sort storytelling workshop to encourage stakeholder engagement with the global initiative for childhood cancer
topic adolescent health
child health
health communication
neoplasms
disease prevention
health systems
url https://iris.paho.org/handle/10665.2/58195
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