Connecting with healthcare providers at diagnosis: adolescent/young adult cancer survivors’ perspectives
Adolescents and young adults (AYAs) with cancer are a vulnerable and underserved population. AYAs’ cancer survivorship is complicated by physical and psychosocial late effects which requires long-term follow-up. Connectedness with healthcare providers (HCPs) is a protective factor that may improve l...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2017-01-01
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| Series: | International Journal of Qualitative Studies on Health & Well-Being |
| Subjects: | |
| Online Access: | http://dx.doi.org/10.1080/17482631.2017.1325699 |
| _version_ | 1819142757670715392 |
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| author | Celeste R. Phillips Joan E. Haase Marion E. Broome Janet S. Carpenter Richard M. Frankel |
| author_facet | Celeste R. Phillips Joan E. Haase Marion E. Broome Janet S. Carpenter Richard M. Frankel |
| author_sort | Celeste R. Phillips |
| collection | DOAJ |
| description | Adolescents and young adults (AYAs) with cancer are a vulnerable and underserved population. AYAs’ cancer survivorship is complicated by physical and psychosocial late effects which requires long-term follow-up. Connectedness with healthcare providers (HCPs) is a protective factor that may improve long-term follow-up behaviours of AYAs. However, little is known about AYAs’ experiences connecting with HCPs. The purpose of this study was to describe AYA cancer survivors’ experiences connecting with HCPs. This empirical phenomenological study interviewed nine AYA cancer survivors diagnosed during adolescence. Individual interviews were conducted and analysed using an adapted Colaizzi approach. The essential structure reveals that AYAs begin their experience of connectedness with a sense of disconnectedness prior to treatment. The diagnosis is a period of confusion and emotional turmoil that interfere with the AYAs’ ability to connect. When AYAs come to accept their illness and gain familiarity with the environment, they then put forth an effort to connect with HCPs. Although it takes time for AYAs to reciprocate efforts to connect, HCPs should be aware that AYAs carefully assess and make judgments about whether or not HCPs can be trusted. Findings raise awareness of the actions and behaviours of HCPs that hinder connectedness, and targeted in future research. |
| first_indexed | 2024-12-22T12:15:25Z |
| format | Article |
| id | doaj.art-6871bf8fd46f4e01be09cfef3d3ce4c6 |
| institution | Directory Open Access Journal |
| issn | 1748-2631 |
| language | English |
| last_indexed | 2024-12-22T12:15:25Z |
| publishDate | 2017-01-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | International Journal of Qualitative Studies on Health & Well-Being |
| spelling | doaj.art-6871bf8fd46f4e01be09cfef3d3ce4c62022-12-21T18:26:10ZengTaylor & Francis GroupInternational Journal of Qualitative Studies on Health & Well-Being1748-26312017-01-0112110.1080/17482631.2017.13256991325699Connecting with healthcare providers at diagnosis: adolescent/young adult cancer survivors’ perspectivesCeleste R. Phillips0Joan E. Haase1Marion E. Broome2Janet S. Carpenter3Richard M. Frankel4Indiana University School of NursingIndiana University School of NursingDuke University School of NursingIndiana University School of NursingIndiana University, School of Medicine IndianapolisAdolescents and young adults (AYAs) with cancer are a vulnerable and underserved population. AYAs’ cancer survivorship is complicated by physical and psychosocial late effects which requires long-term follow-up. Connectedness with healthcare providers (HCPs) is a protective factor that may improve long-term follow-up behaviours of AYAs. However, little is known about AYAs’ experiences connecting with HCPs. The purpose of this study was to describe AYA cancer survivors’ experiences connecting with HCPs. This empirical phenomenological study interviewed nine AYA cancer survivors diagnosed during adolescence. Individual interviews were conducted and analysed using an adapted Colaizzi approach. The essential structure reveals that AYAs begin their experience of connectedness with a sense of disconnectedness prior to treatment. The diagnosis is a period of confusion and emotional turmoil that interfere with the AYAs’ ability to connect. When AYAs come to accept their illness and gain familiarity with the environment, they then put forth an effort to connect with HCPs. Although it takes time for AYAs to reciprocate efforts to connect, HCPs should be aware that AYAs carefully assess and make judgments about whether or not HCPs can be trusted. Findings raise awareness of the actions and behaviours of HCPs that hinder connectedness, and targeted in future research.http://dx.doi.org/10.1080/17482631.2017.1325699Adolescentsyoung adultsconnectednesscommunicationcancersurvivors |
| spellingShingle | Celeste R. Phillips Joan E. Haase Marion E. Broome Janet S. Carpenter Richard M. Frankel Connecting with healthcare providers at diagnosis: adolescent/young adult cancer survivors’ perspectives International Journal of Qualitative Studies on Health & Well-Being Adolescents young adults connectedness communication cancer survivors |
| title | Connecting with healthcare providers at diagnosis: adolescent/young adult cancer survivors’ perspectives |
| title_full | Connecting with healthcare providers at diagnosis: adolescent/young adult cancer survivors’ perspectives |
| title_fullStr | Connecting with healthcare providers at diagnosis: adolescent/young adult cancer survivors’ perspectives |
| title_full_unstemmed | Connecting with healthcare providers at diagnosis: adolescent/young adult cancer survivors’ perspectives |
| title_short | Connecting with healthcare providers at diagnosis: adolescent/young adult cancer survivors’ perspectives |
| title_sort | connecting with healthcare providers at diagnosis adolescent young adult cancer survivors perspectives |
| topic | Adolescents young adults connectedness communication cancer survivors |
| url | http://dx.doi.org/10.1080/17482631.2017.1325699 |
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