Living (well) with cancer in the precision era

Surviving cancer in the precision era of targeted drugs and immunotherapies increasingly involves surviving-with malignancy. Against this backdrop of precision, innovation and chronicity, this paper offers a person-centred examination of some of the emerging intersections of chronic living and cance...

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Main Authors: Alex Broom, Katherine Kenny, Leah Williams Veazey, Alexander Page, Barbara Prainsack, Claire E. Wakefield, Mustafa Khasraw, Malinda Itchins, Zarnie Lwin
Format: Article
Language:English
Published: Elsevier 2022-12-01
Series:SSM: Qualitative Research in Health
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2667321522000580
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author Alex Broom
Katherine Kenny
Leah Williams Veazey
Alexander Page
Barbara Prainsack
Claire E. Wakefield
Mustafa Khasraw
Malinda Itchins
Zarnie Lwin
author_facet Alex Broom
Katherine Kenny
Leah Williams Veazey
Alexander Page
Barbara Prainsack
Claire E. Wakefield
Mustafa Khasraw
Malinda Itchins
Zarnie Lwin
author_sort Alex Broom
collection DOAJ
description Surviving cancer in the precision era of targeted drugs and immunotherapies increasingly involves surviving-with malignancy. Against this backdrop of precision, innovation and chronicity, this paper offers a person-centred examination of some of the emerging intersections of chronic living and cancer treatment. Using a temporally extended qualitative methodology drawing on solicited diaries and successive in-depth interviews with people receiving precision cancer therapies, we focus on the often opaque worlds of surviving-with cancer, day-to-day, amidst the evolving scene of therapeutic innovation. Tracing how elements of the catastrophic and the mundane are braided through these everyday experiences, we seek to provide an embodied and temporally extended account of everyday life, beyond the binaries of presence/absence of disease, or of death/cure. In so doing, we consider how the normative expectations of treatment, bodies, care and emotions are being reshaped, elevating the moral work of the precision-cancer intersection.
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spelling doaj.art-68c09051be514ca49b23eb03ab20635a2022-12-22T04:41:09ZengElsevierSSM: Qualitative Research in Health2667-32152022-12-012100096Living (well) with cancer in the precision eraAlex Broom0Katherine Kenny1Leah Williams Veazey2Alexander Page3Barbara Prainsack4Claire E. Wakefield5Mustafa Khasraw6Malinda Itchins7Zarnie Lwin8Sydney Centre for Healthy Societies, School of Social and Political Sciences, University of Sydney, NSW, 2006, Australia; Corresponding author.Sydney Centre for Healthy Societies, School of Social and Political Sciences, University of Sydney, NSW, 2006, AustraliaSydney Centre for Healthy Societies, School of Social and Political Sciences, University of Sydney, NSW, 2006, AustraliaSydney Centre for Healthy Societies, School of Social and Political Sciences, University of Sydney, NSW, 2006, AustraliaDepartment of Political Science, University of Vienna, Vienna, AustriaSchool of Clinical Medicine, UNSW Medicine and Health, Randwick Clinical Campus, Discipline of Paediatrics, UNSW Sydney, Sydney, New South Wales, Australia; Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Sydney, NSW, AustraliaDuke Cancer Institute, Duke University, Durham, NC, USANorthern Clinical School, University of Sydney, St Leonards, New South Wales, Australia; Department of Medical Oncology, Royal North Shore Hospital, St Leonards, New South Wales, AustraliaDepartment of Medical Oncology, Royal Brisbane and Women's Hospital, Herston, Queensland, Australia; Faculty of Medicine, University of Queensland, St Lucia, Queensland, AustraliaSurviving cancer in the precision era of targeted drugs and immunotherapies increasingly involves surviving-with malignancy. Against this backdrop of precision, innovation and chronicity, this paper offers a person-centred examination of some of the emerging intersections of chronic living and cancer treatment. Using a temporally extended qualitative methodology drawing on solicited diaries and successive in-depth interviews with people receiving precision cancer therapies, we focus on the often opaque worlds of surviving-with cancer, day-to-day, amidst the evolving scene of therapeutic innovation. Tracing how elements of the catastrophic and the mundane are braided through these everyday experiences, we seek to provide an embodied and temporally extended account of everyday life, beyond the binaries of presence/absence of disease, or of death/cure. In so doing, we consider how the normative expectations of treatment, bodies, care and emotions are being reshaped, elevating the moral work of the precision-cancer intersection.http://www.sciencedirect.com/science/article/pii/S2667321522000580Precision medicineCancerQualitativeDiariesSurvivorship
spellingShingle Alex Broom
Katherine Kenny
Leah Williams Veazey
Alexander Page
Barbara Prainsack
Claire E. Wakefield
Mustafa Khasraw
Malinda Itchins
Zarnie Lwin
Living (well) with cancer in the precision era
SSM: Qualitative Research in Health
Precision medicine
Cancer
Qualitative
Diaries
Survivorship
title Living (well) with cancer in the precision era
title_full Living (well) with cancer in the precision era
title_fullStr Living (well) with cancer in the precision era
title_full_unstemmed Living (well) with cancer in the precision era
title_short Living (well) with cancer in the precision era
title_sort living well with cancer in the precision era
topic Precision medicine
Cancer
Qualitative
Diaries
Survivorship
url http://www.sciencedirect.com/science/article/pii/S2667321522000580
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