A journey toward an open data culture through transformation of shared data into a data resource
The transition to open data practices is straightforward albeit surprisingly challenging to implement largely due to cultural and policy issues. A general data sharing framework is presented along with two case studies that highlight these challenges and offer practical solutions that can be adjuste...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
Cambridge University Press
2022-01-01
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| Series: | Data & Policy |
| Subjects: | |
| Online Access: | https://www.cambridge.org/core/product/identifier/S2632324922000220/type/journal_article |
| _version_ | 1811156492173180928 |
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| author | Scott D. Kahn Anne Koralova |
| author_facet | Scott D. Kahn Anne Koralova |
| author_sort | Scott D. Kahn |
| collection | DOAJ |
| description | The transition to open data practices is straightforward albeit surprisingly challenging to implement largely due to cultural and policy issues. A general data sharing framework is presented along with two case studies that highlight these challenges and offer practical solutions that can be adjusted depending on the type of data collected, the country in which the study is initiated, and the prevailing research culture. Embracing the constraints imposed by data privacy considerations, especially for biomedical data, must be emphasized for data outside of the United States until data privacy law(s) are established at the Federal and/or State level. |
| first_indexed | 2024-04-10T04:51:31Z |
| format | Article |
| id | doaj.art-695eb49b80154eb4976317432898d8aa |
| institution | Directory Open Access Journal |
| issn | 2632-3249 |
| language | English |
| last_indexed | 2024-04-10T04:51:31Z |
| publishDate | 2022-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Data & Policy |
| spelling | doaj.art-695eb49b80154eb4976317432898d8aa2023-03-09T12:31:38ZengCambridge University PressData & Policy2632-32492022-01-01410.1017/dap.2022.22A journey toward an open data culture through transformation of shared data into a data resourceScott D. Kahn0https://orcid.org/0000-0003-4842-5019Anne Koralova1Precision Medicine Now, Rancho Santa Fe, California, USAType 1 Diabetes Program, The Leona M. and Harry B. Helmsley Charitable Trust, New York, New York, USAThe transition to open data practices is straightforward albeit surprisingly challenging to implement largely due to cultural and policy issues. A general data sharing framework is presented along with two case studies that highlight these challenges and offer practical solutions that can be adjusted depending on the type of data collected, the country in which the study is initiated, and the prevailing research culture. Embracing the constraints imposed by data privacy considerations, especially for biomedical data, must be emphasized for data outside of the United States until data privacy law(s) are established at the Federal and/or State level.https://www.cambridge.org/core/product/identifier/S2632324922000220/type/journal_articleData sharingdata privacyGDPRopen dataopen science |
| spellingShingle | Scott D. Kahn Anne Koralova A journey toward an open data culture through transformation of shared data into a data resource Data & Policy Data sharing data privacy GDPR open data open science |
| title | A journey toward an open data culture through transformation of shared data into a data resource |
| title_full | A journey toward an open data culture through transformation of shared data into a data resource |
| title_fullStr | A journey toward an open data culture through transformation of shared data into a data resource |
| title_full_unstemmed | A journey toward an open data culture through transformation of shared data into a data resource |
| title_short | A journey toward an open data culture through transformation of shared data into a data resource |
| title_sort | journey toward an open data culture through transformation of shared data into a data resource |
| topic | Data sharing data privacy GDPR open data open science |
| url | https://www.cambridge.org/core/product/identifier/S2632324922000220/type/journal_article |
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