Palliative care stakeholders in Canada

Abstract Background Improving access to palliative care for Canadians requires a focused collective effort towards palliative and end-of-life care advocacy and policy. However, evolution of modern palliative care in Canada has resulted in stakeholders working in isolation. Identification of stakehol...

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Main Authors: Jingjie Xiao, Carleen Brenneis, Konrad Fassbender
Format: Article
Language:English
Published: BMC 2022-06-01
Series:Health Research Policy and Systems
Subjects:
Online Access:https://doi.org/10.1186/s12961-022-00855-w
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author Jingjie Xiao
Carleen Brenneis
Konrad Fassbender
author_facet Jingjie Xiao
Carleen Brenneis
Konrad Fassbender
author_sort Jingjie Xiao
collection DOAJ
description Abstract Background Improving access to palliative care for Canadians requires a focused collective effort towards palliative and end-of-life care advocacy and policy. However, evolution of modern palliative care in Canada has resulted in stakeholders working in isolation. Identification of stakeholders is an important step to ensure that efforts to improve palliative care are coordinated. The purpose of this analysis is to collectively identify, classify and prioritize stakeholders who made contributions to national palliative care policies in Canada. Methods A systematic grey literature search was conducted examining policy documents (i.e. policy reports, legislative bills, judicial court cases) in the field of palliative care, end-of-life care and medical assistance in dying, at the national level, over the last two decades. Organizations’ names were extracted directly or derived from individuals’ affiliations. We then classified stakeholders using an adapted classification approach and developed an algorithm to prioritize their contributions towards the publication of these documents. Results Over 800 organizations contributed to 115 documents (41 policy reports, 11 legislative, 63 judicial). Discussions regarding national palliative care policy over the last two decades peaked in 2016. Stakeholder organizations contributing to national palliative care policy conversations throughout this period were classified into six types broadly representative of society. The ranking algorithm identified the top 200 prioritized stakeholder organizations. Conclusions Stakeholders from various societal sectors have contributed to national palliative care conversions over the past two decades; however, not all the stakeholder organizations engaged to the same extent. The information is useful when a need arises for increased collaboration between stakeholders and can be a starting point for developing more effective engagement strategies.
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spelling doaj.art-6968755b9cab4648b537d11f41085ea52022-12-22T00:38:12ZengBMCHealth Research Policy and Systems1478-45052022-06-012011910.1186/s12961-022-00855-wPalliative care stakeholders in CanadaJingjie Xiao0Carleen Brenneis1Konrad Fassbender2Covenant Health Palliative InstituteCovenant Health Palliative InstituteCovenant Health Palliative InstituteAbstract Background Improving access to palliative care for Canadians requires a focused collective effort towards palliative and end-of-life care advocacy and policy. However, evolution of modern palliative care in Canada has resulted in stakeholders working in isolation. Identification of stakeholders is an important step to ensure that efforts to improve palliative care are coordinated. The purpose of this analysis is to collectively identify, classify and prioritize stakeholders who made contributions to national palliative care policies in Canada. Methods A systematic grey literature search was conducted examining policy documents (i.e. policy reports, legislative bills, judicial court cases) in the field of palliative care, end-of-life care and medical assistance in dying, at the national level, over the last two decades. Organizations’ names were extracted directly or derived from individuals’ affiliations. We then classified stakeholders using an adapted classification approach and developed an algorithm to prioritize their contributions towards the publication of these documents. Results Over 800 organizations contributed to 115 documents (41 policy reports, 11 legislative, 63 judicial). Discussions regarding national palliative care policy over the last two decades peaked in 2016. Stakeholder organizations contributing to national palliative care policy conversations throughout this period were classified into six types broadly representative of society. The ranking algorithm identified the top 200 prioritized stakeholder organizations. Conclusions Stakeholders from various societal sectors have contributed to national palliative care conversions over the past two decades; however, not all the stakeholder organizations engaged to the same extent. The information is useful when a need arises for increased collaboration between stakeholders and can be a starting point for developing more effective engagement strategies.https://doi.org/10.1186/s12961-022-00855-wPalliative careStakeholdersStakeholder analysisStakeholder identificationCanada
spellingShingle Jingjie Xiao
Carleen Brenneis
Konrad Fassbender
Palliative care stakeholders in Canada
Health Research Policy and Systems
Palliative care
Stakeholders
Stakeholder analysis
Stakeholder identification
Canada
title Palliative care stakeholders in Canada
title_full Palliative care stakeholders in Canada
title_fullStr Palliative care stakeholders in Canada
title_full_unstemmed Palliative care stakeholders in Canada
title_short Palliative care stakeholders in Canada
title_sort palliative care stakeholders in canada
topic Palliative care
Stakeholders
Stakeholder analysis
Stakeholder identification
Canada
url https://doi.org/10.1186/s12961-022-00855-w
work_keys_str_mv AT jingjiexiao palliativecarestakeholdersincanada
AT carleenbrenneis palliativecarestakeholdersincanada
AT konradfassbender palliativecarestakeholdersincanada