Struck by stroke - experiences of living with stroke in a rural area in Uganda
Abstract Background The global burden of stroke is increasing and persons with low socioeconomic status are among those worst affected. In Uganda, stroke is estimated to be the sixth highest ranking cause of death. The Ugandan healthcare system is reported to be inequitable, where poorer populations...
| المؤلفون الرئيسيون: | , , , , , |
|---|---|
| التنسيق: | مقال |
| اللغة: | English |
| منشور في: |
BMC
2023-06-01
|
| سلاسل: | BMC Public Health |
| الموضوعات: | |
| الوصول للمادة أونلاين: | https://doi.org/10.1186/s12889-023-15832-3 |
| _version_ | 1827928417651130368 |
|---|---|
| author | Linda Timm Julius Kamwesiga Sulaiman Kigozi Charlotte Ytterberg Gunilla Eriksson Susanne Guidetti |
| author_facet | Linda Timm Julius Kamwesiga Sulaiman Kigozi Charlotte Ytterberg Gunilla Eriksson Susanne Guidetti |
| author_sort | Linda Timm |
| collection | DOAJ |
| description | Abstract Background The global burden of stroke is increasing and persons with low socioeconomic status are among those worst affected. In Uganda, stroke is estimated to be the sixth highest ranking cause of death. The Ugandan healthcare system is reported to be inequitable, where poorer populations often live in rural areas with long distances to health care. Stroke rehabilitation is often scarce, with less financial and human resources. The aim of this study was to explore and describe the consequences of stroke in daily activities in everyday life for people in a rural part of Masaka in Uganda. Methods Qualitative study design. Fourteen persons who had had stroke and were living in their home environment were interviewed about their experiences of having a stroke and managing their lives after the stroke incident. The interviews were analysed using thematic analysis. In addition, sociodemographic data and level of independence (Barthel Index and Stroke Impact Scale 3.0) was collected to describe participant characteristics. Results Most of the participants had major consequences of stroke and described that they were dependent on support for managing their daily activities. Five themes were identified in the analysis: (1) Accepting and adapting to new ways of managing everyday life, (2) Changing roles and hierarchical positions, (3) Depending on caregiver support, (4) Interrupted care due to economic constraints, (5) Stroke leading to losses and losses leading to stroke. Conclusions The consequences of stroke on the persons’ daily lives clearly reached beyond the person with stroke, affecting the whole family and their proximate social networks. These consequences included increased burdens on caregivers and a worsened economic situation for all persons affected. Therefore, interventions for stroke management should preferably not only target the individual affected by stroke, but also support the caregivers in the caring and rehabilitation process. Home rehabilitation approaches with a focus on improving health literacy are suggested. |
| first_indexed | 2024-03-13T06:07:19Z |
| format | Article |
| id | doaj.art-69bae3b84cff412c9bff3d96e69e901b |
| institution | Directory Open Access Journal |
| issn | 1471-2458 |
| language | English |
| last_indexed | 2024-03-13T06:07:19Z |
| publishDate | 2023-06-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Public Health |
| spelling | doaj.art-69bae3b84cff412c9bff3d96e69e901b2023-06-11T11:27:45ZengBMCBMC Public Health1471-24582023-06-0123111110.1186/s12889-023-15832-3Struck by stroke - experiences of living with stroke in a rural area in UgandaLinda Timm0Julius Kamwesiga1Sulaiman Kigozi2Charlotte Ytterberg3Gunilla Eriksson4Susanne Guidetti5Department of Neurobiology, Care Sciences and Society, Karolinska InstitutetDepartment of Neurobiology, Care Sciences and Society, Karolinska InstitutetButabika National Referral Mental HospitalDepartment of Neurobiology, Care Sciences and Society, Karolinska InstitutetDepartment of Neurobiology, Care Sciences and Society, Karolinska InstitutetDepartment of Neurobiology, Care Sciences and Society, Karolinska InstitutetAbstract Background The global burden of stroke is increasing and persons with low socioeconomic status are among those worst affected. In Uganda, stroke is estimated to be the sixth highest ranking cause of death. The Ugandan healthcare system is reported to be inequitable, where poorer populations often live in rural areas with long distances to health care. Stroke rehabilitation is often scarce, with less financial and human resources. The aim of this study was to explore and describe the consequences of stroke in daily activities in everyday life for people in a rural part of Masaka in Uganda. Methods Qualitative study design. Fourteen persons who had had stroke and were living in their home environment were interviewed about their experiences of having a stroke and managing their lives after the stroke incident. The interviews were analysed using thematic analysis. In addition, sociodemographic data and level of independence (Barthel Index and Stroke Impact Scale 3.0) was collected to describe participant characteristics. Results Most of the participants had major consequences of stroke and described that they were dependent on support for managing their daily activities. Five themes were identified in the analysis: (1) Accepting and adapting to new ways of managing everyday life, (2) Changing roles and hierarchical positions, (3) Depending on caregiver support, (4) Interrupted care due to economic constraints, (5) Stroke leading to losses and losses leading to stroke. Conclusions The consequences of stroke on the persons’ daily lives clearly reached beyond the person with stroke, affecting the whole family and their proximate social networks. These consequences included increased burdens on caregivers and a worsened economic situation for all persons affected. Therefore, interventions for stroke management should preferably not only target the individual affected by stroke, but also support the caregivers in the caring and rehabilitation process. Home rehabilitation approaches with a focus on improving health literacy are suggested.https://doi.org/10.1186/s12889-023-15832-3Non-communicable diseasesActivities of Daily LivingRehabilitationOccupational therapyAfricaRural |
| spellingShingle | Linda Timm Julius Kamwesiga Sulaiman Kigozi Charlotte Ytterberg Gunilla Eriksson Susanne Guidetti Struck by stroke - experiences of living with stroke in a rural area in Uganda BMC Public Health Non-communicable diseases Activities of Daily Living Rehabilitation Occupational therapy Africa Rural |
| title | Struck by stroke - experiences of living with stroke in a rural area in Uganda |
| title_full | Struck by stroke - experiences of living with stroke in a rural area in Uganda |
| title_fullStr | Struck by stroke - experiences of living with stroke in a rural area in Uganda |
| title_full_unstemmed | Struck by stroke - experiences of living with stroke in a rural area in Uganda |
| title_short | Struck by stroke - experiences of living with stroke in a rural area in Uganda |
| title_sort | struck by stroke experiences of living with stroke in a rural area in uganda |
| topic | Non-communicable diseases Activities of Daily Living Rehabilitation Occupational therapy Africa Rural |
| url | https://doi.org/10.1186/s12889-023-15832-3 |
| work_keys_str_mv | AT lindatimm struckbystrokeexperiencesoflivingwithstrokeinaruralareainuganda AT juliuskamwesiga struckbystrokeexperiencesoflivingwithstrokeinaruralareainuganda AT sulaimankigozi struckbystrokeexperiencesoflivingwithstrokeinaruralareainuganda AT charlotteytterberg struckbystrokeexperiencesoflivingwithstrokeinaruralareainuganda AT gunillaeriksson struckbystrokeexperiencesoflivingwithstrokeinaruralareainuganda AT susanneguidetti struckbystrokeexperiencesoflivingwithstrokeinaruralareainuganda |